I’m Worried About Coughing in Public
Lately, I’ve had a lot of fears. Like others in the global cystic fibrosis community, I’m self-isolating. I follow the CF Foundation’s COVID-19 plans ... Read more
Updates
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NORD Partners with ‘Sing Me a Story’ for July 18–20 Living Rare Forum
The Living Rare, Living Stronger Patient and Family Forum, originally set for May 14–16 in Cleveland, Ohio, has been postponed until July 18–20 ... Read more -
Problems with CFTR Protein in Platelets Linked to Lung Inflammation, Injury
Problems with the CFTR protein in platelets, blood cells essential to clotting, activated these cells, both driving lung inflammation and injury, and hindering the lungs’ ... Read more -
Cells Grown in Artificial Organs May Be Most Viable for Lung Disease Research
Growing cells in artificial tracheas or lungs is a better approach to model native organs than cells cultured in spheroids or in a plastic ... Read more -
How High Risk for COVID-19 Has Shaped My Perspective
We are currently experiencing something unlike anything we have seen before: a coronavirus pandemic whose magnitude is unprecedented in modern history. Two weekends ago, ... Read more
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Pulmonary Artery Measurements Used to Identify Pulmonary Hypertension in CF Patients
Pulmonary artery enlargement is linked to pulmonary hypertension (PH) and lower survival among patients ... -
We Need to Expand Our Perspective of the Coronavirus
The cystic fibrosis (CF) community is handling COVID-19 in two ways. Some claim that ... -
Some Calm Thoughts Amid the COVID-19 Pandemic Pandemonium
A surreal winter, huh? Pandemic pandemonium. Over and over. “I can’t believe we even ... -
COVID-19 Emergency Fund Launched to Support Cystic Fibrosis Community
The non-profit organization Claire’s Place Foundation has launched a donation-based COVID-19 Emergency Fund to ... -
My Perspective on COVID-19 as a CF Patient and a Restaurant Manager
My head has been spinning with how rapidly the effects from COVID-19 have engulfed ... -
Azithromycin Slows Lung Function Decline in CF Patients with P. aeruginosa, Study Says
Prolonged use of the antibiotic azithromycin resulted in a 37% slower rate of lung ...
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