It’s only mid-August, and already the stores are stacked with Halloween decorations. Every year, this catches me off guard, and I find myself a little annoyed by it. I’m not ready to rush through summer. I love the warmth of the sun on my skin, the feeling of fresh air…
Discussion
Continued treatment with CFTR modulators was linked to lower anxiety and depression scores in children with cystic fibrosis (CF) along with improvements in lung function and parents’ mental health and quality of life, a study found. The study, “Mental health, sleep, and quality of life following CFTR…
Discussion
One of the biggest changes between my life before my lung transplant and my post-transplant life has been with my body temperature. Before my double-lung transplant, I ran hot all the time. I remember a night I was being transported from my home hospital to a transplant hospital for…
Discussion
Trikafta (elexacaftor/tezacaftor/ivacaftor) was associated with improved lung function and fewer pulmonary exacerbations, or sudden worsening of lung symptoms, in children ages 6 to 11 with cystic fibrosis (CF), a real-world study found. The treatment was also associated with improved nutritional status, fewer hospitalizations and antibiotic treatments, and reduced…
Discussion
My late daughter, Jasmine, was 16 when she attended her first school dance. For most teenagers, this would have been just another Friday night, involving some awkward slow songs and maybe a few embarrassing photos. But for Jasmine, it was something she had been dreaming about for years that I…
Discussion
A Phase 2a clinical trial testing RCT2100, Recode Therapeutics’ investigational inhaled mRNA therapy for cystic fibrosis (CF), is fully enrolled, with results expected by the end of the year, the company announced. The clinical updates were part of a broader company announcement focused on Recode’s CF programs, which also…
Discussion
For children with cystic fibrosis (CF) who are taking Trikafta (elexacaftor/tezacaftor/ivacaftor), weight gain was associated with decreasing levels of inflammation in the body, a Swiss study reports. The association was seen in both short- and long-term analyses after treatment began. Changes in inflammation and body mass index (BMI),…
Becoming educated and informed about cystic fibrosis is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your CF journey.
There is no cure for CF yet, but here you can find more information about current therapeutic approaches, as well as experimental treatments that are in the pipeline.
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