Gene Simmons Carries Out Final Wish for Cystic Fibrosis Boy

According to the Children’s Hospital of Nevada’s Facebook, last week, one of their patients, Dilan Kohn got his final wish.

The Cystic Fibrosis 17-year-old boy desperately wanted to meet and hang out with Gene Simmons from the band “KISS”. Mr. Simmons had not only been Dilan’s idol, but also his inspiration growing up.

Learn more about these 9 celebrities who were diagnosed with cystic fibrosis.

After receiving an email request to come meet Dilan, Gene Simmons flew into Vegas the next morning and showed up with a big bag full of signed memorabilia just for Dilan.

The two hung out, shared stories and laughed together for well over an hour while staff looked on with tears in their eyes.

Unfortunately Dilan passed away peacefully a couple days later.

Learn more about cystic fibrosis patient Ben Mudge, who made it onto the Men’s Fitness cover, taking him one step closer to his dream of becoming a Calvin Klein model.

Cystic Fibrosis News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or another qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.



4 comments

  1. Wanda Kulbeth says:

    Thank you so much for supporting Cystic Fibrosis! I have a 9 month old grand baby named Alex Castillo ! Thank you for your kindness ????

  2. Nina Chivington says:

    That is a very heartful storey. I am so glad to here that he got his wish but sadden to here about his passing away. My name is Nina Chivington I am 34 years old I have two boys. I live in a small town in South Dakota. I am a twin. I also four years ago my sister and I found out that we have the highest and unusual kind of Cystic Fibrosis that Dr. Thomas in Sioux Falls South Dakota has ever seen. I know adults don’t normally get wishes but if I could it would be one of my dreams to have Trent Shelton Rehab Time come and visit me. I also would love to have a car to get back and forth to my doctor and stuff. Also a dream vacation for my family to have memory. Thank you for the very touching inspiration story. SD— Nina Chivington

  3. Irene says:

    Gene Simmons you are indeed a good man. Thank you for taking the time to meet with this young man who so wanted to see you before he met the Father in heaven. People such as your self not only give of themselves but they bring awareness to the world about cystic fibrosis. Advanced treatments Give hope and are certainly extending the lives of many affected with Cystic Fibrosis. Tthank you from the bottom of my heart for being a good man that you are, and I hope other celebrities will follow your path because this helps bring awareness and perhaps the desire to donate to the cause of research.

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