I live with a rare disease. It seems strange to say that because it’s not so rare to me. Living with cystic fibrosis (CF) is the only life I’ve ever known. When I was born, researchers hadn’t yet discovered which gene was affected by CF or what chromosome…
Cystic fibrosis (CF) likely affects as many babies in parts of Asia, Africa, and South America as in Europe and the U.S., and better genetic testing and broader access to effective treatments are urgently needed worldwide, a study suggests. The study, “Analysis of the Genome Aggregation Database (gnomAD)…
Discussion
I struggle with needing help and not having answers. I’ve always wanted to be calm and collected in challenging situations. I don’t like feeling panicked or out of control, which means I don’t like expressing emotions before I’ve had time to process and understand what I’m feeling. Over the years,…
Discussion
Cystic fibrosis (CF) doesn’t take breaks, but my late daughter, Jasmine, would have none of that. Even as a child, she was a pro at fighting this rare, genetic illness. Children are so much more resilient than we realize. Her joy in life taught me not to focus only…
Scientists have developed a more precise version of a gene-editing tool, showing that it can correct mutations that cause cystic fibrosis (CF) in cell models and also introduce CF-causing mutations into cells for research. “We were able to introduce specific cystic-fibrosis mutations into human epithelial cells relevant to the…
Long-term exposure to fine particulate matter, a type of air pollution, accelerates the decline in lung function among people with cystic fibrosis (CF) living certain areas of London, according to a new study. The research showed that CF patients exposed to higher levels of fine particulate matter experienced significantly…
Discussion
Five and a half years ago, I received the gift of a lifetime: a double-lung transplant that gave me back my breath and, in many ways, my life. After decades of fighting cystic fibrosis (CF), I finally felt free. And then reality set in. Nobody tells you that a…
Becoming educated and informed about cystic fibrosis is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your CF journey.
There is no cure for CF yet, but here you can find more information about current therapeutic approaches, as well as experimental treatments that are in the pipeline.
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