Cystic Fibrosis News Today Forums | sonnu | Activity https://cysticfibrosisnewstoday.com/forums/members/sonnu/activity/ Activity feed for sonnu. Tue, 21 Apr 2026 13:22:17 -0500 https://buddypress.org/?v=2.20.0 en-US 30 hourly 2 1392c7dfad54c39774a1eae35d74ed4d sonnu started the discussion "Where to Start for Proper CF Treatment? Need Guidance" in the forum Diagnosis​ ​Info​ ​and​ ​General​ ​Questions https://cysticfibrosisnewstoday.com/forums/forums/topic/where-to-start-for-proper-cf-treatment-need-guidance/ Mon, 31 Mar 2025 15:26:29 -0500 "Where to Start for Proper CF Treatment? Need Guidance"

“Need Guidance”

Hello everyone,

I am the parent of a 5-year-old son diagnosed with Cystic Fibrosis (CF). We live in Pakistan, where CF awareness, treatment, and essential medications are extremely limited. Currently, we have started Enzyme Replacement Therapy (Creon) for the past two months, but we haven’t been able to do genetic testing… Read more

]]> 4657be8d4674bed2fea1f7de85889499 sonnu wrote a new item Mon, 31 Mar 2025 15:26:29 -0500 “Need Guidance”

Hello everyone,

I am the parent of a 5-year-old son diagnosed with Cystic Fibrosis (CF). We live in Pakistan, where CF awareness, treatment, and essential medications are extremely […]

]]> 0 2e82de2fa6a99c8eb711f0bf617c5de4 sonnu posted a new activity comment https://cysticfibrosisnewstoday.com/forums/activity/p/8117/#acomment-8128 Mon, 31 Mar 2025 14:52:58 -0500 Hello William,

Thank you.

In reply to - sonnu became a registered member ]]> 7c2360d7d9fa5ab26243cb023da6cab9 sonnu became a registered member https://cysticfibrosisnewstoday.com/forums/activity/p/8117/ Mon, 31 Mar 2025 13:39:13 -0500 2