What is cystic fibrosis (CF)? I get asked this question on the regular. My automatic response is: Please don’t search it online. No, really. Just don’t. I equate searching CF online to looking up your symptoms when you’re sick: Both typically result in death. (That’s dark humor.) But truly,…
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Note: This column describes the author’s own experiences with steroid injections. Not everyone will have the same response to treatment. Consult your doctor before starting or stopping a therapy. Going in for injections is not that hot. (Photo by Bailey Anne Vincent) “Why do I do this every time?”…
“I want to have a baby girl with pink hair and a baby boy when I’m a mommy,” my daughter, Claire, boldly announced as I was cooking dinner the other night. She’s a lot like other 5-year-olds, dreaming of her baby dolls coming to life — except she has…
Infection with an airway bacterium called Haemophilus influenzae isn’t linked with worse lung health outcomes among adults with cystic fibrosis (CF), a study suggests. “Our study is the first to specifically dissect the natural history and consequences of H. influenzae infection in adult [people with] CF,” the researchers wrote. The…
Becoming educated and informed about cystic fibrosis is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your CF journey.
There is no cure for CF yet, but here you can find more information about current therapeutic approaches, as well as experimental treatments that are in the pipeline.
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