BNS Staff, writers and editors —

Photo courtesy of Luisa Palazola Day 25 of 31 This is Luisa Palazola’s story: Three months before I started Trikafta, I went to Colombia with my FEV1 at 62%. Toward the end of my trip, I coughed up blood on the side of…

Photo courtesy of Della Anne Day 24 of 31 This is Della Anne’s story: Ports are a common accessory if you have cystic fibrosis. After most of the veins in my arms had been used up from Picc (peripherally inserted central catheter) lines, my doctor…

Photo courtesy of Chase Nichols Day 23 of 31 This is Chase Nichols’ story: Insecurity. Not quite the word that most people who look at me would associate with me. But they would be wrong, at least for the most part. Growing…

Photo courtesy of Aimee Lecointre Day 22 of 31 This is Aimee Lecointre’s story: Cystic fibrosis is hard, for an infinite number of reasons. One area I struggle with is compliance. There’s a lot that goes into managing CF on a daily basis:…

Photo courtesy of Sara Popescu Slavikova Day 21 of 31 This is Sara Popescu Slavikova’s story: Our baby turns 1 this month! She chose to be born in May, in the month of cystic fibrosis awareness, instead of in June, as expected. Last…

Photo courtesy of Marc Cotterill Day 20 of 31 This is Marc Cotterill’s story: My name is Marc Cotterill. I’m 39 years old and a business architect and creative from the U.K. I was born with a life-limiting condition, cystic fibrosis (CF).  Being…

Photo courtesy of Chloe Lussier-Labelle Day 19 of 31 This is Chloe Lussier-Labelle’s story: Hi! I’m Chloe Lussier-Labelle. As a 32-year-old with cystic fibrosis in Canada, I try to make the most of every moment, but my hardest fight has been growing old…

Photo courtesy of Bianca Maldonado-Dequin Day 18 of 31 This is Bianca Maldonado-Dequin’s story: My son, Esteban, was diagnosed with cystic fibrosis at birth 16 years ago. The doctor at the time talked about life expectancy, complications with this disease, multiple medications, and…

Photo courtesy of Teresa Sutter Day 17 of 31 This is Teresa Sutter’s story: “I don’t let my disability get in the way of me living my life.” I’m sure we’ve all heard iterations of this statement that, though well-intentioned, can cause feelings of guilt…

Photo courtesy of Toni Frehner Day 16 of 31 This is Toni Frehner’s story: My name is Toni, and I am a partner and caregiver in my 30s to someone with cystic fibrosis.  Colten and I met in high school, and after graduation,…