Can We Take a Minute to Rest?
Reader, I am tired. I don’t need to explain how that feels to those who have cystic fibrosis (CF), but for the benefit of ... Read more
Updates
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New Test Could Lead to Effectively Customizing Treatments for CF Patients, Study Contends
A simple new test may help identify which CFTR modulators are more effective for treating individual patients with cystic fibrosis (CF), early results ... Read more -
How I’ve Found Purpose Without Having a Full-time Job
Our society places great emphasis on success through careers. Whenever we meet a stranger, one of the first questions we ask is, “What do ... Read more -
CF ‘Mom Guilt’ Is Hard, but My Best Is Good Enough
“Up, up, up!” my 1-year-old said to me the other day with both hands reaching to the sky. I was having a really bad ... Read more -
Starting Kalydeco Treatment Before Birth May Help Halt CF Progression Post-Birth, Animal Study Suggests
Treating an animal model of cystic fibrosis (CF) with Kalydeco (ivacaftor) during embryonic development and after birth revealed that early treatment improved pancreatic ... Read more
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Early Antibiotic Treatment Better to Eradicate New MRSA Infections in CF Patients, Study Suggests
Using antibiotics to fully eliminate new methicillin-resistant Staphylococcus aureus (MRSA) airway infections appears more ... -
My Personal Paradox Sets the Bar Higher and Higher
I have a productivity complex: I feel like if I’m not being productive, I’m ... -
Incidence of Liver Disease and Cirrhosis Climbing in CF Patients, UK Registry Study Says
A higher incidence of liver disease was found in people with cystic fibrosis (CF) in ... -
How to Be a Supermodel When You’re Scared, Sad, and Scarred
I am becoming a supermodel. OK, not really. But, perhaps I can pretend? I’m ... -
Modulating Reality: My Miracle CF Med Was All Hype
I’ve spent most of my life hearing that the cure for cystic fibrosis is ... -
Synspira’s CF Therapy Candidate SNSP113 Granted Orphan Drug Status in EU
Synspira Therapeutics’s candidate for treating cystic fibrosis, SNSP113, has received orphan drug designation from the ...
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