cystic fibrosis ‘Rare Barometer’ Program Helps Eurordis Shape EU Rare Disease Policy

Columns, Mutations & Conversations - a Column by Tré LaRosa How to Overcome the Scourge of Confirmation Bias

cystic fibrosis, News Eluforsen Found to be Safe for Adults with Cystic Fibrosis Caused by F508del Mutation, Study Reports

31 days of CF, News 31 Days of CF: Maddie’s Story

cystic fibrosis, News Bronchitol, Inhalation Powder for CF Patients, to Enter Swiss Market

cystic fibrosis, News Murepavadin Antibiotic Well-tolerated by Animals Infected with Pseudomonas Aeruginosa, Preclinical Data Show

cystic fibrosis, News Inhaled Imipenem/cilastatin an Alternative Treatment for Lung Infection in Children with CF, Case Reports Show

Columns, Life in the Grey: a Column by Bailey Anne Vincent To the Child I’ll Never Have

cystic fibrosis, News Kalydeco Restored Pancreatic Function in Boy with CF, Case Report Suggests

Columns, Mutations & Conversations - a Column by Tré LaRosa Science Literacy Is a Necessity in the CF Community

News Candidate Therapy ELX-02 Shows Positive Results in Preclinical and Phase 1 Studies

Becoming Visible by Elizabeth Rogers, Columns Slammed by Side Effects: The Downside of Antibiotics

cystic fibrosis, News Inaugural Clairity Ball Celebrating the Life of Claire Wineland Set for June 29

Columns, Work that Works - a Column by Elly Aylwin-Foster Full Disclosure: A Tale of Professional Rejection

cystic fibrosis, News Investigational CFTR Amplifier PTI-428 Receives Orphan Drug Status in Europe

cystic fibrosis, News Manuka Honey Could Be Used to Treat CF Lung Infection P. Aeruginosa, Study Suggests

Columns, Victorious - a Column by Brad Dell Screwed Over Expectations, Pura Vida, and a New Normal

cystic fibrosis, News Phage Therapy May Help Resolve Multidrug-resistant Pseudomonas Airway Infections, Case Report Suggests

Columns, Mutations & Conversations - a Column by Tré LaRosa I’m Learning to Prioritize My Mental Health While Working Full-time

cystic fibrosis, News Vertex Plans to Seek Approval of VX-445 Triple Combo in US and Europe

Columns, Life in the Grey: a Column by Bailey Anne Vincent I Rely on Self-help to Treat My Health Paranoia

cystic fibrosis, News Nitric Oxide Shows Positive Signs in Clearing Hard-to-treat Mycobacterium Lung Infections in CF

Columns, Work that Works - a Column by Elly Aylwin-Foster Work, Motherhood, and CF: Can You Have It All?

cystic fibrosis, News AffloVest Giveaways Helping to Support CF and Legacy Foundation, International Biophysics Says

cystic fibrosis, News ABBV-2222 Partially Corrects CFTR Function in CF Patients, Phase 2 Trials Show

cystic fibrosis, News AzurRx Reaches Enrollment Goal in Trial of Therapy for CF Patients with EPI

cystic fibrosis Agency Unveils RaDaR to Help Patient Groups Develop Rare Disease Registries

cystic fibrosis, News Kalydeco’s Safety and Benefits Maintained Long-term in 2-to-5-year-olds with CF, Phase 3 Trial Shows

31 days of CF, News 31 Days of CF: William’s Story

Columns, Work that Works - a Column by Elly Aylwin-Foster The Work of ‘Project Fix Me’ Is Never Done

cystic fibrosis, News Mutation in CFTR Gene Affects the Body’s Inner Clock, Mouse Study Suggests

31 days of CF, News 31 Days of CF: Leila’s story

cystic fibrosis, News Specific Peptide May Lower Antibiotic Resistance of P. aeruginosa Bacteria, Study Reports

31 days of CF, News 31 Days of CF: Sarah’s Story

cystic fibrosis, News Incidence of CF-related Diabetes Stable in Pediatric CF, Canadian Study Finds

Columns, Mutations & Conversations - a Column by Tré LaRosa Find Out How You Fit into the CF Community

cystic fibrosis, News Vivus Announces Partnership with HarborPath to Make Pancreaze Available to Uninsured Patients

Columns, Life in the Grey: a Column by Bailey Anne Vincent What Happens When I Can’t Afford the Care I Need to Stay Alive?

