“You might live long enough to finish college, maybe even get married, but …” I imagine this is what the textbooks used to say about cystic fibrosis (CF) when I was in college. While I heard such things at medical appointments, I refused to let that narrative define my…
Handgrip strength was associated with breathing muscle strength in adults with cystic fibrosis (CF), according to a new study, suggesting the simple test may help complement standard lung function tests in clinical care. The research also found that lung function and breathing muscle strength were related to a combination…
Discussion
I suspect that many people think living with a chronic illness means that all of your days are filled with drama, such as emergencies, hospitalizations, and constant danger. But that wasn’t how it was for me and my late daughter, Jasmine, who had cystic fibrosis (CF) and passed away…
Short-term increases in air pollution can trigger pulmonary exacerbations — disease flares marked by a sudden worsening in lung function — in people with cystic fibrosis (CF), a new study shows. Notably, the study found that increased pollution doesn’t trigger exacerbations right away — the data suggest that…
Treatment with Trikafta (elexacaftor/tezacaftor/ivacaftor) may do more than improve the function of a faulty protein in people with cystic fibrosis (CF). According to a new study from Italy, the triple-combination therapy may also help reduce chronic inflammation, known to contribute to long-term lung damage in those with CF.
Discussion
February has always been a complicated month for me. The holidays are over, spring feels impossibly far away, and here in the Northeast, the gray skies and frigid temperatures seem to stretch on endlessly. And with cold and flu season raging, this time of year presents its own unique challenges…
Discussion
My permanent disabled parking placard was falling apart, and after 10 years of use, it was held together with tape. So I went to the Department of Motor Vehicles to get a new one. “I’m so sorry that it’s permanent,” replied the lady behind the service counter. Her response shocked…
Becoming educated and informed about cystic fibrosis is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your CF journey.
There is no cure for CF yet, but here you can find more information about current therapeutic approaches, as well as experimental treatments that are in the pipeline.
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