Cystic Fibrosis Treatment, Therapy and New Medications & Drug

October 19, 2017October 19, 2017
#NORDsummit – Despite Criticism, Orphan Drug Act Is Working to Advance Needed Treatments, FDA Says
cystic fibrosis, News
As Congress begins debate this week to overhaul the U.S. tax code, lawmakers should leave the Orphan Drug Act ... Read more
October 19, 2017October 19, 2017
How to Fight ‘FOMO’
Columns, Note Taken - a Column by Hannah Buck
FOMO. Fear of missing out. Ever heard of it? I don’t have a lot of phobias. Yeah, being alone ... Read more
October 19, 2017October 19, 2017
HOPE-1 Clinical Trial for SPX-101 Is Enrolling CF Patients in Canada and Europe
cystic fibrosis, News
The first patient has been enrolled and dosed in the HOPE-1 Phase 2 clinical trial evaluating Spyryx Biosciences‘ investigational drug ... Read more
October 18, 2017October 18, 2017
Predatory Bacteria Found in Spanish Study of Cystic Fibrosis Lung Micro-organisms
cystic fibrosis, News
Scientists have known for some time that cystic fibrosis patients have a variety of bacteria in their lungs. Researchers in Madrid ... Read more
October 17, 2017October 17, 2017
Healthier Ways to Help Gain Weight
Columns, Victorious - a Column by Brad Dell
Gaining weight can be just as difficult as maintaining lung function for many with cystic fibrosis. Most have heard ... Read more
October 17, 2017October 17, 2017
CF Foundation Senior Vice President Is Finalist for Washington PR Woman of the Year Award
cystic fibrosis, News
A Cystic Fibrosis Foundation senior vice president is a finalist for the Woman of the Year Award that the Washington Women in ... Read more
October 16, 2017October 16, 2017
All Mice with CF That Received Iclaprim for Pneumonia Survived, Study Shows
cystic fibrosis, News
All mice with cystic fibrosis that received iclaprim for a pneumonia infection survived, according to a study. Motif Bio reported the finding, which ... Read more
October 13, 2017October 13, 2017
Swine Study May Shed Light on Why CF Patients Can’t Ward Off Bacterial Infections
News
Experiments in live pigs show that the genetic mutation that causes cystic fibrosis (CF) prevents secretion of airway ... Read more
October 12, 2017October 11, 2017
The Porch with Mama
Columns, Note Taken - a Column by Hannah Buck
This afternoon, while browsing the fiction shelves at a local bookstore, I saw my own ghost. As I turned ... Read more
October 12, 2017October 12, 2017
New Biosensor Detects Bacteria Biomarker in CF Patients’ Sputum Samples, U.K. Study Shows
News
A research team at Imperial College London (ICL) has developed a quick, cheap method to detect the presence of ... Read more
October 11, 2017October 11, 2017
Discovery Could Help Cystic Fibrosis Patients Get Rid of Bacteria That Attack Their Lungs
News
Researchers have identified a signal that controls when lung bacteria in cystic fibrosis patients start producing biofilm — a ... Read more
October 10, 2017October 9, 2017
A Celebration of the CF Community
Columns, Victorious - a Column by Brad Dell
I’ve seen videos of people with cystic fibrosis, messaged other patients on the internet, and knew some as a ... Read more

October 19, 2017October 19, 2017

#NORDsummit – Despite Criticism, Orphan Drug Act Is Working to Advance Needed Treatments, FDA Says

As Congress begins debate this week to overhaul the U.S. tax code, lawmakers should leave the Orphan Drug Act (ODA) — and the tax incentives it offers pharmaceutical companies ... Read more

October 19, 2017October 19, 2017

How to Fight ‘FOMO’

Columns, Note Taken - a Column by Hannah Buck

FOMO. Fear of missing out. Ever heard of it? I don’t have a lot of phobias. Yeah, being alone in a dark room creeps me out, but I’m not ... Read more

October 19, 2017October 19, 2017

HOPE-1 Clinical Trial for SPX-101 Is Enrolling CF Patients in Canada and Europe

cystic fibrosis, News

The first patient has been enrolled and dosed in the HOPE-1 Phase 2 clinical trial evaluating Spyryx Biosciences‘ investigational drug SPX-101 as a treatment for cystic fibrosis (CF). The HOPE-1 study (NCT03229252) ... Read more

October 18, 2017October 18, 2017

Predatory Bacteria Found in Spanish Study of Cystic Fibrosis Lung Micro-organisms

cystic fibrosis, News

Scientists have known for some time that cystic fibrosis patients have a variety of bacteria in their lungs. Researchers in Madrid have discovered two unusual predatory bacteria in a study investigating ... Read more

October 17, 2017October 17, 2017

Healthier Ways to Help Gain Weight

Columns, Victorious - a Column by Brad Dell

Gaining weight can be just as difficult as maintaining lung function for many with cystic fibrosis. Most have heard people without CF joke that they wish they had our ... Read more

October 17, 2017October 17, 2017

CF Foundation Senior Vice President Is Finalist for Washington PR Woman of the Year Award

cystic fibrosis, News

A Cystic Fibrosis Foundation senior vice president is a finalist for the Woman of the Year Award that the Washington Women in Public Relations is scheduled to present today, Friday, Nov. 17. The finalists ... Read more

October 16, 2017October 16, 2017

All Mice with CF That Received Iclaprim for Pneumonia Survived, Study Shows

cystic fibrosis, News

All mice with cystic fibrosis that received iclaprim for a pneumonia infection survived, according to a study. Motif Bio reported the finding, which involved the Staphylococcus aureus bacteria, and the results of another preclinical-trial study ... Read more

October 13, 2017October 13, 2017

Swine Study May Shed Light on Why CF Patients Can’t Ward Off Bacterial Infections

News

Experiments in live pigs show that the genetic mutation that causes cystic fibrosis (CF) prevents secretion of airway surface liquid when bacteria enter the lungs — a mechanism that may, ... Read more

October 12, 2017October 11, 2017

The Porch with Mama

Columns, Note Taken - a Column by Hannah Buck

This afternoon, while browsing the fiction shelves at a local bookstore, I saw my own ghost. As I turned over a colorful paperback copy of Meg Wolitzer’s “The Uncoupling,” ... Read more

October 12, 2017October 12, 2017

New Biosensor Detects Bacteria Biomarker in CF Patients’ Sputum Samples, U.K. Study Shows

News

A research team at Imperial College London (ICL) has developed a quick, cheap method to detect the presence of Pseudomonas aeruginosa in sputum samples collected from patients with cystic ... Read more

October 11, 2017October 11, 2017

Discovery Could Help Cystic Fibrosis Patients Get Rid of Bacteria That Attack Their Lungs

News

Researchers have identified a signal that controls when lung bacteria in cystic fibrosis patients start producing biofilm — a sticky secretion that protects them from attack and makes the ... Read more

October 10, 2017October 9, 2017

A Celebration of the CF Community

Columns, Victorious - a Column by Brad Dell

I’ve seen videos of people with cystic fibrosis, messaged other patients on the internet, and knew some as a child. But since the early years I barely have any ... Read more