If you live with cystic fibrosis (CF), chances are you already know more about fall risks than most people twice your age. I certainly do, even six years after I had a double-lung transplant. When people think of CF, they usually focus only on the lungs. Most of this…
Discussion
Note: This column describes the author’s experiences with tacrolimus and prednisone. Not everyone will have the same response to treatment. Consult your doctor before starting or stopping a therapy. I’ve been dealing with a different and unexpected symptom these past eight months, one that’s challenged my pain threshold on a…
Discussion
Over the last two months, cystic fibrosis (CF) has summoned challenges that caught me by surprise. First, my body betrayed me in a way I haven’t experienced in more than 20 years: My small intestine became obstructed. Weeks later, my betrayer was not physical, but logistical: An airline lost…
Discussion
Splisense has begun testing its inhaled therapy SPL84 alongside standard treatment in adults with cystic fibrosis (CF) who carry a specific genetic mutation. This second phase of an ongoing Phase 2 clinical trial is evaluating whether SPL84 can offer extra benefits when paired with the approved…
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The Cystic Fibrosis Foundation is investing up to $7.3 million in Ride Therapeutics to develop nonviral carriers of genetic therapies intended to reach the lungs for all people with cystic fibrosis (CF). Ride said its technology could ultimately make genetic medicines more feasible in CF by improving the delivery of therapeutic…
Discussion
Most adults with cystic fibrosis (CF) surveyed at a U.S. care center had never received genetic counseling, and many had unanswered questions about fertility, pregnancy, and family planning. Among more than 100 respondents, 71% had not received genetic counseling, and 27% had never heard of it. Fifty-four percent of…
Discussion
I’ve been in pain so long that I can’t remember a time when I didn’t feel pain in one part of my body or another. Through surgeries, procedures, medication side effects, and the injuries of everyday life, pain has been a constant companion for me and continues to affect my…
Becoming educated and informed about cystic fibrosis is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your CF journey.
There is no cure for CF yet, but here you can find more information about current therapeutic approaches, as well as experimental treatments that are in the pipeline.
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