A new model based on body composition and hand grip strength may help clinicians identify children with cystic fibrosis (CF) at risk of rapid weight gain or weight loss after starting Trikafta (elexacaftor/tezacaftor/ivacaftor), a new study suggests. In 27 children treated with Trikafta, researchers found that weight responses…
Discussion
Inhale. Exhale. Ah. If only it were that simple. Living with cystic fibrosis (CF) has given me a sixth sense about my breathing. I pay more attention to every breath than I do to most anything else. It’s at the forefront of my mind constantly. I don’t clock in,…
Discussion
Parent caregivers of people with cystic fibrosis (CF) want a tailored, internet-delivered resource offering mental health support, disease education, and connection with other CF families, a study in Canada showed. Researchers said the information gained from the interview-based study will be used “to develop an accessible, tailored, Internet-delivered resource…
Discussion
My late daughter, Jasmine, turned 13 in the spring of 2005, and sometimes, when she walked through the door after school, I got a flash of the little girl she used to be. After she was diagnosed with cystic fibrosis (CF) in 1994, I thought about the future…
Discussion
People with cystic fibrosis (CF) in Canada are a step closer to gaining public access to Alyftrek, a once-daily triple-combination therapy approved for patients ages 6 and older with at least one mutation that’s responsive to the therapy. Vertex Pharmaceuticals, which markets Alyftrek, has signed a letter…
Discussion
Most days, the mental load begins before my feet hit the floor. The first thoughts of my day are rarely about coffee or schedules. I’m already running through a quiet checklist: medications and other treatments, upcoming appointments, symptoms, exposure risks, and more. I’m listening — not just hearing,…
Discussion
Arcturus Therapeutics is partnering with Thermo Fisher Scientific to support the development of ARCT-032, Arcturus’ experimental inhaled therapy for cystic fibrosis (CF). Under the agreement, Thermo Fisher will provide Arcturus with manufacturing and clinical trial support for a planned Phase 3 study testing ARCT-032. And if the…
Becoming educated and informed about cystic fibrosis is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your CF journey.
There is no cure for CF yet, but here you can find more information about current therapeutic approaches, as well as experimental treatments that are in the pipeline.
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