I recently had the privilege of attending a virtual experience called Spit It Out. That’s a storytelling and public speaking training series created with a Cystic Fibrosis Foundation (CFF) Impact Grant. It’s led by Katherine Russell. And this Impact Grant truly impacted me. Russell, who has cystic fibrosis (CF)…
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A study found machine learning models could help predict whether chronic lung infections in people with cystic fibrosis (CF) will be resistant to commonly used antibiotics, helping doctors make more informed treatment choices. By linking a decade of information on patients’ antibiotic resistance with previous antibiotic use and other…
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There’s nothing I love more than alliteration. It might be a bit dramatic, but I think Advocacy August, one of my favorite months, warrants the drama. I’m passionate about advocacy, both from personal experience and as a therapist. Living with cystic fibrosis (CF) and navigating the healthcare system…
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Developing cystic fibrosis (CF) during the first month of life may no longer necessarily predict poorer long-term outcomes, a new study from Portugal suggests. Despite experiencing substantial disease burden early in life, people whose signs of CF first manifested during the neonatal period had similar long-term nutritional outcomes and survival…
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My daughter, Jasmine, went to her first school dance when she was 16. It was the kind of night she had dreamed about and worked hard to reach, despite dealing with cystic fibrosis. She had prepared carefully, making sure her bronchial drainage treatments were done, her nebulizer…
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Writer, director, and actor Leah McKendrick has been selected as the winner of the 2026 Clairity Spotlight Award in recognition of her work raising awareness of cystic fibrosis (CF). McKendrick is the creator of the Netflix romantic comedy “Voicemails for Isabelle.” This award is given each year by…
Discussion
It’s only mid-August, and already the stores are stacked with Halloween decorations. Every year, this catches me off guard, and I find myself a little annoyed by it. I’m not ready to rush through summer. I love the warmth of the sun on my skin, the feeling of fresh air…
Becoming educated and informed about cystic fibrosis is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your CF journey.
There is no cure for CF yet, but here you can find more information about current therapeutic approaches, as well as experimental treatments that are in the pipeline.
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