@ktruc
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Raphaël started the topic One year later 🙂 in the forum Trikafta: Triple Combination CFTR Modulator 2 years, 1 month ago
Hello
I am 45 years old, I live in France and I have 2 young children (3.5 and 6 years old). I have been taking trikafta for a year now. it’s very good, i can play sports with much less difficulty now and i can play with my children easily too 🙂 which is great.
my vems before was 1.10 L (32%) and vital capacity 2.10 (50%)
now vems is 1.5 (45%)…[Read more] -
Raphaël changed their profile picture 2 years, 4 months ago
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Raphaël posted a new activity comment 2 years, 4 months ago
hello Jenny, thanks a lot 🙂 i am 45 with CF and i am french.
yes i will ask some questions about Trikafta in the forum (i started this good product 10 months ago). I will try to make myself understood as english is not my langage 🙂
see you soon.
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I just reached my one year Trikafta anniversary! I talk about it here on the forums quite a bit. I’d love the hear about how you’ve tolerated it and the changes you’ve seen in your health. Also, you’re doing great with English so far!
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Raphaël became a registered member 2 years, 4 months ago
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Raphaël, welcome and thank you for joining us here! I’m Jenny, one of the moderators here (I’m 33 with CF). You’ll be meeting my friend and co-moderator, Bailey, soon. If you need any help navigating the forum or there’s something specific you’d like to discuss, please let us know. We’re happy to help and so glad that you’re here!
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hello Jenny, thanks a lot 🙂 i am 45 with CF and i am french.
yes i will ask some questions about Trikafta in the forum (i started this good product 10 months ago). I will try to make myself understood as english is not my langage 🙂
see you soon.
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I just reached my one year Trikafta anniversary! I talk about it here on the forums quite a bit. I’d love the hear about how you’ve tolerated it and the changes you’ve seen in your health. Also, you’re doing great with English so far!
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Salut! It’s so nice to meet you Raphael! I loved learning about your treatment, care and current progress with Trikafta! I’m so curious what others have to say about these questions. I have tons of digestive issues too, but am not currently on Tri because of rare mutations. Maybe one day though!