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  • Michael Carlebach became a registered member 1 year, 6 months ago

    • Hey Michael! So glad to have you on the forums. I am Luisa and I also have CF, and I am one of the moderators here at CF News Today. I think it’s so AWESOME that you had your transplant in 2005. How are you doing today?
      • Hi Louisa. I’m doing well, living, writing and photographing in Asheville. Since my transplant I’ve managed to publish three new books and am now working on a memoir or sorts about my family’s long struggle with CF. My case was “late onset” but I lost four siblings along the way.
          • Oh my gosh, that’s so cool. Are your books available to order on Amazon. And, I can’t imagine what it is like to lose four siblings. CF is brutal, especially when the medications and therapies haven’t been there. Also — I will be in North Carolina next month, but I am going to Charolette!
              • I think all of my books are available through Amazon, though I haven’t looked recently.
                When we were all growing up there wasn’t much talk about CF in the family, and about the only treatments available were antibiotics and back-slapping percussion. Terrible for our parents who had all those babies after WWII only to find out that the first five of them all had CF. I mostly pretended I didn’t have it.
                  • May you remind me of the name of your books, and I’ll be sure to look them up. And, jeez — post WWII was such an apocalyptic space for the world, toppled with the news of CF… I can imagine you took on that identity to not want to have CF.
                      • The three books published since my transplant are :Bain’s New York. The City in News Pictures, 1900-1925; Sunny Land. Pictures from Paradise; and Some of Us. (The last two are collections of my photographs. You can see some of my pictures on my website: michaelcarlebach.com
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