• Ghizlane changed their profile picture 1 month, 2 weeks ago

  • Ghizlane posted a new activity comment 1 month, 2 weeks ago

    No transplantation too (lungs and liver).
    CF is stil a children desease.
    No specialized centers too. CF are in the same hospitals as other patients with Risks of contamination …
    Difficult to find good biologists too for analysis.
    • Ghizlane posted a new activity comment 1 month, 2 weeks ago

      Our health system doesn’t cover CF but private insurances reimburse us for comon medicines and cares.
      No ivafactor here… no CF Adult . Babies and children leaves us very early….
      We are perhaps 80 patients on our association
        • No transplantation too (lungs and liver).
          CF is stil a children desease.
          No specialized centers too. CF are in the same hospitals as other patients with Risks of contamination …
          Difficult to find good biologists too for analysis.
        • Ghizlane posted a new activity comment 1 month, 2 weeks ago

          Excuse my poor english please 🙂
            • Our health system doesn’t cover CF but private insurances reimburse us for comon medicines and cares.
              No ivafactor here… no CF Adult . Babies and children leaves us very early….
              We are perhaps 80 patients on our association
                • No transplantation too (lungs and liver).
                  CF is stil a children desease.
                  No specialized centers too. CF are in the same hospitals as other patients with Risks of contamination …
                  Difficult to find good biologists too for analysis.
              • Ghizlane posted a new activity comment 1 month, 2 weeks ago

                Hello Tré, Luisa
                Nice to met you
                Yes I am living in MOROCCO. My twins were born in Málaga/Spain. That’s why baby Joumana was diagnosed…
                CF is unknown here in MOROCCO. Doctors think that it is a disease of Europeens. But thĂ© are forgoting that moroccans have europĂ©en, african, Arab, jewish and even viking gĂŞnes…

                There is no mĂ©decines here fo…

                [Read more]

              • Ghizlane became a registered member 1 month, 2 weeks ago

                • Hi Ghizlane! I wanted to introduce myself, I am Luisa and I am 25 years old and I have CF. I am also a moderator for these forums. I see your baby also has CF and you guys live in Morocco? If you don’t mind me asking, what is CF care like there?
                  • Hello Ghizlane! Thanks so much for registering. I’m TrĂ© LaRosa, one of the forum moderators. Would you mind headed over to the Introductions forum and telling the other members a bit about yourself?

                  • Hello TrĂ©, Luisa
                    Nice to met you
                    Yes I am living in MOROCCO. My twins were born in Málaga/Spain. That’s why baby Joumana was diagnosed…
                    CF is unknown here in MOROCCO. Doctors think that it is a disease of Europeens. But thĂ© are forgoting that moroccans have europĂ©en, african, Arab, jewish and even viking gĂŞnes…

                    There is no mĂ©decines here fo…

                    [Read more]

                  • Excuse my poor english please 🙂
                      • Our health system doesn’t cover CF but private insurances reimburse us for comon medicines and cares.
                        No ivafactor here… no CF Adult . Babies and children leaves us very early….
                        We are perhaps 80 patients on our association
                          • No transplantation too (lungs and liver).
                            CF is stil a children desease.
                            No specialized centers too. CF are in the same hospitals as other patients with Risks of contamination …
                            Difficult to find good biologists too for analysis.
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