For me, cystic fibrosis (CF) was extremely aggressive and relentless. Breathing was always a struggle, and I was constantly congested. Germs would set up shop, wreaking havoc on my airways. My days were filled with nebulizers and airway clearance treatments, and beginning and ending each day with both was…
The U.S. Food and Drug Administration (FDA) has expanded the approvals of two Vertex Pharmaceuticals therapies to include additional mutations that cause cystic fibrosis (CF), allowing more people with the condition to become eligible for treatment. The decision concerns Alyftrek (vanzacaftor/tezacaftor/deutivacaftor) and Trikafta (elexacaftor/tezacaftor/ivacaftor). These are CFTR…
Agena Bioscience has launched a new genetic testing panel designed to detect a broader range of mutations that cause cystic fibrosis (CF), the company announced. The CFTR 100+ Panel can analyze more than 100 variants in the CFTR gene, which is altered in CF. It includes all…
Discussion
When my daughter started elementary school, I wasn’t looking for help. I was just another mom on the sidelines of a soccer field, handing out snacks at birthday parties, and setting up carpool schedules. But in the routine of those early school years, something special grew — a community I…
American Airlines and its partners have raised more than $1.6 million for the Cystic Fibrosis Foundation (CFF) during the airline’s 41st annual Celebrity Ski event, continuing a four-decade tradition of hitting the slopes to fund a cure. The event, held March 5-8 in Beaver Creek, Colorado, featured…
Discussion
Hitting the trails on one of my favorite hikes, I spent the day atop a mountain, lying in my hammock and gazing up at the bright blue sky. The warm breeze filled my lungs and sparked a sense of excitement. Up there, I was completely alone — no one was…
Discussion
Last week, my parents joined hundreds of advocates on Capitol Hill in Washington, D.C. Along with others who have loved ones with cystic fibrosis (CF), they met with the staffers of senators and representatives from Kentucky. While there, my parents explained what CF is and all the medications…
Becoming educated and informed about cystic fibrosis is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your CF journey.
There is no cure for CF yet, but here you can find more information about current therapeutic approaches, as well as experimental treatments that are in the pipeline.
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