Living with cystic fibrosis (CF) means becoming an expert in your own body. You learn the rhythms of your lungs and the early warnings of an exacerbation. You notice the subtle signs that something is shifting. Even after a lifetime of navigating CF, a double-lung transplant taught me something…
For adults with cystic fibrosis (CF), long-term treatment with Trikafta (elexacaftor/tezacaftor/ivacaftor) may significantly improve the composition of bacteria living in the lungs, a study found. The study showed that with longer periods of Trikafta treatment, the community of lung bacteria (respiratory microbiota) became more diverse. Disease-causing (pathogenic) bacteria…
Discussion
“Can you help me?” It seems like a simple request, but it’s not so easy for me to say those words. I feel guilty asking for help and ashamed that I need assistance. Living with cystic fibrosis can make me feel like a burden because of my health…
Kaftrio (elexacaftor/tezacaftor/ivacaftor) use was not associated with additional improvements in physical activity among children and adolescents with cystic fibrosis (CF) in a small observational study. Even so, those who started Kaftrio during the study or were already receiving it showed improvements in some health-related quality-of-life domains, including treatment…
Alyftrek, a next-generation triple-combination CFTR modulator, further improved the function of the defective CFTR protein in children ages 2 to 5 with cystic fibrosis (CF) who switched from Trikafta, new clinical trial data suggest. Vertex Pharmaceuticals, the company that markets both Alyftrek and Trikafta, presented the…
Discussion
Sometimes a story finds you and simply won’t let go. That’s what happened when I came across More Mornings 4 Mexico on social media. This program in Mexico City for children and young adults with cystic fibrosis (CF) is producing results I found hard to believe at first. It’s…
Tactile Systems Technology has announced the commercial launch of a next-generation version of its AffloVest system, a high-frequency chest wall oscillation (HFCWO) device designed to help clear mucus from the airways in people with cystic fibrosis (CF) and other chronic respiratory or neuromuscular conditions. “Commercial introduction of the…
Becoming educated and informed about cystic fibrosis is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your CF journey.
There is no cure for CF yet, but here you can find more information about current therapeutic approaches, as well as experimental treatments that are in the pipeline.
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