Cystic Fibrosis News Today Forums | Joan | Activity https://cysticfibrosisnewstoday.com/forums/members/joan/activity/ Activity feed for Joan. Wed, 22 Apr 2026 13:36:41 -0500 https://buddypress.org/?v=2.20.0 en-US 30 hourly 2 1b2e9c03d8ee097d96dd67873f934011 Joan replied to the discussion Late CF Diagnosis in the forum Adults​ ​With​ ​CF https://cysticfibrosisnewstoday.com/forums/forums/topic/late-cf-diagnosis/#post-18818 Tue, 08 Nov 2022 21:43:42 -0600 Reply to Late CF Diagnosis

Hi Deanna. I was diagnosed with Mycobacterium avium-intracellulare complex in my mid twenties (I’m now 71) and was on medication for over 3 years. Luckily I’ve never had another flare up of this since then. Hope your infection is under control. I have never heard of the Ambry blood test but I’ll ask my CF doctor about it next time I have an… Read more

]]> 1561182e3af14902ddb7933de3e54cf7 Joan posted a new activity comment https://cysticfibrosisnewstoday.com/forums/activity/p/6612/#acomment-6689 Mon, 10 Oct 2022 04:19:43 -0500 Hi Jenny. Thank you for reaching out to me. I enjoy reading all the articles and now being part of the CF Forum. I’ve learned a lot and it’s nice being part of a group that has similar life issues to me. Take care.

In reply to - Joan became a registered member ]]> 3553dda4b148231e45bea16a8b3ae448 Joan posted a new activity comment https://cysticfibrosisnewstoday.com/forums/activity/p/6612/#acomment-6688 Mon, 10 Oct 2022 04:15:44 -0500 Thanks, Luisa, for your message. You guys do a great job posting informative articles. I’m happy I joined the forum. Take care.

In reply to - Joan became a registered member ]]> 1febcedb1206168106a7c63514bf82ef Joan updated their profile https://cysticfibrosisnewstoday.com/forums/activity/p/6618/ Sat, 01 Oct 2022 01:13:53 -0500 0 d48c660ff78d9afcea5cae3547419769 Joan and Bronwyn are now connected https://cysticfibrosisnewstoday.com/forums/activity/p/6616/ Fri, 30 Sep 2022 22:55:42 -0500 0 568d11d80a16fd4915473b5a34eed080 Joan replied to the discussion Late CF Diagnosis in the forum Adults​ ​With​ ​CF https://cysticfibrosisnewstoday.com/forums/forums/topic/late-cf-diagnosis/#post-18722 Fri, 30 Sep 2022 20:01:33 -0500 Reply to Late CF Diagnosis

I was diagnosed with CF 3 years ago when I was 68 years old by the Northwell Health Adult CF Center. I’ve had Bronchiectasis my whole adult life. My pulmonary doctor at Mt. Sinai Hospital asked me to partake in a research study and it was at that time (in 2007) that they found the G542X gene. Then in 2012 I had a bout of pancreatitis and none of… Read more

]]> e5b28d2074b11bb935c94c6ee4556ad7 Joan became a registered member https://cysticfibrosisnewstoday.com/forums/activity/p/6612/ Fri, 30 Sep 2022 13:52:55 -0500 4