Holidays used to sneak up on me. I’d barely notice the calendar flipping over to June. Maybe I’d see a sign in the grocery store or a rack of “World’s Best Dad” mugs by the checkout, but it never meant much. Father’s Day was just another Sunday. I was never…

Women with cystic fibrosis (CF) may experience worsening respiratory and digestive symptoms around their menstrual periods, even when taking CFTR modulators, according to a new U.S. study. Researchers found that symptoms such as coughing up mucus, bloating, stomach pain, and painful bowel movements tended to be worse during menstruation than…

I am a mother who has cystic fibrosis (CF). My daughter is 30, but she was 15 when my lung function started its long, uneven slide. She has spent more than half her life watching my body negotiate with CF. She has seen the hospital calls, the bad lab…

Sunflower seeds may offer significant digestive, nutritional, and gut bacteria benefits for children with cystic fibrosis (CF), according to a new laboratory study. Researchers used in vitro (lab-based) techniques to simulate the digestion of various nuts and seeds and to estimate their effects on gut microbiota, or communities of…

I’m just back from taking part in the Transplant Games of America, where 966 transplant recipients and living donors gathered in Denver to make history. The event saw the most organ transplant recipients and living donors gathered in one place, meaning we made the Guinness Book of World Records!…

People with cystic fibrosis (CF) continued to receive less recommended routine CF care through 2023 than they did before the COVID-19 pandemic, with adults showing the largest declines, a U.S. study found. Although care gradually rebounded after the pandemic, in-person clinic visits, lung function tests, and bacterial cultures remained…