Developing cystic fibrosis (CF) during the first month of life may no longer necessarily predict poorer long-term outcomes, a new study from Portugal suggests. Despite experiencing substantial disease burden early in life, people whose signs of CF first manifested during the neonatal period had similar long-term nutritional outcomes and survival…
Discussion
My daughter, Jasmine, went to her first school dance when she was 16. It was the kind of night she had dreamed about and worked hard to reach, despite dealing with cystic fibrosis. She had prepared carefully, making sure her bronchial drainage treatments were done, her nebulizer…
Discussion
Writer, director, and actor Leah McKendrick has been selected as the winner of the 2026 Clairity Spotlight Award in recognition of her work raising awareness of cystic fibrosis (CF). McKendrick is the creator of the Netflix romantic comedy “Voicemails for Isabelle.” This award is given each year by…
Discussion
It’s only mid-August, and already the stores are stacked with Halloween decorations. Every year, this catches me off guard, and I find myself a little annoyed by it. I’m not ready to rush through summer. I love the warmth of the sun on my skin, the feeling of fresh air…
Discussion
Continued treatment with CFTR modulators was linked to lower anxiety and depression scores in children with cystic fibrosis (CF) along with improvements in lung function and parents’ mental health and quality of life, a study found. The study, “Mental health, sleep, and quality of life following CFTR…
Discussion
One of the biggest changes between my life before my lung transplant and my post-transplant life has been with my body temperature. Before my double-lung transplant, I ran hot all the time. I remember a night I was being transported from my home hospital to a transplant hospital for…
Discussion
Trikafta (elexacaftor/tezacaftor/ivacaftor) was associated with improved lung function and fewer pulmonary exacerbations, or sudden worsening of lung symptoms, in children ages 6 to 11 with cystic fibrosis (CF), a real-world study found. The treatment was also associated with improved nutritional status, fewer hospitalizations and antibiotic treatments, and reduced…
Becoming educated and informed about cystic fibrosis is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your CF journey.
There is no cure for CF yet, but here you can find more information about current therapeutic approaches, as well as experimental treatments that are in the pipeline.
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