A long list of medical conditions can be considered invisible because others can’t see their effects. Those of us living with cystic fibrosis (CF) understand the idea well since we commonly hear “You look well!” or “You don’t look sick,” even from people who know we have the…
Read more
Almost two years of treatment with Kaftrio (elexacaftor, tezacaftor, and ivacaftor) did not affect liver stiffness — an indicator of liver fibrosis — in adults with cystic fibrosis (CF), according to a recent study in the U.K. However, patients with elevated markers of liver stiffness before starting on…
The lungs of people with cystic fibrosis (CF) harbor stem cells with a distinctive proinflammatory genetic signature, a new study shows. Data indicate that the proinflammatory genetic profile of these stem cells is not affected by treatment with CFTR modulators, a class of medications that can boost the…
“I don’t understand how you were laughing when all I wanted to do was cry,” my sister said, referring to the time before my double-lung transplant six years ago. In March 2017, I went into respiratory failure due to complications of cystic fibrosis (CF). I was transported to…
Columnist Lara Govendo shares how an inner sense of joy and peace has grounded and guided her through life with CF and transplant.
Visit the Cystic Fibrosis News Today forums to connect with others in the CF community.
Want to stay up to date on all the latest on cystic fibrosis? Click the link below to find more news and information.
Becoming educated and informed about cystic fibrosis is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your CF journey.
There is no cure for CF yet, but here you can find more information about current therapeutic approaches, as well as experimental treatments that are in the pipeline.
Get regular updates to your inbox.
