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Do you have a special relationship with your CF providers?
Living with CF, we spend a lot of time in the hospital, at the clinic, and with our providers. Often, we form special relationships with them. When we have these healthy, enriched relationships with our providers, we feel safer, less anxious about visits, and more connected to the people who, let’s be real, have our lives in their hands. I have had good doctors and a bunch of terrible ones. But my transplant and CF provider has become family. He saved my life, took a chance on me, and gave me his personal cell phone, Instagram, and Snapchat. Do you have a doctor with whom you are close? How has this relationship shaped your care?
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