Cystic Fibrosis News Today Forums | Rachel Rone | Activity https://cysticfibrosisnewstoday.com/forums/members/roner13/activity/ Activity feed for Rachel Rone. Thu, 30 Apr 2026 13:40:23 -0500 https://buddypress.org/?v=2.21.1 en-US 30 hourly 2 fbfc3bf153af72dd16ed1327761128c4 Rachel Rone replied to the discussion Symdeko & Experiences in the forum Regimens, Medicines, and Physiotherapy https://cysticfibrosisnewstoday.com/forums/forums/topic/symdeko-experiences/#post-12043 Tue, 26 Mar 2019 00:39:20 -0500 Reply to Symdeko & Experiences

I was on Orkambi for 2.5 years. It helped me gain weight and stay stable, but the shortness of breath was tough. I got on Symdeko, and in the first 3 months my lung function increased 8%, and I have felt amazing in the 10 months I’ve been on it. Only 1 exacerbation! It truly has felt life changing for me, and my doctor feels the modulators will… Read more

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