lung function

February 13, 2019February 12, 2019

An Open Letter to the ‘How Are You Feeling?’ Folks

Columns, Modern CF Mama - a Column by Janeil Whitworth

Dear “How are you feeling?” folks, Those of us with a chronic illness hear repeatedly — and secretly dread — questions such as the following: “How are you feeling? ... Read more

January 30, 2019February 4, 2019

Link Found Between P. aeruginosa Infection and Disease Severity in CF Patients, Study Reports

cystic fibrosis, News

Patients with cystic fibrosis (CF) whose lungs have never been colonized by the Pseudomonas aeruginosa bacterium have a milder form of the disease, a retrospective study based on registry data suggests. ... Read more

December 13, 2018December 13, 2018

Specific Sweat Test Better Detects Kalydeco’s Effects on CFTR Function, Study Suggests

cystic fibrosis, News

The effects of CFTR modulator therapies such as Kalydeco (ivacaftor) can be more reliably assessed using a test that specifically measures the sweating dependent on CFTR, called C-sweat rate, than using ... Read more

December 11, 2018December 11, 2018

Higher Interleukin-7 Serum Levels Could be Biomarker for CF, Study Suggests

cystic fibrosis, News

A recent study confirmed the presence of increased serum levels of interleukin-7 (IL-7) in cystic fibrosis (CF) patients, compared with healthy controls. The researchers could establish a link between ... Read more

December 10, 2018December 10, 2018

Handheld Wireless Home Spirometer Could Transform CF Monitoring, Pilot Study Suggests

cystic fibrosis, News

Air Next, a small, simple-to-use handheld spirometer, could transform cystic fibrosis (CF) treatment, allowing patients to monitor their own lung function at home and share the results remotely with their healthcare ... Read more

November 13, 2018November 13, 2018

Inhaled Hypertonic Saline Eases CF Symptoms and Helps Infants Breathe Easier, Trial Finds

cystic fibrosis

Inhalation of hypertonic saline can help babies with cystic fibrosis to breathe better and relieve CF symptoms, according to a new trial. Researchers safely measured lung airflow in infants ... Read more

November 12, 2018November 12, 2018

Liver Disease Doesn’t Worsen Lung Function Decline in CF Patients, Study Reports

cystic fibrosis, News

Cystic fibrosis (CF) patients with liver disease do not experience greater lung function decline compared with CF patients without liver presentation, a study reports. The study, “Analysis of a large ... Read more

November 8, 2018November 8, 2018

Worse CF Lung Outcomes Linked with Mutations Causing Iron Overload Disorder, Study Finds

cystic fibrosis, News

Patients with cystic fibrosis (CF) who carry certain mutations in the HFE gene, which are also behind an iron overload disorder, have poorer lung function that declines faster and ... Read more

November 6, 2018November 6, 2018

#NACFC2018 – RPL554 Shows Promising Results in CF Studies

cystic fibrosis, News

Positive data from preclinical and Phase 2a studies evaluating the investigational cystic fibrosis (CF) treatment RPL554 were presented at the 2018 North American Cystic Fibrosis Conference (NACFC) in Denver, Colorado (Oct. ... Read more

October 31, 2018October 31, 2018

Santhera Starting Phase 1b/2a Trial Testing Potential CF therapy POL6014

cystic fibrosis, News

A Phase 1b/2a, dose-escalating clinical trial evaluating the effects of POL6014 in patients with cystic fibrosis (CF) was recently launched, according to Santhera Pharmaceuticals, developer of the investigational therapy. The ... Read more

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