• Rare Disease Communities

    Posted by jenny-livingston on February 25, 2020 at 10:30 am

    One of the things I’m most grateful for in my life is the tight-knit online CF community. I have found so much comfort, information, support, and genuine friendship here. I’ve heard it said that the CF community is like the family you never wanted, but are so happy to have.

    I always wonder if other rare disease/chronic illness communities feel the same way.

    Do you interact with other rare disease communities? Are you perhaps part of another rare disease community due to a condition of your own or one within you family? If you have experience with other rare disease communities, I’d love to hear your stories here! 

    jenny-livingston replied 4 years ago 0 Member · 0 Replies
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