In addition to the physical symptoms that cystic fibrosis patients have to deal with, they and their family, friends and caregivers also face an emotional burden associated with the disease.
As a progressive disease, cystic fibrosis can involve a stressful routine of symptoms and treatments. The CF community may face numerous psychological and social problems due to the demands of the disease, which need to be addressed with as much importance as its physical burden.
Emotional Wellness of Children or Adolescent CF Patients
The lives of children diagnosed with cystic fibrosis can be very different from the ones of healthy children, with great demands regarding feeding, treatments, and regular procedures such as blood tests and cough swabs. Behavioral challenges are often accompanied by the feeling of being different.