A single dose of an inhaled experimental gene therapy for cystic fibrosis (CF) — one designed to treat people regardless of their disease-causing genetic mutation — was shown in an animal model to sustainably boost CFTR gene activity and protein levels in the lungs and spread to several other…
Discussion
Two U.S.-based researchers aiming to help gene-corrected airway stem cells grow and survive long enough to repair lung tissue — with the goal of developing a long-lasting treatment for cystic fibrosis (CF) — have received a grant from the nonprofit Emily’s Entourage. This type of stem cell therapy may…
Discussion
I recently had the privilege of attending a virtual experience called Spit It Out. That’s a storytelling and public speaking training series created with a Cystic Fibrosis Foundation (CFF) Impact Grant. It’s led by Katherine Russell. And this Impact Grant truly impacted me. Russell, who has cystic fibrosis (CF)…
Discussion
A study found machine learning models could help predict whether chronic lung infections in people with cystic fibrosis (CF) will be resistant to commonly used antibiotics, helping doctors make more informed treatment choices. By linking a decade of information on patients’ antibiotic resistance with previous antibiotic use and other…
Discussion
There’s nothing I love more than alliteration. It might be a bit dramatic, but I think Advocacy August, one of my favorite months, warrants the drama. I’m passionate about advocacy, both from personal experience and as a therapist. Living with cystic fibrosis (CF) and navigating the healthcare system…
Discussion
Developing cystic fibrosis (CF) during the first month of life may no longer necessarily predict poorer long-term outcomes, a new study from Portugal suggests. Despite experiencing substantial disease burden early in life, people whose signs of CF first manifested during the neonatal period had similar long-term nutritional outcomes and survival…
Discussion
My daughter, Jasmine, went to her first school dance when she was 16. It was the kind of night she had dreamed about and worked hard to reach, despite dealing with cystic fibrosis. She had prepared carefully, making sure her bronchial drainage treatments were done, her nebulizer…
Becoming educated and informed about cystic fibrosis is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your CF journey.
There is no cure for CF yet, but here you can find more information about current therapeutic approaches, as well as experimental treatments that are in the pipeline.
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