Becoming Visible by Elizabeth Rogers, Columns There Are Many Ways to Participate in Cystic Fibrosis Awareness Month

cystic fibrosis Rare Diseases Constitute a ‘Public Health Issue,’ NCATS Director Warns

Columns, Work that Works - a Column by Elly Aylwin-Foster A Healthy Ambition: Leadership with Illness

cystic fibrosis, News Bike Rides, Walkathons, Other Fundraising Events Mark CF Awareness Month

cystic fibrosis, News Poor Oxygen Conditions May Promote P. aeruginosa Infection Over Other Pathogen in CF, Study Suggests

cystic fibrosis, News Early, Rapid BMI Increase May Affect Overall Growth of CF Children, Study Suggests

Columns, Victorious - a Column by Brad Dell In Cystic Fibrosis Awareness Month, I Look Back to Anticipate the Future

cystic fibrosis, News Phages, Viruses that Attack Bacteria, Are a Potential Therapy Against Infections, Case Report Suggests

cystic fibrosis, News Trial of Nebulized CF Candidate Therapy Completes Single-ascending Dosing

Columns, Life in the Grey: a Column by Bailey Anne Vincent Being Sick Is Making Me Crazy (But Don’t Tell Anyone)

cystic fibrosis, News ABO-401 Gene Therapy Shows Potential to Restore CFTR Function in Preclinical Study

News P. aeruginosa Variants Contribute to Increased Local Lung Inflammation in CF Patients, Study Reveals

Columns, Work that Works - a Column by Elly Aylwin-Foster Starting a Business Takes Grit and Determination When You Have CF

cystic fibrosis, News NFL’s Boomer Esiason Will Be Keynote Speaker at NASP Annual Meeting

cystic fibrosis Motif Bio, Lamellar Agree to Test New Therapeutic Combo for CF Lung Infections

Columns, Mutations & Conversations - a Column by Tré LaRosa How to Love Your Body, Even If It’s Genetically Abnormal

cystic fibrosis, News Researcher Will Use $3.3M NIH Grant to Develop ‘One-Size-Fits-All’ Inhaled Therapy

Columns, Life in the Grey: a Column by Bailey Anne Vincent Help! I’m Haunted by Old Photos of My Health

cystic fibrosis Emily’s Entourage to Host 4th Annual EENY: Ultra Violet CF Fundraiser May 4

Columns, Las Cosas de la Vida - a Column by Luisa Palazola Being Brave and Making a Meaningful Connection

Columns, Work that Works - a Column by Elly Aylwin-Foster Not All Work Is Paid: Reflections on Self-value with CF

cystic fibrosis, News FDA Approves Kalydeco for Treatment of 6- to 12-month-old Infants with Cystic Fibrosis

News PALS Uplifts the Spirits of Rare-Disease Patients by Offering Free Flights

cystic fibrosis, News Decreasing Acidity of Airway Liquid in Newborn CF Patients May Reduce Infection Risk, Study Suggests

Columns, Victorious - a Column by Brad Dell Here’s What It Feels Like to Have Cystic Fibrosis

cystic fibrosis, News CF-associated Bacteria and Fungi Affect Each Other’s Growth, According to In Vitro Study

Columns, Mutations & Conversations - a Column by Tré LaRosa As a CFer, Birthdays Remind Me that Life Is Fragile

cystic fibrosis, News Diabetes and Insulin Treatment Adds to CF Burden and Ways Are Needed to Ease It, Study Says

