Mental health has been a constant challenge, especially with the unpredictability of CF. I’ve been working with a therapist weekly and also use journaling to process things. Having a set routine, morning walks, breathing exercises, setting small goals, gives me some control on days when everything else feels chaotic. It’s not perfect, but…

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Started Alyftrek in early March, and the first few weeks were rough, massive purge, low energy, and those weird flu-like symptoms. But once that passed, I noticed a real difference in daily breathing and fatigue levels. Everyone’s response is so different, though, so I’m trying to stay patient with the ups and downs.

I’ve had to find other ways too, especially when anxiety is part of the mix. One thing that really surprised me was how much medical cannabis helped, but not in the way I expected. I started using it through a UK clinic, mostly to help with anxiety and sleep, which were both making the pain feel worse.

Turns out, addressing the anxiety…

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This is super helpful, finding something that’s easy to manage solo can make such a difference, especially with something like a PICC line where water exposure is a constant worry. Appreciate the tip.

15-minute drive? That’s dangerously close to becoming a “no excuse” trail. Nature’s out there calling like, “hey, it’s leg day again.”

I’ve been on both sides: meds during really rough patches and now more focused on CBT and mindfulness work. Having a mix of daily structure, honest conversations, and a few “off switches” like music or walks helps me reset. Still a work in progress, but I’ve come to see mental health like physical health, always worth the upkeep.