Columns, Valiant Voice – a Column by Lara Govendo Bridging the Gap Between the CF and Transplant Communities

cystic fibrosis, News MS1819 Plus PERT Aids Digestion in People With Severe EPI, Trial Indicates

News Real-world Study Review: Kalydeco Improves Health Outcomes, Quality of Life

cystic fibrosis, News Orkambi Shows Long-term Safety, Efficacy in Children Ages 2-5

Columns, Life in the Grey – a Column by Bailey Anne Vincent Trust Me, You’re Too Good for This Column

News Q&A With JP Clancy, VP of Clinical Research at the CF Foundation

Columns, Mutations & Conversations - a Column by Tré LaRosa Searching for Motivation as I Struggle With Depression

News CF Alters Cells of Airways’ Lining, Including Certain Stem Cells

News Despite COVID Vaccinations, Caution Still Crucial for Transplant Recipients

News hMSCs Show Potential in Treating Chronic Lung Infections

News CF Awareness Film Festival Seeks Submissions

Columns, Victorious - a Column by Brad Dell Stillness Silences the Sound of Striving

News Test, Treat Lung Infections Early, Analysis Suggests

Columns, Life in the Grey – a Column by Bailey Anne Vincent How to Let Go of the Burden of Being a Burden

News Eloxx Adds Kalydeco to Ongoing Phase 2 Program Testing ELX-02

News CF Awareness Month Packed With Events, Online and Outdoors

Columns, Valiant Voice – a Column by Lara Govendo I’m Learning How to Better Manage My Stress

News CF Patients Cite Barriers to Physical Activity

News Kaftrio Opens to All CF Patients, 12 and Up, in EU With F508del Mutation

News PDE4 Inhibitors May Help Treat CF, Dry Mouth

Columns, Life in the Grey – a Column by Bailey Anne Vincent How Not to Be a Total Tool to Your Sick Friends, Who May Be Tools, Too

News Coalition Calls for Clear COVID-19 Vaccination Policies

News Lung Disease Evident in CF Patients in Study Despite ‘Normal’ Lung Function

News Resistance Training Favorably Affects Youngsters’ Heart Rate

News Study Will Assess How Diet, Exercise May Extend Lifespan

News KB407 In-human Trial Expected After Gene Therapy Found Safe in Animals

Columns, Life in the Grey – a Column by Bailey Anne Vincent I Swapped Health Routines With Another CF Patient for a Day

News Levels of Neutrophil Elastase May Help Predict Disease Severity in CF

Columns, Mutations & Conversations - a Column by Tré LaRosa Amid Mental Health Struggles, It’s Challenging to Work and Be Productive

News Assessing Treatment Burden, Complexity May Improve Therapy Adherence

Columns, Valiant Voice – a Column by Lara Govendo After Transplant, It’s OK to Struggle and Feel Grateful

News Bioengineer to Use $2M Grant to Study Gene Editing for CF

cystic fibrosis, News Claire’s Place Foundation Launches Website to Connect CF Community

News ‘Fun’ Sweat-measuring Sticker May Aid CF Diagnosis in Children

Columns, Life in the Grey – a Column by Bailey Anne Vincent Being a Parent Will Kill You (and Other Truths We Never Talk About)

cystic fibrosis, News CF Therapy’s Effectiveness With Rare Mutations Can Be Determined in Lab

News Respinova’s Pulsehaler Device Wins FDA OK

News Phase 2 Trial of BX004, Phage Therapy for Bacterial Infections, Advancing

cystic fibrosis, News Trial Testing Personalized Chest Physiotherapy System for Mucus Clearance

News OPTION 2 Trial Testing MS1819 for EPI Posts ‘Mixed’ Topline Results

Columns, Life in the Grey – a Column by Bailey Anne Vincent I’m Talking About My Latest Surgery, So Read This Column

cystic fibrosis, News Olgram Raises $1.77M to Develop New Class of Antibiotics Against Resistant Bacteria

News Eloxx Pharmaceuticals Acquires Zikani, Will Further CF Program and More

Columns, Valiant Voice – a Column by Lara Govendo After 5 Years and a Double-lung Transplant, I’m Back at Work

News One Walk/Run ‘Shuttle Test’ Captures Exercise Capacity in CF Children, Study Says

cystic fibrosis, News New LungQ Software Can Analyze CF Airway Problems in Seconds, Thirona Says

News Life Edit Will Use CFF Award to Explore Gene-editing Technology

Columns, Life in the Grey – a Column by Bailey Anne Vincent Unpopular Opinion: I Know What I Need, but the Healthcare System Doesn’t

cystic fibrosis Australia Approves Trikafta for Patients, 12 and Older, With Common Mutation

News CHMP Favors Kaftrio to Treat CF Patients in EU Starting at Age 12

Columns, Valiant Voice – a Column by Lara Govendo Every March, My Body Remembers the Trauma of Almost Dying

cystic fibrosis Trikafta Found Safe, Effective for Children Ages 6–11

cystic fibrosis CF Families in Ontario Send Video Plea for Access to Vertex Therapies

