Cystic Fibrosis Canada Holding 29th Annual Golf Fundraiser June 25 in Calgary

Cystic Fibrosis Canada Holding 29th Annual Golf Fundraiser June 25 in Calgary

Cystic Fibrosis Canada, Calgary and Southern Alberta Chapter is holding the 29th Annual 65 Roses Ladies Golf Classic event on June 25 to raise funds and awareness for cystic fibrosis (CF).

The annual event will be presented by Lexus of Calgary and held at the Heritage Pointe Golf Club.

The 65 Roses Ladies Golf Classic is the longest-running women’s-only golf tournament in Calgary. The initiative has raised more than $1.1 million for CF research and clinical care.

Calgary
Lexus of Calgary 65 Roses Ladies Golf Classic (CNW Group/Cystic Fibrosis Canada- Calgary & Southern Alberta Chapter)

The event will kick off at 10 a.m. with registration and a silent auction, followed by lunch at 11:30 a.m. sponsored by Spolumbo’s. At 1 p.m. the golf tournament will start. Dinner and an awards ceremony will take place after the tournament.

Tickets are $275 per person. The early bird rate is $225 until May 1.

Funds raised by Cystic Fibrosis Canada events go toward research and advocacy activities, as well as services to the CF community.

Earlier this year, on Rare Disease Day in February, the organization called attention to the geographic divide in access to medication confronting people with CF and other rare diseases in Canada. Because each province manages its own healthcare, access to medical services and medications can vary widely across the country.

For example, Flovent (fluticasone propionate), an inhaled corticosteroid used by CF patients to help reduce inflammation in the lungs, is covered by the publicly funded healthcare system in Nova Scotia, but Alberta’s healthcare system doesn’t cover it, meaning patients have to potentially pay out of pocket. Cystic Fibrosis Canada would like to eliminate this disparity, making access to CF therapies equal across all provinces for patients in Canada.

The organization is also pushing for coverage of newer and more expensive treatments, such as Orkambi (lumacaftor/ivacaftor; marketed by Vertex Pharmaceuticals), that can address the causes of the disease rather than just treat its symptoms.

According to Cystic Fibrosis Canada, there are approximately 360 children and young adults with cystic fibrosis in Calgary and Southern Alberta.

Cystic Fibrosis Canada is one of the world’s top three charitable organizations dedicated to finding a cure for CF. It invests more funding in life-saving CF research and care than any other nongovernmental agency in Canada.

Email [email protected] or contact the Cystic Fibrosis Canada office at 403-266-5295 to register in the 65 Roses Ladies Golf Classic event. A video with highlights from the 2017 fundraiser can be seen below:

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