Sometimes a story finds you and simply won’t let go. That’s what happened when I came across More Mornings 4 Mexico on social media. This program in Mexico City for children and young adults with cystic fibrosis (CF) is producing results I found hard to believe at first. It’s…
Tactile Systems Technology has announced the commercial launch of a next-generation version of its AffloVest system, a high-frequency chest wall oscillation (HFCWO) device designed to help clear mucus from the airways in people with cystic fibrosis (CF) and other chronic respiratory or neuromuscular conditions. “Commercial introduction of the…
Discussion
I’ve been anxious since the removal of my beloved port-a-cath. Living with cystic fibrosis has frequently necessitated the use of intravenous antibiotics. A few years prior to my double-lung transplant in 2017, I needed IVs every few weeks. But my veins grew tired, so I had a…
The real-world health benefits that cystic fibrosis (CF) patients experienced when they started taking Trikafta (elexacaftor/tezacaftor/ivacaftor) during the COVID-19 pandemic were caused by the medication itself rather than lockdown safety precautions, according to a new U.S. study. Because the U.S. Food and Drug Administration approved Trikafta in…
MRI images when a patient exhales may help detect and quantify areas presumed to reflect gas trapping — an early sign of lung disease — in people with cystic fibrosis (CF), including some patients with normal results on standard lung function tests, a study found. The imaging method also…
Macrophages from people with cystic fibrosis (CF) showed multiple defects that may make it harder for them to kill infectious bacteria, a new study reports. The findings also suggest that treatment with Trikafta (elexacaftor/tezacaftor/ivacaftor) partially improved CFTR function and corrected some macrophage functions, but was not enough to…
Discussion
My husband, Chris, and I celebrated two years of marriage on May 25, but it feels like we’ve been together longer, given all that we’ve been through this year, which saw way more sickness than health. As I reflect on the past year, I’m so grateful for my husband, who…
Becoming educated and informed about cystic fibrosis is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your CF journey.
There is no cure for CF yet, but here you can find more information about current therapeutic approaches, as well as experimental treatments that are in the pipeline.
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