Before my double-lung transplant nine years ago, I frequently struggled with daily living tasks, simple ones that most people have no problem doing on their own. I was in my early 20s, on my own, and living with cystic fibrosis, but in a strange middle ground. I wasn’t sick…
Discussion
CFTR modulators for cystic fibrosis (CF) can change a child’s weight and nutrition needs, so each child should receive an individualized nutrition plan based on how they are growing, what they prefer to eat, and how they are responding to treatment, a survey study found. The study, “Parents’/Caregivers’…
Discussion
After my late daughter, Jasmine, turned 17, something new began to grow alongside the medical routines that had shaped her life with cystic fibrosis (CF). Every morning still started with the bronchial drainage machine loosening the mucus in her lungs. Nebulizer treatments followed, and pancreatic enzymes remained…
Discussion
Children with cystic fibrosis (CF) on Kaftrio maintained stable lung function over one year despite reducing their use of hypertonic saline and other airway-clearance treatments, a study shows. The reduction was accompanied by fewer days of antibiotic use. Respiratory symptoms and airway bacteria also remained stable, suggesting that…
Discussion
If you live with cystic fibrosis (CF), chances are you already know more about fall risks than most people twice your age. I certainly do, even six years after I had a double-lung transplant. When people think of CF, they usually focus only on the lungs. Most of this…
Discussion
Sionna Therapeutics is planning a proof-of-concept Phase 2a clinical trial to test a combination of two experimental treatments for cystic fibrosis (CF). The trial, dubbed AscenSION CF, will enroll adults who carry two copies of F508del, the most common CF-causing mutation, and who are taking the approved…
Discussion
Note: This column describes the author’s experiences with tacrolimus and prednisone. Not everyone will have the same response to treatment. Consult your doctor before starting or stopping a therapy. I’ve been dealing with a different and unexpected symptom these past eight months, one that’s challenged my pain threshold on a…
Becoming educated and informed about cystic fibrosis is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your CF journey.
There is no cure for CF yet, but here you can find more information about current therapeutic approaches, as well as experimental treatments that are in the pipeline.
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