Cystic fibrosis (CF) can manifest in countless ways, and no two experiences look exactly the same. For me, one of the most disruptive symptoms isn’t something that shows up on a pulmonary function test. It’s anxiety. I’ve had respiratory infections and enough IV antibiotics for a…
Discussion
I learned early on in my life with cystic fibrosis (CF) that coping with a chronic illness is all about the long game. Prior to my double-lung transplant eight years ago, I had to learn how to deal with a lot of uncertainty. Wrestling with matters of life…
ETD001, an inhaled therapy for cystic fibrosis (CF), appeared to work better than a placebo at improving lung function in CF patients not taking CFTR modulators — approved therapies that only work in people with certain CF-causing gene mutations — in a small clinical trial. That’s according to…
Blackstone Life Sciences is investing $250 million in Anagram Therapeutics to advance ANG003, an oral enzyme replacement therapy (ERT) for exocrine pancreatic insufficiency (EPI) due to cystic fibrosis (CF). ANG003 is designed to reduce the “enormous, disruptive” pill burden for CF patients with EPI, which can amount…
An early clinical trial testing inhaled cystic fibrosis (CF) treatment VX-522 — being developed for adults with CF who are not eligible for certain available therapies — has been terminated before its completion due to “persistent tolerability issues,” according to an update from Vertex Pharmaceuticals. Vertex, which was…
Discussion
Last in a series. Read part one. Last week, I asked why those with cystic fibrosis (CF), a progressive and incurable genetic disease, must keep proving disability after already qualifying. This is especially frustrating after reaching an advanced disease stage and undergoing a life-extending double-lung transplant, as I…
Discussion
Cystic fibrosis (CF) tends to take up a lot of space in my life. Sometimes it’s so all-consuming that I don’t get to focus on anything else, and I must wrestle to separate my identity from this label that I never chose. But CF is not my whole life…
Becoming educated and informed about cystic fibrosis is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your CF journey.
There is no cure for CF yet, but here you can find more information about current therapeutic approaches, as well as experimental treatments that are in the pipeline.
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