cystic fibrosis, News Moderna, Vertex Team Up to Develop Gene-editing Delivery Techniques

cystic fibrosis, News For 7th Year, Bike 2 Breathe Hits Roads in Support of Those With CF

News Case Report Describes Unconventional Method for Delivering PERT in Premature CF Baby

Columns, Life in the Grey – a Column by Bailey Anne Vincent I’m Having Surgery (and Other Clickbait Headlines)

Columns, Victorious - a Column by Brad Dell Have Our Backs and Push Against Ableism With Us

cystic fibrosis, News EMA Validates Application Seeking Expansion of Kaftrio Approval

cystic fibrosis, News Vertex to Seek Expanded FDA Approval for Trikafta After Positive Child Safety Data

Columns, Valiant Voice – a Column by Lara Govendo How to Keep Your Growth Game Strong

cystic fibrosis, News Aridis, FDA Agree to Simplify AR-501 Trial Design Based on Positive Safety Data

cystic fibrosis, News Savara Closing Trial of Molgradex in Treating NTM Lung Infections in CF Patients

Columns, Life in the Grey – a Column by Bailey Anne Vincent Listening to Both Sides of the Mask Debate

News $10M Grants Will Fund New Research Seeking to Improve Transplant Outcomes

cystic fibrosis, News CF Patients With Poorer Lung Function at Greater Risk of Premature or Smaller Baby, Study Shows

cystic fibrosis, News New Technology Could Improve Detection of Biomarkers for CF, Other Diseases

cystic fibrosis, News Vertex Seeks to Expand FDA Approval of CFTR Modulators to Include More Mutations

Columns, Life in the Grey – a Column by Bailey Anne Vincent Advance Directives, Legacy, and Worrying Myself Sick

Columns, Victorious - a Column by Brad Dell Interventional Treatment for My Social Sickness

cystic fibrosis, News CFF Funding Will Further ContraFect’s Research Into Alternative for Antibiotics

cystic fibrosis, News, syndicated Same But Different Photo Contest Celebrates People With Rare Diseases

cystic fibrosis, News UK Registry Finds CF Community Living Longer, Becoming More Diverse

Columns, Valiant Voice – a Column by Lara Govendo Transplant Anniversaries Acknowledge Trauma and Triumph

cystic fibrosis, News Trikafta’s Arrival in Canada Could Cut CF Deaths by 15% Over 10 Years, Study Suggests

cystic fibrosis, News Proteostasis Therapeutics Merges With Yumanity Therapeutics

cystic fibrosis, News CF Foundation Awards Nearly $15 Million to Groups Researching Infections and CF

Columns, Life in the Grey – a Column by Bailey Anne Vincent A New Way to Hurt: Are You ‘Healthist’?

cystic fibrosis, News Muscles of CF Youth Consume Oxygen Faster Than Peers, Affecting Exercise

cystic fibrosis, News Vertex Triple Combo, Kaftrio, Approved for CF Patients in EU With F508del Mutation

cystic fibrosis, News NuvoAir Home Platform Classified as Class Im Medical Device

cystic fibrosis, News FDA Grants Orphan Drug Designation to KB407, Potential Gene Therapy for CF

cystic fibrosis Dosing Begins in Phase 1 Trial of ETD002, Potential CF Inhalation Therapy

Columns, Life in the Grey – a Column by Bailey Anne Vincent The Painful Truth About Being a Sick Parent

Columns, Victorious - a Column by Brad Dell How to Gain Weight: 7 Less Traditional Methods

cystic fibrosis, News Work Proudly Program to Help 15 CF Patients or Caregivers Find Flexible Jobs

cystic fibrosis, News First Patients Enrolled in Phase 2b Trial Testing MS1819 for Exocrine Pancreatic Insufficiency in CF

Columns, Valiant Voice – a Column by Lara Govendo A Giant Win After a Big Loss

News MS1819-PERT Combo Shows Benefits for CF Patients With EPI in Phase 2 Trial

cystic fibrosis, News First Participants Dosed in Early Clinical Trial of Inhaled Therapy ARO-ENaC

cystic fibrosis, News Cystic Fibrosis Ireland Establishes Grants for Personal Protective Equipment

Columns, Life in the Grey – a Column by Bailey Anne Vincent Does Everyone With CF Have Body Dysmorphia?

cystic fibrosis, News Research May Explain Why Different CF Bacteria Infect at Certain Ages

cystic fibrosis, News CF Foundation Invests $20M to Accelerate CF Programs in Partnership With Longwood Fund

cystic fibrosis, News Screening Finds Fewer Newborns in Ireland With CF Than Expected

cystic fibrosis ELX-02, Potential Therapy for CF Nonsense Mutations, Named Orphan Drug

cystic fibrosis, News Scottish Government and Vertex Strike Deal for Access to Kaftrio

Columns, Life in the Grey – a Column by Bailey Anne Vincent Putting Body Image Issues Behind Me: A #ScarPositive Story

cystic fibrosis, News Higher Prevalence of Oral Candida Fungus Found in CF Patients

Columns, Path Unknown - a Column by Wendy Caroline An Open Letter to the Chronically Ill Professional

cystic fibrosis, News Northern Ireland Reaches Deal With Vertex for Access to Kaftrio

cystic fibrosis, News Real-world Impact of Trikafta Will Be Evaluated in RECOVER Study

cystic fibrosis, News Thread-based Wearable Device May Help Diagnose, Monitor CF and Other Conditions

cystic fibrosis, News CFF Impact Grants Go to 4 Online Programs Engaging Patients, Community

