• Luisa Palazola posted a new activity comment 1 week, 6 days ago

    Hey Franco! I am Luisa and I am a forum moderator here with my friend @tre-larosa 🙂 I wanted to say Ciao! And, ask how you are?
    • Luisa Palazola posted a new activity comment 3 weeks ago

      Hiya Saskia, how’re you! I wanted to take a moment to introduce myself, I am Luisa and I am a forum moderator here at CF News Today, alongside @tre-larosa 🙂

      I see you’re a patient, I am too! How old are you and where do you go to clinic?

      • Luisa Palazola posted a new activity comment 3 weeks, 5 days ago

        Hey Julie! How are ya?

        I wanted to introduce myself — I am Luisa and I have CF and I am also a forum moderator with @tre-larosa. Glad to have you here. I see you are a parent — how old is your child?

          • Hi Luisa! He turned 2 in March and was diagnosed at birth.
              • Aw! A little one 🙂 The future of CF science is becoming really exciting, and I know he’ll benefit from these amazing drugs coming out.
                  • I may not be able to comment much as a parent here, but I appreciate any little window for me to absorb as much info about cf as I can. It’s strange to be told it’s an exciting time for cf research when you’re trying to wrap your brain around such a complicated diagnosis, but we are so grateful for all the work that has been done. Science really…

                    [Read more]

                    • Of course, no worries on being able to comment or not. I’m sure it’s strange to hear that it is so exciting right now, especially when in the background CF is so complicated in itself and has such a nefarious history. And, that’s totally valid to feel all the emotions that surface. I’m on one of the newest trials and my lungs have changed in…

                      [Read more]

                    • Also, if you’d like me to link you to some parents, let me know. I can network ya without problem. Whether that be my mom or a few other parents I know out there.

                      As a CF patient, I think it’s important to let you guys know that you rock and you guys become our rocks and biggest teachers and advocates. And, we pick up on it <3

                      • I just realized you’re the first person with cf I’ve spoken to! I am friends with a few mom’s with kids my son’s age (just phone friends:)), but it really is helpful to have others who understand all your fears and daily routine. I don’t have Facebook or IG. I thought I didn’t have time for those things before I became a mom, and now I’m like NO…

                        [Read more]

              • Luisa Palazola posted a new activity comment 1 month, 2 weeks ago

                Hey David! How are you? I am Luisa and I am a forum moderator here alongside @tre-larosa, and we both have CF! Let us know if you need anything 🙂

              • Hey David! How are you? I am Luisa and I am a forum moderator here alongside @tre-larosa, and we both have CF! Let us know if you need anything 🙂
                • I’m not sure what my first mutation @tre-larosa! But,

                  1. I know I have a copy of the df508 and l1077P
                  2. What is a second variant?!
                  3. I was diagnosed when I was nine years old (2002)
                  4. I think the L1077P is relatively rare.

                  I know there’s a really neat resource where you can look up your mutations and get some pretty neat feedback, but I…[Read more]

                • Hey Joseph, I hope you’re well! My name is Luisa and I am a forum moderator alongside @tre-larosa. I’m also 25 and I have CF. Where are ya from?
                  • Hey Micah, I hope you’re well! My name is Luisa and I am a forum moderator alongside @tre-larosa. I’m also 25 and I have CF. I see you’re from Dallas, how do you like it there? How do you like their CF clinic?
                    • Hey Heather, I hope you’re well! My name is Luisa and I am a forum moderator alongside @tre-larosa. I’m also 25 and I have CF. Just outta curiosity, where do you go to clinic?
                      • Hey Joseph, how’re you? My name is Luisa and I am a forum moderator here with @tre-larosa. And, I also have CF! Where are ya from?
                        • Hey Ruth! I’m Luisa and I also have CF, and am a forum moderator with @tre-larosa! Is there a topic you’d like to see discussed in particular? Where do ya go to clinic?
                          • Hey Damaan! I’m Luisa and I also have CF, and am a forum moderator with @tre-larosa! Where do you go to clinic?
                            • Hi Elise! I’m Luisa, I also have CF and I am 25 years old. I’m a forum moderator around here, alongside @tre-larosa. If you have any questions of any sort, don’t hesitate to reach out to either of us. Is there something you were looking for in particular?
                              • Hi Elise! I’m Luisa, I also have CF and I am 25 years old. I’m a forum moderator around here, alongside @tre-larosa. If you have any questions of any sort, don’t hesitate to reach out to either of us. Is there something you were looking for in particular?
                                • Hey Mark! I hope this comment finds you well — I am Luisa and I’m a forum moderators with @tre-larosa. I’m 25 and I have CF. I was reading your bio/ recent post and I find it incredible (might not be the right word) the intersection of CF and addiction. I only know a few people who’ve dealt with the two, and I would like to learn more.
                                  Also!…

                                  [Read more]

                                • I was responding to a post by @tre-larosa about being overwhelmed, and while I was writing I realized that that I wanted/needed to go to the beach. How the beach is more than just a vacation, but it’s a safe space for me.

                                  Growing up, that’s where we went was to the beach for vacation. So of course, I have strong and positive associations of…[Read more]

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