Columns, Life in the Grey: a Column by Bailey Anne Vincent Don’t Discriminate Against Disabilities and I Won’t Police Your Politics

Becoming Visible by Elizabeth Rogers, Columns I’m Thinking About the Future

cystic fibrosis, News CFF Awards TB Alliance $5.1M to Develop Treatments for Multidrug-resistant NTM Infections

News CARSTAR Earns Fundraising Awards from Cystic Fibrosis Foundation

News Nonprofit Group Works to Raise Rare Disease Awareness in India

cystic fibrosis, News Gene Editing In Utero May Prevent Fatal Lung Diseases After Birth, Mouse Study Suggests

cystic fibrosis, News AmorChem, UdeS Team Up to Advance Research of Natural Antibiotic Against Infections Linked to CF

Columns, Mutations & Conversations - a Column by Tré LaRosa We Must Pay Closer Attention to the Global CF Population

cystic fibrosis, News AbbVie Opens Scholarship Applications for Students with Cystic Fibrosis

Columns, Work that Works - a Column by Elly Aylwin-Foster Can We Take a Minute to Rest?

cystic fibrosis New Test Could Lead to Effectively Customizing Treatments for CF Patients, Study Contends

Columns, This Lung Life - a Column by Ella Balasa How I’ve Found Purpose Without Having a Full-time Job

Columns, Modern CF Mama - a Column by Janeil Whitworth CF ‘Mom Guilt’ Is Hard, but My Best Is Good Enough

cystic fibrosis, News Starting Kalydeco Treatment Before Birth May Help Halt CF Progression Post-Birth, Animal Study Suggests

cystic fibrosis, News Early Antibiotic Treatment Better to Eradicate New MRSA Infections in CF Patients, Study Suggests

Columns, Mutations & Conversations - a Column by Tré LaRosa My Personal Paradox Sets the Bar Higher and Higher

cystic fibrosis, News Incidence of Liver Disease and Cirrhosis Climbing in CF Patients, UK Registry Study Says

Columns, Life in the Grey: a Column by Bailey Anne Vincent How to Be a Supermodel When You’re Scared, Sad, and Scarred

Becoming Visible by Elizabeth Rogers, Columns Modulating Reality: My Miracle CF Med Was All Hype

cystic fibrosis, News Synspira’s CF Therapy Candidate SNSP113 Granted Orphan Drug Status in EU

Columns, Work that Works - a Column by Elly Aylwin-Foster Does Having CF Affect a Career Negatively or Positively?

cystic fibrosis, News Streptococcus, Haemophilus Bacteria Dominate Airways of CF Babies for First 2 Years, Study Says

cystic fibrosis CF Patients Infected with CMV May Have Faster Disease Progression, Study Finds

Columns, Victorious - a Column by Brad Dell Why I Shout My Story

News Large Sugar Molecule Disrupts B. cepacia Bacteria from CF Patients, Study Shows

Columns, Path Unknown - a Column by Wendy Caroline Feeling Bad for Myself Is Part of Healing

cystic fibrosis, News Choline Supplementation Improves Lung Function, Liver Health in CF Patients, Study Shows

Columns, Mutations & Conversations - a Column by Tré LaRosa How Do We ‘Speak CF’ in a Way that Connects Us?

Columns, Life in the Grey: a Column by Bailey Anne Vincent If I Were the Manic Pixie Dream Girl in My Own Sick Life

cystic fibrosis Mucus and Inflammation, Rather Than Infections, are Early Drivers of Lung Disease in CF, Study Says

Columns, Las Cosas de la Vida - a Column by Luisa Palazola 3 Ways Fear and Anxiety Shaped How I Cope

Columns, Work that Works - a Column by Elly Aylwin-Foster Dealing with Expectations at Work with an Invisible Illness

cystic fibrosis, News Resura, First Prenatal Non-Invasive Test for Single-Gene Diseases Like CF, Launched by Progenity

cystic fibrosis, News Phase 2a Trial Will Test Molgradex in CF Patients with NTM Infections