My permanent disabled parking placard was falling apart, and after 10 years of use, it was held together with tape. So I went to the Department of Motor Vehicles to get a new one. “I’m so sorry that it’s permanent,” replied the lady behind the service counter. Her response shocked…
The amount of physical activity children and adolescents with cystic fibrosis (CF) get is linked to their age, physical abilities, screen time, and several other everyday factors, according to a recent study. Other factors tied to physical activity included taking part in organized sports, having social support from others,…
Discussion
People say you don’t know what happens behind closed doors. Society only sees what’s on the outside. For those of us with cystic fibrosis (CF), you may see us cough a lot or become out of breath when exercising. Otherwise, though, it may be easy to think, “Oh, CF…
Levels in the bloodstream of certain circulating microRNAs — small strands of genetic material that help regulate gene activity — may flag changes linked to cystic fibrosis-related diabetes (CFRD), or its development, in people with cystic fibrosis (CF). That’s according to a new study by researchers in Europe…
About one-quarter of children with cystic fibrosis (CF) who are hospitalized for pulmonary exacerbations — an acute worsening of lung symptoms, often marked by increased cough and thicker or more mucus — will temporarily develop pulmonary hypertension (PH), a condition marked by high pressure in blood vessels that…
Discussion
I never thought I’d make it to menopause. When I was growing up with cystic fibrosis (CF), living beyond young adulthood felt ambitious. Living to my mid-50s? That was science fiction. Yet here I am, facing hot flashes, brain fog, and sleepless nights — symptoms my CF care team…
Discussion
Last weekend’s weather forecast called for a wind chill factor of -35 F. We don’t usually experience such low temperatures here in Vermont, but this winter has been hitting hard. Before I serenade you with “Ice Ice Baby,” I want to take a trip down memory lane. I am so…
Becoming educated and informed about cystic fibrosis is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your CF journey.
There is no cure for CF yet, but here you can find more information about current therapeutic approaches, as well as experimental treatments that are in the pipeline.
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