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What is your motivational CF theme song?
Fighting CF is hard, but music has the power to uplift us when we are down. Since I was about 10, whenever I felt defeated or sad, my mom would play “Don’t Stop Believin’” by Journey. It became my theme song, or motivator, that I would blast in the hospital before operations, or when I needed a cosmic reminder that everything will be okay. Do you have a motivational theme song?
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4 Replies
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Katie Perry – Fighter .. I forget the name of it. I went to a CFRI retreat once and it was the camp’s theme song that year and ever since it’s been a reminder of strong friendships in the community for me. 😍
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Is it called Roar? Such a good song! How was the camp?
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As the mom of a daughter with severe cystic fibrosis, this song by a French-Canadian band means so much to me. It was written by one of the band members, who is also the father of a daughter with cystic fibrosis. I took the liberty of translating the lyrics into English 🩷 https://www.youtube.com/watch?v=uWDz5zEc1hs
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Despite the ghost stories
Etched deep within my chromosomes
Despite my breath growing shorter
Every time the clock makes one more turn
I keep moving forward
Despite the fear that grips my guts
Whenever statistics come up
Whenever good news turns bad
In a hospital hallway
I keep moving forward
Despite the hard knocks and the bad luck
Despite those who never pass me the puck
I don’t want to stay stuck on the bench
I’m going to play in the big leagues
I keep moving forward
One step, one little step
One tiny little step at a time
The foot behind moves out in front
Falls into step, then starts again
A kick in the ass to bad luck
A thumbing of my nose at the deadline
One more step, one little step
Small and giant all at once
Feet stamping, feet dancing
Wrong-footed, going against the flow
Ignoring all indifference
Over the distance, they will make
The difference
With your heart stitched to mine
In the patchwork quilt of fate
To pick up the pieces of me
Whenever I’m completely worn out
I keep moving forward
With helping hands and little boosts
That make the climb a little easier
That put fuel in the tank
Of my body, which runs on hope
I keep moving forward
One step, one little step
One tiny little step at a time
The foot behind moves out in front
Falls into step, then starts again
A kick in the ass to bad luck
A thumbing of my nose at the deadline
One more step, one little step
Small and giant all at once
Feet stamping, feet dancing
Wrong-footed, going against the flow
Wrong-footed, going against the flow
Ignoring all indifference
Over the distance, they will make
The difference
I’ve packed courage in my luggage
And a smile to calm the storm
I have your shoulder for the painful days
We’ll see where all of this takes us
One step, one little step
One tiny little step at a time
The foot behind moves out in front
Falls into step, then starts again
A kick in the ass to bad luck
A thumbing of my nose at the deadline
One more step, one little step
Small and giant all at once
Feet stamping, feet dancing
Wrong-footed, going against the flow
Wrong-footed, going against the flow
Ignoring all indifference
Over the distance, they will make
The difference
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Love this! Thank you for sharing.
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