6 months on Orkambi by Miranda Porche


In this video watch Miranda Porche’s health update on her 6th month of taking Orkambi.

To learn more about cystic fibrosis, click here: http://bit.ly/1QltnFs

Stay updated on all the latest Orkambi news here: http://bit.ly/1RlPwnh

How useful was this post?

Click on a star to rate it!

Average rating 0 / 5. Vote count: 0

No votes so far! Be the first to rate this post.

As you found this post useful...

Follow us on social media!

We are sorry that this post was not useful for you!

Let us improve this post!

Tell us how we can improve this post?


  1. Carole LeMaster says:

    My 12 year old grandson has been on Orkambi for 3 months but has suffered no side affects and has gained some weight. He looks and feels good and has a good appetite. We home school 6th grade.

  2. Diana says:

    Waiting for Orkambi for an 11 yr old. He’s doing OK but slowly declining….very slowly. Hope Orkambi helps. Gl 2 you and thx for the video. Really sry you’ve had such a hard time but keep your chin up!

Leave a Comment

Your email address will not be published. Required fields are marked *