BNS Staff, writers and editors —

Photo courtesy of Marquita Redd Day 8 of 31 This is Marquita Redd’s story: My name is Marquita, and I am an advocate for organ donation. My father had a liver transplant when I was 15 years old. When I was 17, right before I…

Photo courtesy of Todd Breland Day 7 of 31 This is Todd Breland’s story: I’m an artist, designer, skateboarder, surfer, and explorer. I also have cystic fibrosis and am a double lung transplant survivor. Diagnosed at 10, I was an active kid and thrived on…

Photo courtesy of S. Langland Day 6 of 31 This is Kristin Entler’s story: Cystic fibrosis is lonely. Not in the way all diseases are lonely. Not just the 2 a.m. “hacking into couch pillows” to keep from waking my partner upstairs, in quiet seconds…

Photo courtesy of Emilee Pehrson Day 5 of 31 This is Emilee Pehrson’s story: Philippians 4:13 says “I can do all things through Christ which strengtheneth me.” Maybe it’s weird to start off with a Bible verse, but this piece of scripture…

Photo courtesy of Tonya Lantis Day 4 of 31 This is Tonya Lantis’s story: Hello! My daughter, Amelia, came into this world at a crazy but perfect time for us. If you remember how October 2020 was going for the world, you know what I…

Photo courtesy of Lauren D’Amato Day 3 of 31 This is Lauren D’Amato’s story: Why must doctors feel more confident looking at charts and numbers instead of listening to their patients’ concerns? Despite what my medical charts may say, I have some stories that prove…

Photo courtesy of Keena Bauer Day 2 of 31 This is Keena Bauer’s story: My name is Keena Bauer. I am 44 and live in Nebraska. I was diagnosed with cystic fibrosis (CF) at 6 months old, so exercise and the importance of it have…

Photo courtesy of Beth Vanstone Day 1 of 31 This is Beth Vanstone’s story: Our story starts with my daughter Madi being diagnosed with cystic fibrosis (CF) at 8 months old. Finding a diagnosis was tough, but not nearly as difficult as learning and understanding…

FFF Enterprises and BioNews Services, publisher of this website, announced today that both rare and orphan disease advocates are joining forces to provide patients with resources to help them connect as a community and continue to manage their health during this time when many are finding themselves alone.

A 39 year-old man with Cystic Fibrosis who was planning to scale Mount Everest in an effort to raise money and awareness for the disease is reportedly safe and making his way back from Everest’s base camp after a massive earthquake over the weekend ravaged the region leaving…