9 Famous Cystic Fibrosis Patients

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8. Celine Dion’s niece Karine

shutterstock_145179424Karine was the daughter of Liette and niece of Celine Dion, who died as a result of cystic fibrosis in 1993 when she was 16-years-old. She was diagnosed at birth with the disease and struggled through her childhood with it. Having witnessed the devastation of the disease in her family, Celine Dion became devoted to the fight against CF and she is currently the President of Honor of the Foundation against Cystic Fibrosis, she also supports the T.J. Martell Foundation and the Bottom Memorial of Princess Diana of Galls.

“I went near her,” told Céline. “She had slept so she had the strength to get up and I was behind her to trying to support her little body with my back because she was bent. She got up and she took my arm under her, I loosened her hair and I sang in her ear, and like that, the idea of Eddy’s song came to me: Les Oiseaux du Bonheur; I sang this song very quietly and quite slowly, I felt that her organs, one after the other, left us, because my body was very near to hers and I felt that they left us.  I signed to my family who was on the edge, and for my mother (she shakes the head), while singing, everybody knew.  Then I looked at my family and I continued to sing, she left slowly like that. I am so satisfied that I sang her a song before she left, and before she gave me this luck to accompany her, it is the most beautiful gift… “

Here are 8 other tips to manage your cystic fibrosis.

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