People with cystic fibrosis (CF) and their caregivers want their CF care teams to help with school needs, including absences, accommodations, and infection control, according to a U.S. survey. The survey revealed common issues “that warrant targeted and proactive attention to support academic achievement and wellbeing,” the researchers wrote.

About 40% of people with cystic fibrosis (CF) taking CFTR modulators, a class of medication used to treat the genetic disorder, consider inhaled medicines less important after starting these meds, according to a U.K. survey. Many people attributed this change to improved health, fewer respiratory symptoms, or a lack…

Adding antifungal therapy to oral corticosteroids was not associated with additional benefits for people with cystic fibrosis (CF) being treated for allergic bronchopulmonary aspergillosis (ABPA), a large U.S. real-world study found. ABPA is a lung condition in which the immune system overreacts to the fungus Aspergillus fumigatus, causing allergic…

After living with cystic fibrosis for nearly four decades, I’ve learned valuable lessons about support people. Chronic illness is not for the faint of heart, and not everyone can hang out in the uncertainty with me. I’m so grateful for those who can, and who have shown me what…

Longtime readers may recall that my first job after college was as a researcher in a cystic fibrosis (CF) lab at Cincinnati Children’s Hospital Medical Center. It was a transformative and deeply informative period of my life. I learned in the lab how frustrating science can be. For…

Treatment with Trikafta (elexacaftor/tezacaftor/ivacaftor) eased sinus symptoms and helped stabilize weight without evidence of worsening lung function in people with cystic fibrosis (CF) who had received a lung transplant, a study found. The researchers said the findings show that Trikafta “can be safely incorporated into post–lung transplant care…