“Why are you so tired? You don’t even do anything.” Cue all the puzzled facial expressions. Prior to my double-lung transplant eight years ago, I slowed down a lot. As my cystic fibrosis (CF) lung disease continued to progress rapidly, my energy levels and ability to function outside…
Discussion
CF-related diabetes (CFRD) patients are able to adhere to their treatment routines, and the condition doesn’t hurt their mental health or cognitive functioning despite posing a greater treatment burden than cystic fibrosis (CF) alone, a U.S. study found. In an analysis of almost 400 participants, people with CFRD…
Discussion
By the time my late daughter, Jasmine, had turned 11, we’d become professionals at handling cystic fibrosis (CF). In those years, our lives revolved around a schedule that most people couldn’t imagine. CF is a genetic disease that causes the mucus in the body to become thick and sticky,…
Discussion
Children with cystic fibrosis (CF) who were using CFTR modulators had lower anxiety scores than those not using the treatments, while their parents had lower anxiety and depression scores, according to a small, single-center study in Turkey. The findings suggest these treatments may be linked to mental health benefits…
Discussion
Living with cystic fibrosis (CF) means becoming an expert in your own body. You learn the rhythms of your lungs and the early warnings of an exacerbation. You notice the subtle signs that something is shifting. Even after a lifetime of navigating CF, a double-lung transplant taught me something…
Discussion
For adults with cystic fibrosis (CF), long-term treatment with Trikafta (elexacaftor/tezacaftor/ivacaftor) may significantly improve the composition of bacteria living in the lungs, a study found. The study showed that with longer periods of Trikafta treatment, the community of lung bacteria (respiratory microbiota) became more diverse. Disease-causing (pathogenic) bacteria…
Discussion
“Can you help me?” It seems like a simple request, but it’s not so easy for me to say those words. I feel guilty asking for help and ashamed that I need assistance. Living with cystic fibrosis can make me feel like a burden because of my health…
Becoming educated and informed about cystic fibrosis is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your CF journey.
There is no cure for CF yet, but here you can find more information about current therapeutic approaches, as well as experimental treatments that are in the pipeline.
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