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  • What CF advice do you wish was given to your younger self?

    Posted by Community Member on June 29, 2026 at 9:00 am

    No matter when you received your CF diagnosis, it is a traumatic and life-changing conversation. Hindsight is 20/20, and although we can’t change the past, we can help others change their present. At two years old, I was diagnosed with CF. So I never really knew a life without CF. I have been given a lot of advice in my life from doctors, my parents, and friends. However, the most impactful brain worm I’ve received was that CF is what I have, not who I am. Even on days when it feels like CF is consuming me whole, I repeat that to myself, and I can lessen CF’s stranglehold on me. Have you received any impactful advice? What do you wish you could tell your younger self, or when you were first diagnosed?

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