Meet Morgan Grindstaff, also known as Cystik1. The 25-year-old YouTuber has been battling cystic fibrosis (CF). In this video, listen to him recite a strong and emotional spoken word piece about his struggle.
In his other videos, he talks about other aspects of having CF. Below, there’s a playlist documenting his Orkambi journey.
In March, the U.K. National Institute for Health and Care Excellence (NICE) issued a draft guidance against recommending Orkambi (lumacaftor-ivacaftor) for treating cystic fibrosis (CF) since its cost is too high for the low benefits it brings.
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