I love my job and find the work that I do fulfilling. It’s cool to be a pharmacist. That said, a major issue in healthcare right now is caregiver burnout. Providing round-the-clock care to someone who is sick can be exhausting. Hospitals have all kinds of initiatives designed to…

The next-generation triple-combination CFTR modulator Alyftrek can be safely given to children with cystic fibrosis (CF) as young as 2, according to results from a Phase 3 clinical trial. Findings from the trial also suggest that Alyftrek can improve CFTR activity in kids who switch from the first-generation…

The Cystic Fibrosis Foundation has awarded University of Michigan researchers $900,000 over two years to advance new treatments for cystic fibrosis (CF) — including genetic therapies that could offer novel options for people who do not benefit from existing medicines. “There are many different mutations that cause CF and several types of…

There is a version of me that exists only on paper: a list of diagnoses, a string of acronyms — CF, DIOS, CFRD, CKD3, DVT — that would mean nothing to a stranger and everything to the people who share them. At 55, I negotiate with…

Before my double-lung transplant nine years ago, I frequently struggled with daily living tasks, simple ones that most people have no problem doing on their own. I was in my early 20s, on my own, and living with cystic fibrosis, but in a strange middle ground. I wasn’t sick…

CFTR modulators for cystic fibrosis (CF) can change a child’s weight and nutrition needs, so each child should receive an individualized nutrition plan based on how they are growing, what they prefer to eat, and how they are responding to treatment, a survey study found. The study, “Parents’/Caregivers’…