When my late daughter, Jasmine, was diagnosed with cystic fibrosis in 1994, we had appointments to remember, medications to track, and other treatments that seemed to eat up every spare moment. I remember sitting at the kitchen table surrounded by prescription bottles and sticky notes, wondering how I would…

People with cystic fibrosis (CF) treated with CFTR modulators have a significantly lower risk of death than untreated patients, with an overall 66% lesser risk over eight years, according to a large U.S. registry study. The survival benefit was similar in magnitude in males and females. “Our study is…

Data from continuous glucose monitoring (CGM) devices, which track blood sugar levels in real time, can reveal early signs of diabetes in people with cystic fibrosis (CF), even among those who test negative for diabetes using standard tools. That’s according to a study using machine learning, a type of…

Cystic fibrosis (CF) can manifest in countless ways, and no two experiences look exactly the same. For me, one of the most disruptive symptoms isn’t something that shows up on a pulmonary function test. It’s anxiety. I’ve had respiratory infections and enough IV antibiotics for a…

I learned early on in my life with cystic fibrosis (CF) that coping with a chronic illness is all about the long game. Prior to my double-lung transplant eight years ago, I had to learn how to deal with a lot of uncertainty. Wrestling with matters of life…

ETD001, an inhaled therapy for cystic fibrosis (CF), appeared to work better than a placebo at improving lung function in CF patients not taking CFTR modulators — approved therapies that only work in people with certain CF-causing gene mutations — in a small clinical trial. That’s according to…