Adults with cystic fibrosis (CF) and their healthcare providers generally agree that those living with stable disease while on CFTR modulator therapy could wait longer between routine clinic visits, according to surveys. Doctors of adult CF patients were more comfortable with lower lung function thresholds and fewer required visits…
Discussion
Sometimes, memories are triggered by my senses — things I hear, see, smell, or touch — and before I know it, I’m spiraling down a rabbit hole of past trauma from my life with cystic fibrosis (CF). It’s fascinating how my five senses remember everything and often transport me…
Discussion
CFTR modulators, a class of medications used to treat cystic fibrosis (CF), were associated with reductions in the airway burden of Pseudomonas aeruginosa and in the number of bacterial clusters over time, but large aggregates persisted, a study suggests. While CFTR modulator use was linked to a lower overall…
Discussion
Children and adolescents with cystic fibrosis (CF) showed increased oxidative stress, which can cause cellular damage, higher inflammation, and reduced activity in the nervous system that helps regulate heart rate, even when their lung disease was mild, a study reports. The study also found that, in the study population…
Discussion
A new model based on body composition and hand grip strength may help clinicians identify children with cystic fibrosis (CF) at risk of rapid weight gain or weight loss after starting Trikafta (elexacaftor/tezacaftor/ivacaftor), a new study suggests. In 27 children treated with Trikafta, researchers found that weight responses…
Discussion
Inhale. Exhale. Ah. If only it were that simple. Living with cystic fibrosis (CF) has given me a sixth sense about my breathing. I pay more attention to every breath than I do to most anything else. It’s at the forefront of my mind constantly. I don’t clock in,…
Discussion
Parent caregivers of people with cystic fibrosis (CF) want a tailored, internet-delivered resource offering mental health support, disease education, and connection with other CF families, a study in Canada showed. Researchers said the information gained from the interview-based study will be used “to develop an accessible, tailored, Internet-delivered resource…
Becoming educated and informed about cystic fibrosis is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your CF journey.
There is no cure for CF yet, but here you can find more information about current therapeutic approaches, as well as experimental treatments that are in the pipeline.
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