Many people with cystic fibrosis (CF) struggle with steep healthcare bills, but those who hesitate to discuss money with their doctors face the highest barriers to getting financial help, a U.S. survey has found. Patients often keep quiet simply because they do not know what questions to ask or…
Discussion
For seven years, my Medicare prescription drug plan, Aetna’s SilverScript, has been one of the few things in my life I haven’t had to think much about. It simply worked. This fall, I learned that it will no longer be available in my state in 2027. Just like that, a…
Discussion
Note: This column describes the author’s own experiences with various alternative therapies. Not everyone will have the same response. Consult your doctor before starting or stopping a therapy. I’ve used alternative therapies my whole life to fill the gaps in Western medicine. Through trial and error and changes in my…
Discussion
People with cystic fibrosis (CF) and their caregivers want their CF care teams to help with school needs, including absences, accommodations, and infection control, according to a U.S. survey. The survey revealed common issues “that warrant targeted and proactive attention to support academic achievement and wellbeing,” the researchers wrote.
Discussion
About 40% of people with cystic fibrosis (CF) taking CFTR modulators, a class of medication used to treat the genetic disorder, consider inhaled medicines less important after starting these meds, according to a U.K. survey. Many people attributed this change to improved health, fewer respiratory symptoms, or a lack…
Discussion
Adding antifungal therapy to oral corticosteroids was not associated with additional benefits for people with cystic fibrosis (CF) being treated for allergic bronchopulmonary aspergillosis (ABPA), a large U.S. real-world study found. ABPA is a lung condition in which the immune system overreacts to the fungus Aspergillus fumigatus, causing allergic…
Discussion
After living with cystic fibrosis for nearly four decades, I’ve learned valuable lessons about support people. Chronic illness is not for the faint of heart, and not everyone can hang out in the uncertainty with me. I’m so grateful for those who can, and who have shown me what…
Becoming educated and informed about cystic fibrosis is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your CF journey.
There is no cure for CF yet, but here you can find more information about current therapeutic approaches, as well as experimental treatments that are in the pipeline.
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