Cystic Fibrosis News Today Forums | Jonny Flores | Activity https://cysticfibrosisnewstoday.com/forums/members/jf78230/activity/ Activity feed for Jonny Flores. Sat, 18 Apr 2026 01:43:55 -0500 https://buddypress.org/?v=2.20.0 en-US 30 hourly 2 2a48f3e11be337d56fd51a51524361f6 Jonny wrote a new item https://cysticfibrosisnewstoday.com/forums/?p=19498 Wed, 14 Feb 2024 21:46:09 -0600 URGENT: PLEASE ANY ADVISE WOULD BE GREAT! I just had my first Port-a-catheter inserted in the hospital, and it hurts. I know it will hurt for a few days. However, I MUST use a vest for CPT, severe bronchiectasis […]

]]> 0 cdda27f2daff5d44fda47ddca66fde80 Jonny wrote a new item https://cysticfibrosisnewstoday.com/forums/?p=19486 Fri, 09 Feb 2024 04:20:20 -0600 Has anyone tried Mannitol/Bronchitol? It is a mucous clearance med that has been recently available to pwCF on the CFF.org pipeline. It is my understanding that you must first take a “test dose” at your clinic […]

]]> 0 828148342c8b7cc5258ef8e5453c9338 Jonny replied to the discussion Sunday Morning (61): From Infection to Inflammation in the forum Science and Research https://cysticfibrosisnewstoday.com/forums/forums/topic/sunday-morning-61-from-infection-to-inflammation/#post-19484 Fri, 09 Feb 2024 02:39:10 -0600 Reply to Sunday Morning (61): From Infection to Inflammation

That’s good to know, thank you. I was debating switching from Claritin to either Xyzal or Allegra. I may just try both to see if I feel a difference.

]]> aa6e73fe589426b82a430cf8677d11cd Jonny replied to the discussion What is your CF clinic like? in the forum Adults​ ​With​ ​CF https://cysticfibrosisnewstoday.com/forums/forums/topic/what-is-your-cf-clinic-like/#post-19483 Fri, 09 Feb 2024 02:34:16 -0600 Reply to What is your CF clinic like?

Does anyone have any opinions/experiences with the CF clinics in Texas? If so, could you please share your thoughts, good or bad?

]]> f4046fc483f305c0cbf40c85f4a9369e Jonny replied to the discussion Exercise and CF in the forum Adults​ ​With​ ​CF https://cysticfibrosisnewstoday.com/forums/forums/topic/exercise-and-cf/#post-19482 Fri, 09 Feb 2024 02:31:02 -0600 Reply to Exercise and CF

I’m 54 and have exercised my whole life, whether it’s running, swimming, or walking. I once even walk/ran a half mile marathon. I’ve slowed down considerably, however, I do believe there is a definite link to exercise and being able to bounce back from a difficult hospitalization. Even when I’m hospitalized I try my best not to just lay…

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]]> 9ff777521da5a4957b1ca062e0e72892 Jonny replied to the discussion Sunday Morning (61): From Infection to Inflammation in the forum Science and Research https://cysticfibrosisnewstoday.com/forums/forums/topic/sunday-morning-61-from-infection-to-inflammation/#post-19479 Thu, 08 Feb 2024 00:27:27 -0600 Reply to Sunday Morning (61): From Infection to Inflammation

Paul,

Thank you for the information. I am a 54 year old male with CF. My health has been relatively stable up until recently. I currently am not eligible for CFTR modulators due to my rare mutations. I am coming off of two back to back hospitalization, (December and late January). It seems I am resistant to just about everything. I will…

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]]> 87c775cde0b93a71a7dce75c5a758c3a Jonny became a registered member https://cysticfibrosisnewstoday.com/forums/activity/p/1093/ Tue, 16 Apr 2019 15:23:24 -0500 1