10 Cystic Fibrosis Symptoms to Look Out for

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Generally speaking, cystic fibrosis is a disease which is diagnosed in newborns and infants, as the onset of symptoms becomes progressively more apparent in a short amount of time.

1 – Salty-Tasting Skin Secretions

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Symptoms to look for in a newborn include salty-tasting skin secretions.

Learn more about the cystic fibrosis symptoms.

5 comments

  1. Clarisa Garcia says:

    My dear daughter Claire Domino lived 9 1/2 years with CF over 38 years ago. Claire experienced all 10 of these cystic fibrosis symptoms by 4 months of age. I took her to 3 pediatricians at different times in one office to no avail during those 4 months. I had her 3 year old brother in tow. I switched to a different office another pediatrician who did not get it either. Finally her father and I took Claire to Vassar Hospital ER in Poughkeepsie, N.Y. and she was admitted. She was diagnosed with “failure to thrive” and after one week we were told Claire had a closed right upper lobe, by week two we were given a tentative diagnosis for cystic fibrosis. From there Claire was transferred to Yale-New Haven Medical Center where under the best of care we were given a confirmed diagnosis of CF by Dr. Tom Dolan for Claire with a life expectancy of 15 years for our precious daughter, proper instructions and treatment. We relocated to California, my home. Due to a hindered diagnosis and prolonged time that closed lobe became a great problem for Claire and she needed a lobectomy at 2 years of age. She was able to thrive after that, attend school and had a full, wonderful life with her loving family and friends. I have no doubt her lengthy diagnosis contributed to her closed right upper lobe and shorter life span. We never dwelled on that, but moved forward in our lives with Claire, a remarkable young lady. Truly, a young woman as she was wise beyond her years.

    I’m concerned about the clinical definition over-riding the actual symptoms new parents may and probably will see their child experience. Under “inability to gain weight” and “slow growth” there should be exactly stated the distinct symptoms for new parents. Those being symptoms of exaggerated spitting up and pronounced vomiting, leaving “an inability to gain weight and impaired growth” a result, not a symptom. Also the mucous is an unusual tackiness and thickness. Together the CF coughing and foul stools are the very first symptoms I saw with Claire. Initially, I never tasted the salt as baby Claire brushed her sweet face against mine, because her skin would burn my lips. I blamed that on my having chapped lips in the winter. All this being said aren’t all babies tested for CF at birth today? I thought this was being done for all births today. I support improved treatments for CF and strongly believe a Cure will be found for Cystic Fibrosis and remain hopeful it will be soon.

    • Nicole Burroughs says:

      Yes CF is now tested at birth with a new born screening test that all babies are required to have in all 50 states. I have a 5 month old son who has CF and when he was born he was immediately transfered to a university hospital for a swollen abdomen. There he underwent surgery for a meconium illieus. I suspected that he had CF as soon as he was born. I have 2 nephews with CF. It takes about 3 weeks to get the state labs back so while he was in the NICU he had a pancreatic inzyme test. This was done when he finally at almost 2 weeks had his first stool. He has an extremely low pancreas enzyme function. So there are a lot of ways to test early now for CF. I also have a 12 year old and when she was born in 03 they did not do a new born screening with her. I think the same as you do and I think it’s very important to find CF always as early as possible and glad that we do everything possible to get the diagnosis early. Thank you for sharing your story it’s the first I have read since the birth of my son 5 months ago. I wouldn’t let myself read story’s only study about the disease until I was more comfortable doing so. You touched me so much my son one month ago also had his front upper lobe clogged. We were in the hospital for 14 days, he had to have a bronch done to remove the mucous plug. Claire is an inspiration to us all, thank you again for sharing. #dawsonryan

      • Clarisa Garcia says:

        Dear Nicole Burroughs,

        Thank you for your very kind words. I’m sorry to say this is the first time I’ve seen your reply. It came up on my one year memory. I do hope your son, now 1 year and 5 months is doing well, your nephews and daughter, too. Health and blessings to you and your family. I’m still believing a Cure for CF will be found soon.
        All my best to you and your family,
        Clarisa Garcia

  2. rajender says:

    Thanks , I have read your story & your efforts for fighting this CF Gene disease we are hopefully waiting for the cure of this CF gene disease to save the life of millions of Minor baby , Childrens worldwide.

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