Even though my husband, Chris, and I have only been together a few years, he’s caught on to the steep learning curve of navigating life with cystic fibrosis (CF) and a double-lung transplant. Everything changed when Chris came on the scene. I no longer had to carry the…
Discussion
A new study identified four distinct patterns of digestive symptoms in adults with cystic fibrosis (CF), ranging from mild to severe and widespread symptoms. These patterns of symptoms showed “associations with [gastrointestinal] complications and medication requirements, suggesting distinct underlying [mechanisms] and a varying degree of involvement of complex gastrointestinal…
Discussion
Many people with cystic fibrosis (CF) struggle with steep healthcare bills, but those who hesitate to discuss money with their doctors face the highest barriers to getting financial help, a U.S. survey has found. Patients often keep quiet simply because they do not know what questions to ask or…
Discussion
For seven years, my Medicare prescription drug plan, Aetna’s SilverScript, has been one of the few things in my life I haven’t had to think much about. It simply worked. This fall, I learned that it will no longer be available in my state in 2027. Just like that, a…
Discussion
Note: This column describes the author’s own experiences with various alternative therapies. Not everyone will have the same response. Consult your doctor before starting or stopping a therapy. I’ve used alternative therapies my whole life to fill the gaps in Western medicine. Through trial and error and changes in my…
Discussion
People with cystic fibrosis (CF) and their caregivers want their CF care teams to help with school needs, including absences, accommodations, and infection control, according to a U.S. survey. The survey revealed common issues “that warrant targeted and proactive attention to support academic achievement and wellbeing,” the researchers wrote.
Discussion
About 40% of people with cystic fibrosis (CF) taking CFTR modulators, a class of medication used to treat the genetic disorder, consider inhaled medicines less important after starting these meds, according to a U.K. survey. Many people attributed this change to improved health, fewer respiratory symptoms, or a lack…
Becoming educated and informed about cystic fibrosis is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your CF journey.
There is no cure for CF yet, but here you can find more information about current therapeutic approaches, as well as experimental treatments that are in the pipeline.
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