Cystic fibrosis is a chronic disease of which there is no current cure. However, improvements in diagnosis have led to better treatment plans. Most children are now screened for CF at birth through newborn screening and the majority are diagnosed by age 2. Parents are the primary caregivers.
1. Caring for a Child: Identifying the Signs
Because it is genetic, cystic fibrosis is passed down in families but in some cases families may not know it. Right from the start, caring for a patient with cystic fibrosis and knowing what to expect — and what is not normal — is helpful. Knowledge prevents caregivers from being afraid of — or surprised by — the disease manifestations.