Victorious - a Column by Brad Dell

hope, funeral, social, ableism, funeralBrad Dell is a Deaf 27-year-old with cystic fibrosis. He received a double-lung transplant from UC San Francisco in January 2017, then cochlear implants nine months later. He now lives in Hawaii, where he was raised. Usually he’s traveling the world, chugging coffee, mentoring college students, or studying theology. Otherwise, he’s working as the director of columns at BioNews, the publisher of CF News Today. (OK, he’s still drinking coffee while he works.) He writes to undo the taboo surrounding lung transplantation. Catch him on Instagram at @coffee.cats_

Fear of Abandonment Has Driven My Life into the Ground

Six months ago, if I had been tied to a very uncomfortable chair and tortured for weeks while interrogators screamed, “What is your greatest fear?” the only things I could have come up with would have been maybe … centipedes. Or dying in a hospital bed. Or maybe that the…

The Present Realizes the Past Through Travel

In my senior year of college, I wanted to be just like Dad. He’s a courageous traveler who has filled many passports and has eaten all sorts of weird foods. The problem was that traveling kind of scared me. No, it really scared me. It seemed like every plane…

The Art of Not Helping

My head is in the clouds right now. I took a heavy sleeping aid about half an hour ago, and wooh, that stuff hits fast and hard. The sleeping aid has become necessary some nights. I don’t know how to sleep when my phone keeps buzzing, buzzing, buzzing. I pick…

The Kind of Friend We Deserve

When I met Alexander, he was thin, his nose bled a lot, and he had tubes in his ears. I was a lonely first-grader fresh to Hawaii, and just as thin and malfunctioning as the brother I didn’t yet know. How could I ever adequately thank the teacher…

Clinical Anxiety of an Unexpected Type

Hi, my name is Brad Dell, and I have clinical anxiety disorder. Well, disorders. Three types. My generalized anxiety disorder is well-documented in my columns. It’s plagued me since sixth grade, beginning when I’d lie in bed at night, sweaty and staring at the glowy star stuck to my…

Why Rare Disease Communities Must Stand United

“You need space at the table for five wheelchairs?”  The waitress’s eyes exploded from her skull, shocked to the degree I’d expect if I were to ask that she seat five grizzly bears. When making the reservation at the restaurant, I said…