I Am Out of the Hospital and Can’t Write My Column
I don’t have anything to write. I don’t have anything to write because I don’t have anything left inside of me. I just got ... Read more
Updates
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Underweight CF Patients Have Lung Transplant Survival Rates Comparable to Recipients With Other Lung Conditions, Study Reports
Cystic fibrosis (CF) patients with low body weight are not at increased risk of mortality after a lung transplant, compared to people with other ... Read more -
So This Is How My Life Is Now
Humans are creatures of habit. We become accustomed to our circumstances. Most of us complain about our boring routines, but when they are disrupted, ... Read more -
Proteostasis On Track to Develop Organoids for Personalized Medicine Strategy for CF Patients with Rare Mutations
A project aimed at personalized medicine based on the use of organoids, or “mini-organs,” from cystic fibrosis (CF) patients with rare mutations is on ... Read more -
I Struggle with Feeling Like an Outsider in the CF Community
A cliché exists in the world of reality TV: the contestant who says they’re not there to make friends. I never meant to be ... Read more
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Crestone Awarded Funding by Cystic Fibrosis Foundation to Develop Antibiotic That Fights NTM Infections
Crestone has received an award from the Cystic Fibrosis Foundation (CFF) to develop preclinical studies ... -
Enrollment Nearly Complete for Phase 2 Clinical Trials Testing ELX-02 in CF Patients
Enrollment is nearing completion for two Phase 2 clinical trials testing the experimental treatment ... -
CF Foundation Awards $700K to Support Work into Treatments for B. cepacia Infections
The Cystic Fibrosis (CF) Foundation awarded a nearly $700,000 contract to Calibr, the drug ... -
Enterprise’s ETX001 Targeting Chloride Channel Shows Promise for CF in Preclinical Studies
Enterprise Therapeutics‘ experimental compound called ETX001 was able to increase airway fluid secretion and ... -
I Keep Forgetting CF Is Invisible
I often hear, “CF does not define me.” However, while cystic fibrosis (CF) does ... -
Reflecting on My Favorite Columns of 2019
2019 has given me much to reflect upon, including which of my columns are ...
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