cystic fibrosis, News Microbe DNA Discovery May Lead to Noninvasive Test for CF Infections

Columns, Life in the Grey – a Column by Bailey Anne Vincent I’m a Dancer but I Can’t Walk Right Now

Columns, Victorious - a Column by Brad Dell How Dying Taught Me to Live

cystic fibrosis, News OneLegacy Video Series Promotes Organ, Tissue Donation

cystic fibrosis, News Symdeko and Orkambi Seen to Also Ease Inflammation in CF Patients

cystic fibrosis, News Young CF Patients in UK Receive Machines for At-home Lung Monitoring During Pandemic

cystic fibrosis, News, syndicated Video Games Connect Chronically Ill Children Isolated at Home, Hospital

Columns, Life in the Grey – a Column by Bailey Anne Vincent Has the Face of Cystic Fibrosis Changed Forever?

cystic fibrosis, News Growing Lung Bacteria in Labs May Predict Antibiotics’ Effectiveness More Accurately

cystic fibrosis, News Antibiotic-resistant S. Maltophilia Spread Worldwide, Carry Diverse Genes, Study Reports

cystic fibrosis, News How Trefoil Proteins Act to Thicken Mucus Detailed in Study

Columns, Valiant Voice – a Column by Lara Govendo The Story Behind Awareness

cystic fibrosis, News CF Awareness Month Activities Varied, But Virtual, This Year

cystic fibrosis Phase 1b Study of CB-280 for CF Chronic Lung Infections May Open by September

Columns, Life in the Grey – a Column by Bailey Anne Vincent How to Be Forgotten in 800 Words or Less

Columns, Victorious - a Column by Brad Dell Stuck Between Nostalgia and Reality

cystic fibrosis, News Gene Therapy, KB407, Seen to Restore CFTR Protein in Cell Studies

cystic fibrosis, News Researchers Develop Promising Antibiotic Molecule for Drug-resistant Lung Infections

cystic fibrosis Trikafta Very Effective CF Therapy, But Still Too Costly, ICER Reports

cystic fibrosis, News CF Foundation, Beam Partner to Offer Free Online Exercise Classes

cystic fibrosis AzurRx BioPharma Will Conduct Phase 2b Trial of MS1819 at TDN Clinical Sites

Columns, Life in the Grey – a Column by Bailey Anne Vincent Stop Making Yourself Sick About Other Sick People

cystic fibrosis, News COVID-19 Outcomes in CF Patients Similar to General Public, Study Suggests

cystic fibrosis, News CHMP Favors Expanding Kalydeco Label to Include Young Children With R117H Mutation

Columns, Valiant Voice – a Column by Lara Govendo The Counseling Connection

cystic fibrosis, News Vertex Joins with Affinia Therapeutics to Develop Gene Therapies for CF

cystic fibrosis Orkambi Helps to Promote Glucose Tolerance in CF Patients, Study Finds

Columns, Life in the Grey – a Column by Bailey Anne Vincent Help! Quarantine Is Making Me Less Compliant

cystic fibrosis, News Estrogen in Birth Control Pills May Affect Bone Health of CF Patients

cystic fibrosis, News Lung Clearance Index Best Judge of Nighttime Hypoxemia, Study Suggests

cystic fibrosis, News Recommendations Issued About Managing Chronic Disease in Children

cystic fibrosis, News Use of Vertex’s Orkambi and Symdeko To Be Reimbursed in Switzerland

cystic fibrosis Zikani Raises $7.5M to Support Work into Therapies for Nonsense Mutations

Columns, Life in the Grey – a Column by Bailey Anne Vincent I Wish I Was Sheltered in Place with Anyone but Me

cystic fibrosis New Capsules Being Readied for Trial of Digestive Enzyme in CF Patients with EPI

cystic fibrosis, News Staphylococcus Aureus in CF Airways Change With Age, Antibiotic Use, Study Says

cystic fibrosis, News Protein Called TAS2R38 Linked to Respiratory Tract Complications in CF

Columns, Valiant Voice – a Column by Lara Govendo The Transformation of Transplantation

cystic fibrosis, News Case Report Cites IDPN as Nutritional Tool in CF Patients with Kidney Disease

cystic fibrosis, News Planned CHOICES Trial in Rare CF Mutations Given Regulatory Support

Columns, Life in the Grey – a Column by Bailey Anne Vincent I Am Not a Pre-existing Condition

Columns, Victorious - a Column by Brad Dell Maybe I’m Not Fine. Are You?

cystic fibrosis Arrowhead Asks to Open Phase 1/2 Trial into Inhaled RNAi Therapy

Columns, Path Unknown - a Column by Wendy Caroline The US Healthcare System Desperately Needs Change

cystic fibrosis Trial of Inhaled Treatment for P. aeruginosa Infections Enrolling CF Patients

Becoming Visible – a Column by Elizabeth Rogers, Columns Finding My Zen in Animal Crossing

cystic fibrosis, News AbbVie CF Scholarship Program Open for 2020-21 School Year

cystic fibrosis, News Kalydeco’s Use for 1 Year or More Seen to Aid Body Mass and Lung Capacity

cystic fibrosis, News More Training Needed in CF End-of-life Care, Small UK Survey Shows

Columns, Life in the Grey – a Column by Bailey Anne Vincent How Essential Am I?

cystic fibrosis, News Case Report Describes Unusual CF Symptoms That Made Diagnosis Difficult

