Cystic Fibrosis News Today Forums | Ask Me Anything | Activity https://cysticfibrosisnewstoday.com/forums/groups/ask-me-anything/ Activity feed for the group, Ask Me Anything. Wed, 23 Sep 2026 17:47:32 -0500 https://buddypress.org/?v=3.5.0 en-US 30 hourly 2 ca06e5c7d017b4a96475ad01d18a9b24 Community Member posted an update in the group Ask Me Anything: What has helped you feel supported while still […] https://cysticfibrosisnewstoday.com/forums/activity/p/8759/ Fri, 24 Jul 2026 08:13:32 -0500 What has helped you feel supported while still maintaining your own independence?

]]> 1 48929902e6b2c20806d99e9f8b592e83 Community Member posted an update in the group Ask Me Anything: If so, what helps you manage it? https://cysticfibrosisnewstoday.com/forums/activity/p/8757/ Fri, 24 Jul 2026 07:58:33 -0500 If so, what helps you manage it?

]]> 1 6ab6f4b99a70c97b9c5a14eb05855c6e Community Member posted an update in the group Ask Me Anything: What did support around movement and activity look […] https://cysticfibrosisnewstoday.com/forums/activity/p/8755/ Thu, 23 Jul 2026 17:15:55 -0500 What did support around movement and activity look like growing up with CF?

]]> 1 4510754f5b87d4c2e851c8b587a94a41 Community Member posted an update in the group Ask Me Anything: How do you explain your health with a partner? https://cysticfibrosisnewstoday.com/forums/activity/p/8753/ Thu, 23 Jul 2026 17:06:02 -0500 How do you explain your health with a partner?

]]> 1 4c24caf45d4045f0e08390620d64d4ad Community Member posted an update in the group Ask Me Anything: Is there something you wish they knew without you having […] https://cysticfibrosisnewstoday.com/forums/activity/p/8751/ Thu, 23 Jul 2026 16:35:17 -0500 Is there something you wish they knew without you having to explain it?

]]> 1 524b8697ecf3890cb1ec2fea57aa70be Community Member posted an update in the group Ask Me Anything: Has anyone in the group ever tried to manage CF outside […] https://cysticfibrosisnewstoday.com/forums/activity/p/8749/ Thu, 23 Jul 2026 09:19:13 -0500 Has anyone in the group ever tried to manage CF outside of an official CF Clinic/Center? Centers are few and far between in the Southern US. Have you ever just gone to a general pulmonologist? If so, how’d that work out? I am currently traveling about 6-7 hours to get my center of choice. I so envy those who have a choice of several centers nearby!

]]> 1 3515f9b1f1887d9d5b8b2d426f38d8a0 Community Member posted an update in the group Ask Me Anything: How do you hold on to your identity, interests, and joy […] https://cysticfibrosisnewstoday.com/forums/activity/p/8746/ Wed, 22 Jul 2026 10:38:42 -0500 How do you hold on to your identity, interests, and joy when CF takes up so much space?

]]> 1 0b31db6d8b685e14427e548782c3acd6 Community Member posted an update in the group Ask Me Anything: How has connecting with others who understand CF shaped […] https://cysticfibrosisnewstoday.com/forums/activity/p/8743/ Wed, 22 Jul 2026 10:31:18 -0500 How has connecting with others who understand CF shaped your hope, perspective, or decisions about your health?

]]> 1 e7b6f85c9903300be66f2dc1281dd4c6 Community Member posted an update in the group Ask Me Anything: What people, places, or moments help you reset when CF […] https://cysticfibrosisnewstoday.com/forums/activity/p/8741/ Wed, 22 Jul 2026 10:26:28 -0500 What people, places, or moments help you reset when CF feels especially heavy?

]]> 1 ced22096edef94fb27ef01eb0d6cf846 Community Member posted an update in the group Ask Me Anything: How can they raise concerns, ask questions, or seek a […] https://cysticfibrosisnewstoday.com/forums/activity/p/8739/ Wed, 22 Jul 2026 10:14:34 -0500 How can they raise concerns, ask questions, or seek a second opinion while still feeling respected?

]]> 1 433d12a6b74c06be9b96373446bc63a9 Community Member posted an update in the group Ask Me Anything: Do you bring notes, ask for clarification, bring a […] https://cysticfibrosisnewstoday.com/forums/activity/p/8736/ Tue, 21 Jul 2026 20:19:47 -0500 Do you bring notes, ask for clarification, bring a support person, or use another strategy that helps?

]]> 1 3049bf87db5b9040af2b015946d839ce Community Member posted an update in the group Ask Me Anything: What actions or words have made you feel genuinely seen? 🥰 https://cysticfibrosisnewstoday.com/forums/activity/p/8734/ Tue, 21 Jul 2026 20:09:34 -0500 What actions or words have made you feel genuinely seen? 🥰

]]> 1 062a2f8f9045a12c1c3a4be1ec5b84aa Community Member posted an update in the group Ask Me Anything: How have rapidly evolving treatments, changing […] https://cysticfibrosisnewstoday.com/forums/activity/p/8728/ Mon, 20 Jul 2026 20:49:21 -0500 How have rapidly evolving treatments, changing public understanding of CF, and the relationships in your life shaped the way you imagine what is ahead?

]]> 1 e1fe0b662731da181ef46cac31186f5e Community Member posted an update in the group Ask Me Anything: How does it help you manage burnout, depression, anxiety, […] https://cysticfibrosisnewstoday.com/forums/activity/p/8726/ Mon, 20 Jul 2026 20:47:29 -0500 How does it help you manage burnout, depression, anxiety, or the emotional weight of living with CF?

]]> 1 0e897b64a2ae783899acfd3f87b2a0c5 Community Member posted an update in the group Ask Me Anything: Was it a person, a new perspective, a routine, or […] https://cysticfibrosisnewstoday.com/forums/activity/p/8724/ Mon, 20 Jul 2026 20:46:05 -0500 Was it a person, a new perspective, a routine, or something you discovered about yourself?

]]> 1 cdc002a6974222149d19af826526f935 Community Member posted an update in the group Ask Me Anything: It could be a big milestone or a moment of joy when you […] https://cysticfibrosisnewstoday.com/forums/activity/p/8721/ Mon, 20 Jul 2026 20:36:58 -0500 It could be a big milestone or a moment of joy when you kept going despite how hard things felt.

]]> 1 6da97e261f2f91078ca849286324ae87 Community Member posted an update in the group Ask Me Anything: Was there a particularly difficult time with your […] https://cysticfibrosisnewstoday.com/forums/activity/p/8720/ Mon, 20 Jul 2026 20:32:28 -0500 Was there a particularly difficult time with your health that ultimately shifted your perspective, helped you grow, or made you feel more like yourself?

]]> 1 9f66b53d1b51e6f64081e80136de9215 Community Member posted an update in the group Ask Me Anything: Do you have questions about cystic fibrosis you’d like to […] https://cysticfibrosisnewstoday.com/forums/activity/p/8683/ Thu, 18 Jun 2026 16:55:11 -0500 Do you have questions about cystic fibrosis you’d like to ask someone who truly gets it?

We’re hosting a special 5-day Ask Me Anything (AMA) in the forums with Caleigh (@fight2breathe) from July 20th to 24th. Caleigh will be sharing from her own CF journey: what daily life looks like, how she copes, and how she navigates care and support.

Drop…

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