Cystic Fibrosis News Today Forums | kristina | Activity https://cysticfibrosisnewstoday.com/forums/members/kristina/activity/ Activity feed for kristina. Fri, 01 May 2026 13:37:24 -0500 https://buddypress.org/?v=2.21.1 en-US 30 hourly 2 6b29ae8db3f30bd53a3bf1508df30589 kristina replied to the discussion Late diagnosis or misdiagnosis? in the forum Diagnosis​ ​Info​ ​and​ ​General​ ​Questions https://cysticfibrosisnewstoday.com/forums/forums/topic/late-diagnosis-or-misdiagnosis/#post-19972 Wed, 08 Oct 2025 21:54:30 -0500 Reply to Late diagnosis or misdiagnosis?

I was officially diagnosed with CF at 40 — in 2015… ten years ago! One CFTR variant was on my state’s 23-variant screening panel. The other? Part of the 39-variant panel—only added in 2022 by my state. Imagine the others missed in the years in between—or those with variants outside the current panel entirely. And consider the many states still…

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]]> ade8703a97958060b2b47b8803a84dd3 kristina replied to the discussion Family and caregivers: what do you wish you had known about CF? in the forum CF Resources https://cysticfibrosisnewstoday.com/forums/forums/topic/family-and-caregivers-what-do-you-wish-you-had-known-about-cf/#post-19959 Wed, 10 Sep 2025 19:25:10 -0500 Reply to Family and caregivers: what do you wish you had known about CF?

While this may not answer the question directly, I wanted to share a wonderful CF organization focused on spouses: https://www.projectcfspouse.org. Active on all major social media platforms, they frequently share insightful articles and podcasts. Founded in 2016, Project CF Spouse is dedicated to providing resources and support to spouses…

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projectcfspouse.org

Home | Project CF Spouse

Project CF Spouse is a nonprofit organization that is dedicated to providing resources and support to CF spouses and partners in the CF community.

]]> ead7ca6d5e3d2f0b5c8c5d51f0415bc7 kristina became a registered member https://cysticfibrosisnewstoday.com/forums/activity/p/8248/ Tue, 01 Jul 2025 21:28:29 -0500 0