Columns, Path Unknown - a Column by Wendy Caroline How Isolation Has Brought Calm to My Life

cystic fibrosis NORD’s Advice on COVID-19: You’re Stronger Than You Think

cystic fibrosis, News CF Specialists Need More Education on Current Lung Transplant Referral Guidelines, Study Finds

cystic fibrosis, News Enrollment Stopped in 2 Trials of Treatments for CF Lung Infections

cystic fibrosis, News ReCode Therapeutics Raises $80M to Boost Development of CF Therapies

cystic fibrosis, News MRT5005 Gets FDA Rare Pediatric Disease Status as Adult Trial Faces Delay Due to COVID-19

Columns, Life in the Grey – a Column by Bailey Anne Vincent I’m Holding a Funeral for My Former Self

cystic fibrosis Vertex Assures Supply of CF Therapies, But COVID-19 Likely to Affect Trials

Columns, Path Unknown - a Column by Wendy Caroline Trikafta Therapy Prompted the Most Unexpected Emotions

cystic fibrosis Pulmonary Fibrosis Patient Spearheads Lung Transplant Foundation to Help Others

cystic fibrosis, News Eloxx Pauses Phase 2 Trials of ELX-02 in Cystic Fibrosis Due to COVID-19

Becoming Visible – a Column by Elizabeth Rogers, Columns I’m Worried About Coughing in Public

cystic fibrosis NORD Partners with ‘Sing Me a Story’ for July 18–20 Living Rare Forum

cystic fibrosis, News Problems with CFTR Protein in Platelets Linked to Lung Inflammation, Injury

cystic fibrosis, News Cells Grown in Artificial Organs May Be Most Viable for Lung Disease Research

Columns, This Lung Life - a Column by Ella Balasa How High Risk for COVID-19 Has Shaped My Perspective

cystic fibrosis, News Pulmonary Artery Measurements Used to Identify Pulmonary Hypertension in CF Patients

Columns, Life in the Grey – a Column by Bailey Anne Vincent We Need to Expand Our Perspective of the Coronavirus

Columns, Victorious - a Column by Brad Dell Some Calm Thoughts Amid the COVID-19 Pandemic Pandemonium

cystic fibrosis, News COVID-19 Emergency Fund Launched to Support Cystic Fibrosis Community

Columns, Path Unknown - a Column by Wendy Caroline My Perspective on COVID-19 as a CF Patient and a Restaurant Manager

cystic fibrosis, News Azithromycin Slows Lung Function Decline in CF Patients with P. aeruginosa, Study Says

News Global Rare Disease Group’s Focus: 1,000 New Therapies by 2027, Despite COVID-19

cystic fibrosis, News Armata Receives Up to $5M From CF Foundation to Develop Phage Therapy AP-PA02

Columns, Valiant Voice – a Column by Lara Govendo Hanging by a Hope During the Coronavirus Crisis

cystic fibrosis, News Student Project Aims to Make CF Physiotherapy a Game

cystic fibrosis, News West Virginia University Grad Student Assessing CF Teens’ Nutrition

Columns, Life in the Grey – a Column by Bailey Anne Vincent I Don’t Fit the Description of What CF Is ‘Supposed to Be’

cystic fibrosis, News Canadians Lobby Government to Reassess Proposed Regulations Affecting Access to Trikafta

cystic fibrosis, News New CRISPR Tool Fixes CFTR Mutations in CF Patients’ Stem Cells, Study Finds

Becoming Visible – a Column by Elizabeth Rogers, Columns My Pets Help Me Deal with Cystic Fibrosis

cystic fibrosis, News Bonnell Foundation, Run by Michigan Mom of 2 CF Girls, Aims to Raise $1M

cystic fibrosis, News Vertex Says It Can Deliver CF Medications Worldwide Despite COVID-19 Outbreak

cystic fibrosis, News CF Families Advised to Take Preventive Measures to Avoid Coronavirus

Columns, Life in the Grey – a Column by Bailey Anne Vincent I Tried Fringe Science and I Don’t Regret It

Columns, Victorious - a Column by Brad Dell The Cure List: Dreams Achieved and Dreams to Come

News Nanoparticles with Plant Sterols May Aid Gene Therapy for CF

Columns, Mutations & Conversations - a Column by Tré LaRosa Words of Wisdom to My Younger Self

cystic fibrosis, News Topline Phase 2 Trial Data on ELX-02 Expected in First Half of 2020, Eloxx Says

cystic fibrosis, News Pediatric Rare Disease Therapies Increase, But Most Repurposed, Study Finds

Columns, Valiant Voice – a Column by Lara Govendo Welcome to ‘Valiant Voice,’ a New Column About Life with CF

cystic fibrosis, News Contraception, Pregnancy Become Major Issues as CF Patients Live Longer

Columns, This Lung Life - a Column by Ella Balasa Reflecting on the Passage of Time

News Video: BioNews’ Social Media Campaign Highlights #WhatMakesMeRare

cystic fibrosis, News Ultrasound Patterns May Predict CF Liver Disease, Study Suggests

News Respiratory Infection Candidate AB569 Kills Resistant Bacteria, Study Shows

News Elsevier Opens Books, Review Articles to Rare Disease Researchers Starting Feb. 29

Columns, Mutations & Conversations - a Column by Tré LaRosa We Need to Change Our Language When Discussing Mental Health

News FDA Grants Fast Track Status to Translate Bio’s RNA-Based Therapy MRT5005