Columns, Victorious - a Column by Brad Dell My Life (and Death) Is More Than Statistics and Dead Dreams

News Enrollment Complete in Phase 2 Trial Testing MS1819-PERT Combo for EPI

Columns, Life in the Grey – a Column by Bailey Anne Vincent Is Gender Bias in Healthcare Shortening My Life?

cystic fibrosis, News Translate Bio’s MRT5005 Shows Safety and Tolerability at Multiple Doses in Trial

News Bacterial Fatty Acids May Play Role in Exacerbations in CF Children

cystic fibrosis Computer-designed Enzyme May Help to Kill P. aeruginosa in Biofilms

cystic fibrosis, News Bronchitol, Inhaled Powder for CF Mucus Clearance, Arrives in US

News Phase 2b Trial of MS1819, Yeast-based EPI for CF, Fully Enrolled

Columns, Life in the Grey – a Column by Bailey Anne Vincent Chadwick Boseman Is Still Dead, and We Need to Talk About It

cystic fibrosis, News CF Foundation Continues Free Access to Online Exercise Platform

News New Gene-editing Tool Can Reverse Specific CF-related Mutations

Columns, Valiant Voice – a Column by Lara Govendo I Wasn’t Prepared for Kidney Damage After My Double-lung Transplant

News CF Foundation’s Impact Grant Program Benefits Communities

News Analysis of GI Tract Finds High CFTR Gene Activity in Small Intestine

cystic fibrosis, News P. Aeruginosa, Other Bacteria Appear to Support Each Other in CF Lungs

Columns, Life in the Grey – a Column by Bailey Anne Vincent A Day in the Life of a Life That Can’t Live

News Oral Nutritional Supplements Linked to Better Vitamin Levels

Columns, Mutations & Conversations - a Column by Tré LaRosa Surveys Play a Critical Role in Improving the Patient Experience

News Better Nebulizer Hygiene Possible With Training for Patients, Caregivers

cystic fibrosis P. aeruginosa Resistance May Be Measure of Ability to Hijack CF Mucus

News Lonodelestat Safely Blocks Inflammatory Marker in CF Patients in Early Trial

Columns, Life in the Grey – a Column by Bailey Anne Vincent Having a Rare Disease Is a Lot Harder Than You Think

News University, CF Athlete Team Up for PhD Research Program

Columns, Path Unknown - a Column by Wendy Caroline After Trikafta, I’m Struggling to Redefine My Online Persona

News USACFA Accepting Applications for Scholarships in Arts, Other Fields

Columns, Valiant Voice – a Column by Lara Govendo Celebrating the Opportunity to See the World Through Rare Eyes

News Girls With CF Need Reproductive Counseling, Study Asserts

cystic fibrosis Pravibismane, Potential New Antimicrobial Class, Gets 2nd CFF Grant

Columns, Life in the Grey – a Column by Bailey Anne Vincent Why My Recent Happiness Makes Me Wonder If I’m Secretly Ableist

cystic fibrosis, News Potential CF Mutation, F1099L, Identified in 2 Minority Children in US

cystic fibrosis, News $1.4M Grant Supports Combo Approach to Antibiotic-resistant Infections

cystic fibrosis, News CFF Awards $2.17M to Support Trial of Inhaled NO for NTM Lung Infections

cystic fibrosis, News Research Examines CF Patients’ Susceptibility to COVID-19

News ELX-02 Restores CFTR Activity in Organoids With G542X Mutations, Study Finds

Columns, Life in the Grey – a Column by Bailey Anne Vincent I’m Thin and Sick, Which Gives Me Power to Be a Dangerous Bully

Columns, Victorious - a Column by Brad Dell How a Romance’s Death Led Me to Finding a More Powerful Love

cystic fibrosis, News UK Trial to Investigate Safety of Lowering CF Treatment Burden via Kaftrio

cystic fibrosis, News Bronchitol, Inhalation Powder for Mucus Clearance, Arriving in US

Columns, Valiant Voice – a Column by Lara Govendo Rumbling With the Transplant Decision

cystic fibrosis, News Organoids Accepted as Means to Targeted Therapy, Survey Reveals

cystic fibrosis, News Sinus Surgery Can Be Helpful for Those With Poorer Lung Function

Columns, Life in the Grey – a Column by Bailey Anne Vincent Denying My CF Is Making Me Hungry

cystic fibrosis, News Pilot Study Uses CRP, Calprotectin to Diagnose Pulmonary Exacerbations

Columns, Mutations & Conversations - a Column by Tré LaRosa How I’ve Learned to Use My Insecurity to My Advantage

cystic fibrosis, News CFRI’s ‘Embrace’ Virtual Retreat for Moms Set for Saturday, May 1

cystic fibrosis, News Vitamin D in High Daily Doses Doesn’t Appear to Help – or Do Harm

cystic fibrosis, News Phage Therapy Clears Resistant Infection in CF Lung Transplant Patient