This video from PopSugar is all about Claire Wineland, a very active advocate for cystic fibrosis (CF). She shares her thoughts about how to live when you’re dying.
Claire explains that after being in a coma for a few weeks when she was 13, she realized her life with cystic fibrosis would never be normal but it could still be wonderful and enjoyable. She also decided that she wanted to help others, so set up the Claire’s Place Foundation which aims to support children living with cystic fibrosis as well as help their parents with the financial burden of the disease.
When Claire was first diagnosed with cystic fibrosis as a baby, her parents were told that it was unlikely she would live past the age of 10. This was later revised to her late teens, then her twenties, and she realized that she had a life to go out and live.
Claire now lives an independent life, has an apartment in Venice and travels the world talking about how to live the best possible life with cystic fibrosis.
Cystic Fibrosis News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.
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