Brad Dell

Howdy guys!

It’s been a while since I was here — so let me (re)introduce myself! I am Luisa and I am a 28-year-old with cystic fibrosis. Like many folks, my CF story is long and full of peaks, valleys, and hills. I was actually a late diagnosis at eight years old after continuous pneumonia. I faired well until high school, where I developed…[Read more]

Yesterday I got a screenshot of the FDA’s approval for what is now Trikafta: I’ve been on the study for the last 10 months — and hearing an actual name (aside from triple combo) is bonkers to me. What’s even more bonkers is how I feel: how my numbers have changed, and the ability to wake up and breathe without a slew of mucus const…[Read more]

Proteostasis Therapeutics or PTI Biotech is a innovative biopharmaceutical company that is helping develop novel CFTR therapies, and more innovative methods of treating CF. Their big theme is approaching CF care from all angles of a patient’s care and also from different parts of the world. I was asked to speak a little on my story with CF and…[Read more]

Last night I was sharing my thoughts on Instagram stories, as I often do. I began reminiscing about childhood and all the things I used to innocently think. It started a dialogue with my CF friends, and we began sharing things related to how we saw CF when we were little, here are two of my absurd childhood thoughts:

1. I was diagnosed late with…[Read more]

Have you seen these stats before, our team at CF News Today came up with this neat infographic of strides recorded by the Cystic Fibrosis Foundation. And, I think it’s pretty phenomenal:

For, me it’s boggling to realize that I am one of those people. I am one of those people who has not only benefitted from the newer medications and…[Read more]

I’ve been dealing with pretty gnarly migraines over the last few weeks. I’m no stranger to migraines, in fact when I was 16, I was admitted because of getting migraines. That admission, I also had an MRI of my head — and, it turns out I have a birth abnormality called Arnold Chiari Malformation — type 1.5 to be exact. It’s the when the

“lower…[Read more]

Head’s up! The CFF hosts an annual virtual event for people with CF for a “weekend of sharing, connecting, and learning as we join together for a free, two-day virtual event to discuss experiences unique to people living with CF.” This year it it is Sept. 20 and 21. Sign up…[Read more]

1. Christina Randall’s channel. She is a becoming YouTuber who has chronicled her experiences in prison with rawness and realness; something totally foreign to me and I think offers a facet of life outside chronically ill life.

2. CG Kid is a recovering poly addict, and talks openly and honestly about drug addiction. Again, it’s something very…[Read more]

I wrote this a few months ago, it’s an unedited culmination of my thoughts on living with CF:

“It’s CF Awareness Month. There are a lot of ways people choose to see their disease, if they even want to see it as a disease.

This is how I feel:

CF has made me confront my own mortality. CF has made me confront mortality of those I love.
CF has s…[Read more]

I think what you consume (whether food, television, news, music, ANYTHING — impacts your mood and perhaps your ability to get better). At the very least, this music helps me feel a bit better, for various reasons (or for no apparent reason) Here are my top songs that I listen to when I feel like sh*t. Link me the music you like when you feel like…[Read more]

Last year I got my first real tattoo. I scheduled an appointment with an artist I had followed on IG and drove 3 hours to get a my piece done by him. After him postponing my original appointment and then kinda forgetting I was coming on our rescheduled date, a resilient best friend, and some coffee: I got my piece.

I won’t leave out the s…[Read more]

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Hey guys! Today we have Gemma as our WCW! @gem.mcl is 24 years old and is from TX. This is what SHE considers important to her story with CF. ⁣⁣ ⁣⁣

💎I was diagnosed with CF at birth and was able to start treatments right away. My parents balanced teaching me about CF and allowing me to live a full life! I grew up taking…[Read more]