I’ve talked a lot about dreaming about the future, but not really about planning for it. Being born with cystic fibrosis (CF) made it challenging to depend on my health, so planning for the future never felt like a viable option. But now, more than five years after…
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Trikafta significantly improved the lung function of cystic fibrosis patients after only two weeks of treatment, with the benefits sustained after nearly four months, according to real-world data from a single center in Austria. “Early LCI [lung clearance index] measurements can help to assess the patient’s response to this…
An exclusive telehealth care model used during the COVID-19 pandemic was associated with a decrease in pulmonary function in Australian children with cystic fibrosis (CF). “It is likely that telehealth based care should complement, rather than replace in person assessment,” according to the researchers. “Further work is needed to…
I’m a Make-A-Wish kid. Rather, I was one. I’m now 30, but I had my wish granted 12 years ago because of my cystic fibrosis (CF). For those unaware, the Make-A-Wish Foundation grants children with terminal illnesses and their families a once-in-a-lifetime opportunity to do whatever they like,…
Abnormal winter weather likely due to climate change is forcing columnist William Ryan to modify his CF treatment strategy.
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Becoming educated and informed about cystic fibrosis is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
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There is no cure for CF yet, but here you can find more information about current therapeutic approaches, as well as experimental treatments that are in the pipeline.
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