Cystic Fibrosis News Today Forums | Patti Rowland | Activity https://cysticfibrosisnewstoday.com/forums/members/edinboro/activity/ Activity feed for Patti Rowland. Tue, 14 Apr 2026 13:16:00 -0500 https://buddypress.org/?v=2.20.0 en-US 30 hourly 2 0daaa3066c2388d455e84a5550a5e1b6 Patti Rowland replied to the discussion Hemopytsis, hormones, and life in the forum Adults​ ​With​ ​CF https://cysticfibrosisnewstoday.com/forums/forums/topic/hemopytsis-hormones-and-life/#post-18489 Thu, 23 Jun 2022 15:35:03 -0500 Reply to Hemopytsis, hormones, and life

My daughter has noticed an increase in coughing up blood. Fortunately hers have always been small amounts (teaspoon size) and even if she coughs up a few days in a row, she may then go for up to 3 weeks with no Hemopytsis. Still its scary and sometimes embarrassing for her.

She is on Trikafta and since she was in the clinical trial may have… Read more

]]> f7d05f15b425e83b6ffde4b1083e6310 Patti Rowland replied to the discussion Patients denied transplantation because not covid vaccinated in the forum COVID-19 and CF https://cysticfibrosisnewstoday.com/forums/forums/topic/patients-denied-transplantation-because-not-covid-vaccinated-2/#post-18038 Thu, 17 Feb 2022 19:25:40 -0600 Reply to Patients denied transplantation because not covid vaccinated

Thank you Lisa for posting the link to the article. I enjoyed it, especially since it was written by actual Doctors!

I hope the worst of this pandemic is behind us. Not everyone has the luxury of “isolating themselves during flu season” or taking off work from Dec – March.

My adult daughter is the one with CF in my family. I was in the… Read more

]]> 8b2b3dc3eecac2740a5b16808422b30a Patti Rowland replied to the discussion Patients denied transplantation because not covid vaccinated in the forum COVID-19 and CF https://cysticfibrosisnewstoday.com/forums/forums/topic/patients-denied-transplantation-because-not-covid-vaccinated-2/#post-17982 Wed, 09 Feb 2022 16:13:32 -0600 Reply to Patients denied transplantation because not covid vaccinated

Taking these people off the transplant list was the right thing to do.

Is the patient not worried about the inflammation to the heart caused by COVID itself?

The same people using the no vaccine because “fetal cells were used” excuse are getting monoclonal antibodies that also used cells derived from fetal tissue year ago. It’s just become… Read more

]]> 0a0545a2701ef982a79118b51bf4b7d7 Patti Rowland and Jenny Livingston are now connected https://cysticfibrosisnewstoday.com/forums/activity/p/4816/ Tue, 25 May 2021 01:51:27 -0500 0 679a7e47ee327135c838c3c15a08e15b Patti Rowland posted an update: @timothybransford I am actually the mother of a 27 year […] https://cysticfibrosisnewstoday.com/forums/activity/p/4814/ Mon, 24 May 2021 16:59:01 -0500 @timothybransford I am actually the mother of a 27 year old CFer. Nothing warms my heart more than having you say “the ramblings of a 65 year old Cfer!” When she was diagnosed at 10 I worried those were words she may not get to ever say.

]]> 0 40fafba5465084cf88e8961800974720 Patti Rowland and Timothy are now connected https://cysticfibrosisnewstoday.com/forums/activity/p/4813/ Mon, 24 May 2021 16:43:30 -0500 0 4ce2cd03585be02056b77b0394cadbd7 Patti Rowland posted an update: does anyone else feel like all CF patients are just given […] https://cysticfibrosisnewstoday.com/forums/activity/p/4811/ Mon, 24 May 2021 13:48:13 -0500 does anyone else feel like all CF patients are just given a standard treatment plan regardless of the progress or lack thereof, of the patient?
Is everyone else kept on a daily, no break from inhaled antibiotics no matter the PFT number, weight and current health of the patient? Even when the sputum samples are clear?

]]> 1 a0c5526b99d904112faaa38a663736f8 Patti Rowland became a registered member https://cysticfibrosisnewstoday.com/forums/activity/p/4207/ Sat, 23 Jan 2021 16:32:46 -0600 2