People with cystic fibrosis (CF) in Canada are a step closer to gaining public access to Alyftrek, a once-daily triple-combination therapy approved for patients ages 6 and older with at least one mutation that’s responsive to the therapy. Vertex Pharmaceuticals, which markets Alyftrek, has signed a letter…
Discussion
Most days, the mental load begins before my feet hit the floor. The first thoughts of my day are rarely about coffee or schedules. I’m already running through a quiet checklist: medications and other treatments, upcoming appointments, symptoms, exposure risks, and more. I’m listening — not just hearing,…
Discussion
Arcturus Therapeutics is partnering with Thermo Fisher Scientific to support the development of ARCT-032, Arcturus’ experimental inhaled therapy for cystic fibrosis (CF). Under the agreement, Thermo Fisher will provide Arcturus with manufacturing and clinical trial support for a planned Phase 3 study testing ARCT-032. And if the…
Discussion
I used to be the woman who could do it all. For more than 20 years — from my early 20s into my mid-40s — I worked as a nurse, initially on a cardiac telemetry unit, where I watched heart rhythms shift in real time to catch the small changes…
Discussion
I used to think that I needed to wait until my health was perfect before I could do all the things I wanted to do. I’d say, “Once I get this surgery done … ,” or, “Once my lung function cooperates … ,” or, “When I feel better … ”…
Discussion
Trikafta (elexacaftor, tezacaftor, and ivacaftor) may improve blood sugar control in people with cystic fibrosis (CF), including those with CF-related diabetes, or CFRD, a study showed. After about one year of treatment, patients with CFRD showed clinically meaningful reductions in glycated hemoglobin (HbA1c), a measure of average blood sugar…
Discussion
Holidays used to sneak up on me. I’d barely notice the calendar flipping over to June. Maybe I’d see a sign in the grocery store or a rack of “World’s Best Dad” mugs by the checkout, but it never meant much. Father’s Day was just another Sunday. I was never…
Becoming educated and informed about cystic fibrosis is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your CF journey.
There is no cure for CF yet, but here you can find more information about current therapeutic approaches, as well as experimental treatments that are in the pipeline.
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