Columns, Valiant Voice – a Column by Lara Govendo Holidays Are Complicated This Year

News Vertex Donates $50k to Claire’s Place Foundation’s Work Proudly Program

cystic fibrosis, News BiomX Testing Potential Therapy for CF Lung Infections

cystic fibrosis, News Trial Testing MS1819 Plus PERT for Exocrine Pancreatic Insufficiency Now Dosing in Turkey

Columns, Life in the Grey – a Column by Bailey Anne Vincent Sickness Is Giving Me a Panic Disorder

cystic fibrosis, News Symkevi-Kalydeco Combo Approved in Europe to Treat CF Patients Ages 6–11

cystic fibrosis, News Music May Make Airway Clearance Sessions More Enjoyable for Children

cystic fibrosis, News CFF Awards $3.3M to Advance Inhaled Antibiotic for Resistant P. aeruginosa Infections

Columns, Life in the Grey – a Column by Bailey Anne Vincent Not Everyone Has Access to Miracles

cystic fibrosis, News CFF Awards Up to $3.75M to Develop Oral Antibiotic for NTM Infections

Columns, Mutations & Conversations - a Column by Tré LaRosa My Experience With COVID-19

News S. Aureus Found Mostly in Lung Mucus, Not Tissue, Pig Model Shows

News CF Foundation Seeks Minority Patient Voices on Inequalities in Care, Research

cystic fibrosis, News Trial of MS1819, Pancreatic Enzyme Therapy, May Add New Patient Arm

cystic fibrosis, News A. fumigatus Lung Infections Linked to Age, Long-term Antibiotic Use

Columns, Life in the Grey – a Column by Bailey Anne Vincent I Wish I Never Had to Work Out Again — Until Tomorrow

Columns, Victorious - a Column by Brad Dell A Life Stranger (and Better) Than Fiction

cystic fibrosis, News Pegylation Provides Long‐acting Version of Dornase Alfa for CF Treatment

News Relizorb Use Supports Weight, Height Gains in Tube-fed Patients, Study Finds

Columns, Valiant Voice – a Column by Lara Govendo Praising the Caregivers Who Helped Me Endure

cystic fibrosis, News Trikafta Soon Be Up for Approval, Cystic Fibrosis Canada Reporting

cystic fibrosis, News KB407 Seen in Animal Studies to Safely Deliver Gene That Might Treat CF

cystic fibrosis, News Phase 1/2 Trial of MRT5005, Potential Treatment for All With CF, Resumes in US

Columns, Life in the Grey – a Column by Bailey Anne Vincent I Thought I Had COVID-19 but Turns Out It’s Just CF

cystic fibrosis, News Home Monitoring of Lung Health Possible With NuvoAir System, Studies Report

Columns, Mutations & Conversations - a Column by Tré LaRosa After a Year of Trikafta, Where Do We Go From Here?

cystic fibrosis, News CFF Awards $2.4M to Advance CB-280 in Preventing Lung Infections

cystic fibrosis, News Kalydeco Open to Infants in Europe Starting at 4 Months Old

cystic fibrosis, News CF Foundation Award to Support Work Into Inhalable, Non-viral Gene Therapy

News FDA Approves Bronchitol Inhalation Powder as Add-on Treatment for Adult CF Patients

Columns, Life in the Grey – a Column by Bailey Anne Vincent How to Be Better at Making Someone Feel Better

cystic fibrosis, News Identifying Changes to P. aeruginosa in Lungs May Help With Treatment

cystic fibrosis, News, syndicated NORD Hosting ‘RareLaunch’ Workshops to Help Start Rare Disease Non-profits

Columns, Valiant Voice – a Column by Lara Govendo Respiratory Care Teams Are the MVPs of CF Care

cystic fibrosis, News Envara Health Launches Encala, Supplement to Enhance Fat Absorption in CF Patients

cystic fibrosis, News Screening for Carriers of CF May Be Cost-free Option for Couples in Australia

cystic fibrosis, News New Machine Learning Technologies Could Improve Disease Prediction in CF

Columns, Life in the Grey – a Column by Bailey Anne Vincent ‘It’s Not Me, It’s Me’: Breaking Up With My Body

cystic fibrosis, News Lenabasum May Help Lessen Flares in CF Patients, Post-hoc Trial Analyses Find

Columns, Path Unknown - a Column by Wendy Caroline Which Is More Important: Physical or Mental Health?

cystic fibrosis, News Preclinical Work Supports ELX-02, Potential Treatment for Nonsense Mutations

cystic fibrosis, News $200K Donation Will Support Respiratory Care on CF, Other Lung Disorders

cystic fibrosis, News CFF Award to Advance Synspira’s Treatments for Malabsorption, Lung Infections

cystic fibrosis, News Inhaled Tobramycin Effectively Treats Initial P. aeruginosa Infections in CF

Columns, Life in the Grey – a Column by Bailey Anne Vincent To the Doctors Who Didn’t Listen

cystic fibrosis, News FDA Clears Clinical Trial of AP-PA02 Phage Therapy for P. aeruginosa Infections

News, syndicated Telehealth ‘Helpful’ Alternative to In-person Care, Rare Disease Patients Say

Columns, Valiant Voice – a Column by Lara Govendo True Story: I Got Fired for Being Sick

cystic fibrosis, News Trial Enrolling Patients With Severe Digestive Enzyme Deficiency in Europe

cystic fibrosis, News New Inhaled Therapy IONIS-ENAC-2.5Rx Shows Promise in Phase 1/2a Trial

cystic fibrosis, News Toronto Scientist Wins Award for Work Into Alternative Way of Treating CF

