We typically celebrate an anniversary, but when you live with a chronic health condition like cystic fibrosis (CF), your relationship to certain days on the calendar can be a bit more complicated. They may not be milestones to celebrate, but they can still serve as reminders. I’m thinking…

In 2018, when Nell Choi was 9 years old, she began experiencing symptoms that led to hospitalization and a diagnosis of neuromyelitis optica spectrum disorder (NMOSD), type positive. A month later, when Nell came home, she was weak, in a wheelchair, and had lost 20 pounds. To…

Among people with cystic fibrosis (CF) who develop kidney failure, getting a kidney transplant may extend survival by nearly two decades compared with other types of care, a new study found. The transplanted kidneys also showed favorable long-term outcomes in people with CF, remaining functional for about 7.2 years…

Mornings with my daughter, Jasmine, who passed away at 27 due to cystic fibrosis, always began quietly. She would wake up before me, her hair still wild from moving around in her sleep. I would find her sitting on the edge of her bed, feet dangling, already thinking about…

Both youngsters and teenagers with cystic fibrosis (CF) have abnormal levels of bile acids, the main components of the digestive fluid bile, in their blood compared with healthy children — and these alterations were found to worsen with age — a new study reports. The researchers also identified distinct…

The lungs of infants and children with cystic fibrosis (CF) show an early, overactive immune response driven by neutrophils — a type of immune cell — even in a patient receiving CFTR modulator therapy, a small study suggests. The findings suggest that inflammatory processes that damage the lungs may…