When my daughter started elementary school, I wasn’t looking for help. I was just another mom on the sidelines of a soccer field, handing out snacks at birthday parties, and setting up carpool schedules. But in the routine of those early school years, something special grew — a community I…
American Airlines and its partners have raised more than $1.6 million for the Cystic Fibrosis Foundation (CFF) during the airline’s 41st annual Celebrity Ski event, continuing a four-decade tradition of hitting the slopes to fund a cure. The event, held March 5-8 in Beaver Creek, Colorado, featured…
Discussion
Hitting the trails on one of my favorite hikes, I spent the day atop a mountain, lying in my hammock and gazing up at the bright blue sky. The warm breeze filled my lungs and sparked a sense of excitement. Up there, I was completely alone — no one was…
Discussion
Last week, my parents joined hundreds of advocates on Capitol Hill in Washington, D.C. Along with others who have loved ones with cystic fibrosis (CF), they met with the staffers of senators and representatives from Kentucky. While there, my parents explained what CF is and all the medications…
Kidney stones are commonly detected in children with cystic fibrosis (CF), but are often small and do not require surgical treatment, according to a new study from Turkey. Nearly a fifth of the children evaluated in the study had kidney stones detectable by ultrasound, and even more had evidence…
Discussion
When my late daughter, Jasmine, was 8 years old, she never wanted to miss a party. Even when her lungs felt heavy and her breath was short, she’d insist on putting on a T-shirt and jeans, ready for any adventure that awaited her. She loved birthday parties most of all…
People with cystic fibrosis-related diabetes (CFRD) show alterations in the lung microbiome, the community of microbes that live in the lungs, a study from Sweden found. These alterations are characterized by reduced diversity of bacterial types and more imbalanced bacterial composition. The study also demonstrated that patients with CFRD had…
Becoming educated and informed about cystic fibrosis is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your CF journey.
There is no cure for CF yet, but here you can find more information about current therapeutic approaches, as well as experimental treatments that are in the pipeline.
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