Cystic fibrosis is a rare genetic condition that affects just 10,000 people in the U.K., so it’s not much of a surprise that Cosmopolitan writer Darryl White didn’t come across the disease until she started university.
The oxygen tank Tahlia carried everywhere was the first thing Darryl noticed about her during Freshers week, but she waited until their friendship deepened before she asked why she needed it.
Darryl learned that Tahlia suffered from cystic fibrosis and needed oxygen therapy 24 hours a day. Her lung function was at just 25 percent and she was on the lung transplant list. Tahlia would need an organ donation from a child because she was so petite.
Eventually, Tahlia received the call she’d been waiting for and the procedure was a success. However, lung transplant patients are at risk of rejection, and despite taking anti-rejection medication, Tahlia’s body rejected the new lungs and she passed away in 2015.
Even though the lung transplant didn’t work for Tahlia, Darryl wrote a piece for Cosmopolitan about the importance of organ donors. Darryl explains that although lung transplants aren’t a cure for cystic fibrosis patients, they do extend their lives, and giving a chronically ill person extra time with their loved ones is cherished gift.
You can read Darryl’s full post on cosmopolitan.com.
Cystic Fibrosis News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.
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