“Why do you keep talking about what you’ve been through?” Yes, I’ve actually been asked this before. No, I won’t stop talking about what I’ve lived through. It’s not for my own sake, but because people continue reaching out to me to say that sharing my story helps them feel…

Gene therapy using circular forms of DNA called plasmids may help treat lung disease in cystic fibrosis (CF), based on early lab studies, regardless of the disease-causing gene mutation, a study suggests. Optimized plasmids boosted production of the fully mature CFTR protein, which is missing or not working properly…

During the summer of 2001, when my late daughter, Jasmine, was 9, she required a two-week hospital stay due to an acute pulmonary exacerbation — a complication of her cystic fibrosis (CF). Life was never the same after that. When I finally brought her home, the relief was…

Trikafta was associated with significant reductions in healthcare use, including hospitalizations related to cystic fibrosis (CF) complications affecting organs and systems outside the lungs, according to an insurance claims analysis. “Results of this study suggest a multisystemic benefit of [Trikafta] therapy with reductions in extrapulmonary…

In people with cystic fibrosis (CF), the timing of organ transplant — lung, liver, or both — relative to infection with the SARS-CoV-2 virus that causes COVID-19 did not affect the risk of severe outcomes, according to a large international study. Patients with poorer lung…

Five years ago, I got the call. If you’re in the cystic fibrosis (CF) community and have had a double-lung transplant, you know the weight of those words. You know how the terror and the relief collapse into a single moment after you hang up the phone. You…