Columns, Life in the Grey – a Column by Bailey Anne Vincent Diagnosis Privilege Can Be a Form of Discrimination

cystic fibrosis, News CF Canada Honors thyssenkrupp Elevator Canada with National Champion Award

cystic fibrosis, News AzurRx Begins Phase 2b Trial Testing MS1819 for Pancreatic Insufficiency in CF Patients

Columns, Valiant Voice – a Column by Lara Govendo Plan A Didn’t Work — Now What?

cystic fibrosis, News CF Patients in Wales Will Have Access to Kaftrio Under New Deal

cystic fibrosis, News ContraFect Given Up to $18.9M to Advance CF-370 for P. aeruginosa Infections

cystic fibrosis, News Inflammatory Markers May Help Predict Exacerbations in Children with CF

Columns, Life in the Grey – a Column by Bailey Anne Vincent Why Am I So Ashamed of Chronic Pain?

cystic fibrosis, News Clinical Trial Data Support Efficacy of Trikafta in People with One F508del Mutation and One Other Mutation

cystic fibrosis, News Urine Marker Could Help in Screening for CF Lung Infections, Study Finds

cystic fibrosis, News Vav3 Protein Creates ‘Docking Station’ for Bacteria, Leading to Lung Infections, Scientists Discover

cystic fibrosis, News New Technology Offers Potential for Faster, More Accurate CF Diagnosis

cystic fibrosis, News Dosing Starts in Trial of Oral Treatment, CB-280, for Chronic Lung Infections

Columns, Life in the Grey – a Column by Bailey Anne Vincent I Need to Give Up on Giving Up

Columns, Victorious - a Column by Brad Dell How I Failed to Cheat Death

cystic fibrosis, News Number of Adults With CF Likely to Grow by 28% Over Decade, UK Study Says

News NIH Grant Supports Computer Modeling of Bacteria’s Behavior in Mucus

Columns, Valiant Voice – a Column by Lara Govendo I Don’t Always Wear the Badge of Bravery

News Renovion’s ARINA-1 Shows Promise in Clearing Mucus, Cell Study Finds

News Rage Biotech Opens With Goal of Treating CF and Similar Lung Diseases

News Orkambi Benefits CF Patients Across Levels of Lung Health, Study Finds

Columns, Life in the Grey – a Column by Bailey Anne Vincent I Don’t Want to Die Because You Don’t Like Masks

News Common P. aeruginosa Mutations May Lead to Biofilm Growth, Bacterial Persistence, Study Says

cystic fibrosis Women With CF Use Combined Hormonal Contraceptives More Than Other Methods, Study Reports

News NuvoAir Home Monitoring System Bolsters Telemed Use in CF, Survey Finds

cystic fibrosis, News NHS, Vertex Strike Deal to Make Kaftrio Available in England

Columns, Life in the Grey – a Column by Bailey Anne Vincent We Need Better Representation in the CF Community

Columns, Victorious - a Column by Brad Dell I’m an Adrenaline Addict, but It’s Time to Minimize Risks

cystic fibrosis, News COVID-19 Source of Anxiety for Women With CF Children, Survey Finds

cystic fibrosis, News CHMP Gives Positive Opinion to Vertex’s Triple Combination Therapy Kaftrio

Columns, Valiant Voice – a Column by Lara Govendo I’m No Longer Resisting a Rest

cystic fibrosis, News Drying Does Not Clear Nebulizers of NTM Bacteria, Study Finds

cystic fibrosis, News Biofilm ‘Channels’ May Offer Better Way of Treating CF Bacterial Infections

cystic fibrosis, News Healthy Volunteers Do Well in AR-501 Trial for Chronic Lung Infections

Columns, Life in the Grey – a Column by Bailey Anne Vincent Cystic Fibrosis and Herpes Are Not the Same Thing

cystic fibrosis, News Renovion Raises $8.1M to Advance Lung Inflammation, Mucus Treatment

cystic fibrosis, News, syndicated Alexion Charitable Foundation Giving $1.1M to Assist Rare Disease Community During Pandemic

cystic fibrosis, News Eloxx Resumes Enrollment in Phase 2 Trial of ELX-02 in Europe, Israel

cystic fibrosis, News 4DMT Receives Up to $14M from CFF for Development of Customized Gene Carrier

cystic fibrosis, News Poll Results Highlight Lack of Awareness About Cystic Fibrosis in the UK

cystic fibrosis, News Second-hand Smoke Affects Metabolism in Infants and Children with CF, Study Finds

Columns, Life in the Grey – a Column by Bailey Anne Vincent Death Is Not a Good Diet Plan

Columns, Victorious - a Column by Brad Dell Finding Fate in the Fallout

cystic fibrosis, News 3rd Annual CF FamilyCon, Free and Online, Starts Thursday

cystic fibrosis, News New Combination of CFTR Mutations Found in Chinese Siblings With CF

Columns, Valiant Voice – a Column by Lara Govendo How I Regained My Independence During the Pandemic

cystic fibrosis, News England Using Home Spirometry Kits to Cut Down on Hospital Visits

cystic fibrosis, News Kalydeco Approved in Europe to Treat Children with R117H Mutation

News Coalition Will Address Racial Disparities in Rare Disease Communities