Gary Levin

LUISA!!! I can’t express how dang excited I am that you’re back here with us! I’m also thrilled that some of our new members will have the chance to get to know you and all your loveliness.

William, I love to read responses like yours. I feel fortunate to have a similar relationship with both my doctors.

The other side of the coin/birth and death interpretation is my favorite. The end is inevitable, so take this moment to breathe, to love, to enjoy, to exist. ♥

I love Nicole’s writing; thanks for sharing her article here. I fully agree with you both — aging is a beautiful gift. I also like the quote you shared from Osho. It resonates deeply within me.

This is certainly not the first time I’ve heard of someone’s doctor brushing aside symptoms or being hesitant to test for CF because they don’t fit the traditional mold of what we expect CF to look like. This is just one of the reasons that advocacy and storytelling are so important: they help break down assumptions and misconceptions about CF.…[Read more]

I don’t think our character is ever tested during times of ease. It happens during challenging times, and CF has definitely presented many opportunities for growth in my life. Like Katie, I really like the person I am today, due in part to those challenges (although I didn’t necessarily love those hard things themselves).

While none of them are trained service animals, all of my pets are supportive and loving. Being a pet owner has always been something I enjoy deeply. Animals are such treasures!

“When you’re given limited options in life due to your chronic illness, you develop tunnel vision. But now, for me, the blinders have come off.” These words struck a chord in me. Trikafta has widened my view of life once again as more things have become possible. It is truly remarkable. As Maggie says, I hope we can keep the spirit of advocacy a…[Read more]

While I am fully supportive of continued research, fundraising, and discussion about finding a cure, I also think it is incredibly important to talk about how so many people with CF are living beautiful, fulling, passionate lives right now. For many of us, that is in great part due to the dedication of those who came before us and “the generosity…[Read more]

I do indeed experience “dark periods” and I believe it’s totally normal and healthy for that to happen. The ways I manage these hard times are different than someone else might because coping strategies are not one-size-fits-all. I have found therapy to be helpful at times. I lean on my partner, like Shannon speaks of in this story. I spend time…[Read more]