@luisa-palazola
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Jenny Livingston replied to the topic Treating 90% of the CF Population: Trikafta! in the forum Adults With Cystic Fibrosis 1 year, 4 months ago
@luisa-palazola this is so well written and explains many of the contradictory feelings we’re experiencing in the community right now. Thank you for sharing this!
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Jenny Livingston posted a new activity comment 1 year, 5 months ago
Hi, Lori! My name is Jenny, and I’m one of the forum moderators. If you ever have any questions, please don’t hesitate to reach out to myself or @luisa-palazola the other moderator. Welcome to the forums! We are so glad that you’re here!
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Jenny Livingston started the topic Moderator Introduction in the forum Adults With Cystic Fibrosis 1 year, 5 months ago
Hey, everyone! My name is Jenny Livingston and I’ve recently become a forum moderator here. A little bit about me? I’m 32 years old with cystic fibrosis. I also have two older sisters with CF (my family certainly did not win the genetic lottery). I live in Utah with my fiance, my 10-year-old daughter, two dogs, some bunnies, a horse, and a…[Read more]
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Tré LaRosa posted an update 1 year, 8 months ago
Hi everybody! I just want to welcome all the recently joined new members! My name is Tré LaRosa and I’m one of the forum moderators with @luisa-palazola! We’re here to assist if you have any questions. One of our goals with this forum is to generate conversation, have productive discussion, and create a community of welcoming and friendly…[Read more]
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Tré LaRosa posted a new activity comment 1 year, 10 months ago
What’s up, Jorge? Thanks for registering for the forums! I’m looking forward to your contributions 🙂 I’m Tré, one of the forum moderators with @luisa-palazola. Let me know if you have any questions.
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Tré LaRosa posted a new activity comment 1 year, 10 months ago
Hello Ross, thanks for registering for the forums! I’m looking forward to your contributions 🙂 I’m Tré, one of the forum moderators with @luisa-palazola. Let me know if you have any questions.
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Tré LaRosa posted a new activity comment 1 year, 10 months ago
Hi Lisa, thanks for registering for the forums! I’m looking forward to your contributions 🙂 I’m Tré, one of the forum moderators with @luisa-palazola. Let me know if you have any questions.
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William replied to the topic Mutations! in the forum Adults With Cystic Fibrosis 1 year, 10 months ago
@luisa-palazola this is the website my doctor showed me a year ago https://www.cftr2.org/welcome
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Tré LaRosa started the topic Basic CF Science in the forum CF Science and Research 2 years ago
My forum co-moderator @luisa-palazola attended a ResearchCon session that I was a part of last night. She noticed that somebody commented in the event chat that they didn’t know antibiotics could be toxic. This was interesting to us and we realized that there is some basic science that may not be clear to everybody. This could be because they…[Read more]
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Tré LaRosa started the topic Sick while working in the forum Adults With Cystic Fibrosis 2 years ago
As my excellent colleague and co-moderator @luisa-palazola pointed out in another topic a few days ago, our worth can be inextricably linked to how productive we are despite our CF. Another aspect of this is if our employers still pay us if we have to call in sick. On top of ALL of this, working or being active can help us feel better and fight…[Read more]
