In people with cystic fibrosis (CF), the timing of organ transplant — lung, liver, or both — relative to infection with the SARS-CoV-2 virus that causes COVID-19 did not affect the risk of severe outcomes, according to a large international study. Patients with poorer lung…
Discussion
Five years ago, I got the call. If you’re in the cystic fibrosis (CF) community and have had a double-lung transplant, you know the weight of those words. You know how the terror and the relief collapse into a single moment after you hang up the phone. You…
Discussion
Prior to my double-lung transplant eight years ago, I didn’t know anything about organ donation. While living with cystic fibrosis (CF), I hadn’t connected with others who had CF, either. I started to dip my toes in these spaces as I approached the transplant evaluation process, finding comfort in…
Among people with cystic fibrosis (CF), certain measures of blood vessel health — especially regarding the aorta, the body’s main artery — tend to vary according to biological sex, a new study reports. Researchers think these variations may help explain sex-specific differences in survival outcomes among people with CF,…
Discussion
My sister, Alyssa, has been a frequent subject of my writing since she died in 2018 at age 29. Even when I wasn’t sure of myself as a writer, she was highly supportive of my burgeoning interest in the craft. After she died, I determined that writing, especially about grief…
Bioversys has entered into an exclusive collaboration and license agreement with Hackensack Meridian Health (HMH) and its Center for Discovery and Innovation to advance a novel class of antibiotics targeting hard-to-treat nontuberculous mycobacteria (NTM) infections, an important concern for people with cystic fibrosis (CF). Under the…
Children with cystic fibrosis (CF) who undergo a liver transplant alone have significantly better survival rates than those who receive a combined liver-lung transplant, according to a new analysis of U.S. transplant data. While both procedures are life-saving options for patients with advanced disease, the study highlights a gap in…
Becoming educated and informed about cystic fibrosis is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your CF journey.
There is no cure for CF yet, but here you can find more information about current therapeutic approaches, as well as experimental treatments that are in the pipeline.
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