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Ashley replied to the topic Just found out that our baby has CF in the forum Friends and Family of people with Cystic Fibrosis 2 years, 11 months ago
Thank you everyone! There is so much unknown right now, so I really appreciate the guidance from you all.
I will be calling the Cystic Fibrosis Foundation to help locate a center and for more help in finding a good team for him.
I so agree about the breastfeeding Libby. Very important for multiple reasons and definitely something I plan to do. I…[Read more] -
Ashley replied to the topic Just found out that our baby has CF in the forum Friends and Family of people with Cystic Fibrosis 2 years, 11 months ago
Thank you so much Paul! Really appreciate the info and the encouragement.
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Ashley started the topic Just found out that our baby has CF in the forum Friends and Family of people with Cystic Fibrosis 2 years, 11 months ago
Hello,
My husband and I just found out about a week ago, through CVS, that our baby (still pregnant) will be born with CF. We are both carriers of the Delta F508 mutation.
We are new to this community, and are looking for any advice and information.
Thank you.
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Ashley became a registered member 2 years, 11 months ago