7 Cystic Fibrosis Headlines

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1 – “I’ve Got Cystic Fibrosis” – A Charles Michael Duke Song

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“Wrote this song last year to mark CF Week, and help raise awareness. So for this year, I decided to write some new lyrics and make a proper video for it! ”

Watch video here: http://bit.ly/1YaNvxL

 

2 – Intestinal Microbiome of Children with Cystic Fibrosis Promotes Gut Inflammation, Study Finds

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Young children with cystic fibrosis (CF) exhibit a more pro-inflammatory gastrointestinal microbiome, which may underlie impaired nutrient absorption according to the study “Metagenomic evidence for taxonomic dysbiosis and functional imbalance in the gastrointestinal tracts of children with cystic fibrosis,” published in the journal Scientific Reports. The results suggest that therapeutics modulating the intestinal microbiome in these children may improve their health and fat absorption.

Read full article here: http://bit.ly/1UCv7A1

3 – New CF Guidelines for Treatment and Care of Preschoolers Issued with Aid of CF Foundation

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Early nutritional intervention and monitoring for respiratory and gastrointestinal disease in the youngest cystic fibrosis (CF) patients is vital to improving long-term outcomes. Clinical care guidelines specific to infants with CF, and nutrition and pulmonary guidelines for children over 6 years of age do currently exist and they are published by the CF Foundation. However, a gap exists in clinical care recommendations pertaining to preschoolers, or children aged 2 to 5.

Watch video here: http://bit.ly/1TkOX1l

4 – 10 Cystic Fibrosis Symptoms to Look Out for

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Learn more about the CF symptoms to look out for in newborns and infants.

Read full article here: http://bit.ly/1UWH7L1

5 – “The Respiratory Therapy Song”: A Cystic Fibrosis A Cappella Song

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In this welcometojoshland video, watch the “The Respiratory Therapy Song performed by Josh Mogren and Basses Wild Men’s A Cappella from the University of Minnesota, this original song was created for the CF Community as a part of the ‘Moganko For Cystic Fibrosis Awareness Project’. It’s a grass roots campaign to get Moganko the puppet on the MuppetStudios YouTube Channel so he can meet the Muppets and create a public service announcement about cystic fibrosis.”

Watch video here: http://bit.ly/1RnCtn9

6 – NICE Says No to Orkambi on the NHS | CF News by Cystic Fibrosis Trust

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In this Cystic Fibrosis Trust video, “NICE decides against recommending Orkambi on the NHS in England, Ireland does its first EVLP transplant, there’s a digital debate to further democracy and The Libertines raised money for raffling off their tea.”

Watch video here: http://bit.ly/1YaRqL9

7 – An Undeniable Hope: Recent CF Breakthroughs Show that a Cure Can Be Found

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“I was two years old when I was diagnosed with Cystic Fibrosis (CF). It has taken me twenty-five years to come to terms with the disease. I’ve spent the greater part of my life trying to convince myself I was normal, that I could lead a normal life. I did not want to confront the realities of the disease because there is currently no cure. Existing therapies are directed toward merely mitigating its symptoms. I felt I couldn’t allow myself to confront the reality of my health because I did not have any real hope that it could change.”

Read full article here: http://bit.ly/1mvPeBl

 


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