Levels in the bloodstream of certain circulating microRNAs — small strands of genetic material that help regulate gene activity — may flag changes linked to cystic fibrosis-related diabetes (CFRD), or its development, in people with cystic fibrosis (CF). That’s according to a new study by researchers in Europe…
About one-quarter of children with cystic fibrosis (CF) who are hospitalized for pulmonary exacerbations — an acute worsening of lung symptoms, often marked by increased cough and thicker or more mucus — will temporarily develop pulmonary hypertension (PH), a condition marked by high pressure in blood vessels that…
Discussion
I never thought I’d make it to menopause. When I was growing up with cystic fibrosis (CF), living beyond young adulthood felt ambitious. Living to my mid-50s? That was science fiction. Yet here I am, facing hot flashes, brain fog, and sleepless nights — symptoms my CF care team…
Discussion
Last weekend’s weather forecast called for a wind chill factor of -35 F. We don’t usually experience such low temperatures here in Vermont, but this winter has been hitting hard. Before I serenade you with “Ice Ice Baby,” I want to take a trip down memory lane. I am so…
Kidney failure, when the kidneys no longer work on their own, is up to 29 times more common in people with cystic fibrosis (CF) than in the general U.S. population. That’s according to a recent study, which also identified diabetes and complications associated with lung transplant as the most…
Discussion
Over the years, I’ve spent a lot of time on the phone with various organizations involved in my healthcare. Probably the most frustrating thing is having to cycle from one person to another, who then directs me back to the first person I talked to. It seems like it’s only…
Trikafta safely improved lung function and reduced exacerbations in people with cystic fibrosis (CF) who started treatment after age 40, a study found. Some participants no longer had Pseudomonas aeruginosa or methicillin-resistant Staphylococcus aureus (MRSA), bacteria that are major contributors to CF lung disease. “Overall, our study…
Becoming educated and informed about cystic fibrosis is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your CF journey.
There is no cure for CF yet, but here you can find more information about current therapeutic approaches, as well as experimental treatments that are in the pipeline.
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