When my late daughter, Jasmine, turned 15, I remember thinking how grown-up she’d become and how much of her world she managed on her own. As a single father, I always worried about getting things right, especially with something as complex as her cystic fibrosis (CF). But Jasmine had…
Discussion
One year of treatment with Kaftrio lowered levels of certain immune cells implicated in inflammation, led to fewer pulmonary exacerbations, and reduced detection of Pseudomonas aeruginosa in people with cystic fibrosis (CF), a real-world study found. The reductions in neutrophils and monocytes — types of white blood…
Discussion
Music has always spoken to me. I don’t remember a version of myself that didn’t have a song for whatever I was feeling. Before I had words for grief, I had a melody that held it for me. Before I could explain fear to a doctor, or anger to my…
Discussion
Dental problems, particularly untreated tooth cavities, are associated with poor lung health and reduced respiratory-related quality of life in young people with cystic fibrosis (CF), a study suggests. Adolescents and young adults with CF who had more extensive untreated cavities had worse lung function and reported a larger impact…
Discussion
Germs. I imagine them floating through the air, gravitating toward me because they know somehow that I’m immune-compromised. I picture them swirling around my face, getting sucked into my nostrils and pulled into my transplanted lungs, threatening my very existence. I’m pretty sure that’s also how it went when I…
Discussion
Women with cystic fibrosis (CF) who continue on CFTR modulator therapy during pregnancy show stable health and no increase in birth complications, according to a new review. At the same time, published case reports and small studies have found that intentionally treating a baby with CF before birth…
Discussion
When my daughtr, Jasmine, turned 14, something subtle and remarkable happened in our home. It wasn’t that her cystic fibrosis (CF) disappeared. It never did, of course, but its presence faded, no longer the ever-present shadow it had once been. Our routines, which in the early years felt so…
Becoming educated and informed about cystic fibrosis is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your CF journey.
There is no cure for CF yet, but here you can find more information about current therapeutic approaches, as well as experimental treatments that are in the pipeline.
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