Columns, Victorious - a Column by Brad Dell If You’ve Lost Hope, Read This

cystic fibrosis, News Trial of Oral CB-280 for Chronic Lung Infections in CF Enrolling Across US

Columns, Path Unknown - a Column by Wendy Caroline The ‘5-year Plan’ Is Not for the Chronically Ill

Columns, Mutations & Conversations - a Column by Tré LaRosa Contemplating Our Identity

cystic fibrosis, News Certain Factors Could Predict Severe Episodes of Coughing Up Blood in CF Patients, Study Says

cystic fibrosis, News Roche Acquires TMEM16A Portfolio for CF Treatment

cystic fibrosis, News Tobacco Smoke Exposure Limits Symdeko Benefit in Pediatric CF Patients

cystic fibrosis, News Lenabasum Fails to Lessen Exacerbations in CF Patients in Phase 2 Trial

cystic fibrosis, News Twincer Inhaler May Be Better Alternative to Nebulizers for Colistin Treatment

News Student-Led Konglomerate Games Wins Entrepreneurship Award for CF Therapy Game

cystic fibrosis, News NTM Infection Rate in Young CF Patients in UK Remains Stable But High, Study Finds

cystic fibrosis, News Study Compares Oral and Intravenous Antibiotics for P. aeruginosa Infections in People With CF

cystic fibrosis, News Study: Screening for Hearing Loss in CF Patients Feasible With Tablet-based Tests

Columns, Life in the Grey – a Column by Bailey Anne Vincent Restoring Humanity to the Statistics of Illness

Columns, Victorious - a Column by Brad Dell The Necessities of a Funeral

cystic fibrosis, News Potential Gene Therapy, SPIRO-2101, Named Rare Pediatric and Orphan Disease by FDA

Columns, Mutations & Conversations - a Column by Tré LaRosa Time Contracts Near Tragedy

cystic fibrosis, News FDA Approves CF Treatment Kalydeco for Infants as Young as 4 Months

Columns, Valiant Voice – a Column by Lara Govendo What to Do When Depression Strikes

cystic fibrosis, News Emily’s Entourage Awards $790K to Support Work on CF Therapeutics

cystic fibrosis, News GI Problems Common and ‘Intrude’ on Daily Life, CF Survey Finds

cystic fibrosis Antibody Evident in Airways of CF Patients Tied to P. aeruginosa Colonization

Columns, Life in the Grey – a Column by Bailey Anne Vincent I Am Not Your Sick Savior, and Here’s Why

cystic fibrosis, News Public Invited to Vote on 2020 AbbVie CF Scholarship Awards

cystic fibrosis, News EU’s CHMP Backs Kalydeco, Symkevi License Extension for Use in Younger Children

cystic fibrosis, News Moderna, Vertex Team Up to Develop Gene-editing Delivery Techniques

cystic fibrosis, News For 7th Year, Bike 2 Breathe Hits Roads in Support of Those With CF

News Case Report Describes Unconventional Method for Delivering PERT in Premature CF Baby

Columns, Life in the Grey – a Column by Bailey Anne Vincent I’m Having Surgery (and Other Clickbait Headlines)

Columns, Victorious - a Column by Brad Dell Have Our Backs and Push Against Ableism With Us

cystic fibrosis, News EMA Validates Application Seeking Expansion of Kaftrio Approval

cystic fibrosis, News Vertex to Seek Expanded FDA Approval for Trikafta After Positive Child Safety Data

Columns, Valiant Voice – a Column by Lara Govendo How to Keep Your Growth Game Strong

cystic fibrosis, News Aridis, FDA Agree to Simplify AR-501 Trial Design Based on Positive Safety Data

cystic fibrosis, News Savara Closing Trial of Molgradex in Treating NTM Lung Infections in CF Patients

Columns, Life in the Grey – a Column by Bailey Anne Vincent Listening to Both Sides of the Mask Debate

News $10M Grants Will Fund New Research Seeking to Improve Transplant Outcomes

cystic fibrosis, News CF Patients With Poorer Lung Function at Greater Risk of Premature or Smaller Baby, Study Shows

cystic fibrosis, News New Technology Could Improve Detection of Biomarkers for CF, Other Diseases

cystic fibrosis, News Vertex Seeks to Expand FDA Approval of CFTR Modulators to Include More Mutations

Columns, Life in the Grey – a Column by Bailey Anne Vincent Advance Directives, Legacy, and Worrying Myself Sick

Columns, Victorious - a Column by Brad Dell Interventional Treatment for My Social Sickness

cystic fibrosis, News CFF Funding Will Further ContraFect’s Research Into Alternative for Antibiotics

cystic fibrosis, News, syndicated Same But Different Photo Contest Celebrates People With Rare Diseases

cystic fibrosis, News UK Registry Finds CF Community Living Longer, Becoming More Diverse

Columns, Valiant Voice – a Column by Lara Govendo Transplant Anniversaries Acknowledge Trauma and Triumph

cystic fibrosis, News Trikafta’s Arrival in Canada Could Cut CF Deaths by 15% Over 10 Years, Study Suggests

cystic fibrosis, News Proteostasis Therapeutics Merges With Yumanity Therapeutics

cystic fibrosis, News CF Foundation Awards Nearly $15 Million to Groups Researching Infections and CF