Bailey Vincent

If you could have an adult Make a Wish… What would it be?

This question is almost too tempting for me. Since my partner lost his job during the pandemic + I’ve been sidelined due to risk and recovery + and his new job doesn’t earn the same as his last, we are right back into our restless cycle.

We seem to rebuild, relapse, repeat when it…[Read more]

Last week my co-moderator Jenny wrote about a friend of hers with CF, and I asked her if she feels like she has “sick friends” and “not sick friends”. Meaning, does she feel like she has pals who truly understand her sickness, and others who are less involved? She said yes… and I can’t help but agree.

In my own experience, I have CF friends who…[Read more]

Since I talked about Comfort Movies yesterday (films that make you feel better when you’re sick), here’s another healing habit question:

Do you read when you don’t feel well?

I am normally a pretty avid reader (although more of an avid writer), but when I don’t feel well, I actually tend to not read because my eyes and head hurt, and medications…[Read more]

Yesterday I wrote about music that inspires us or feels therapeutic, and it got me thinking about my other favorite medium: Movies.

I read recently that the reason some of us prefer to watch movies we’ve seen before d(uring a global crisis like this one) is because not worrying about the ending or what might happen helps with anxiety. I feel…[Read more]

Last week I wrote quickly about playlists for surgery or hospital visits (songs that lift our spirits or connect back to a major memory), but I also said I’d share a bit about creating a score for a dance performance.

Since I’m Artistic Director of a dance company (when we aren’t on pause from COVID), I create full plot-lines and playlists to…[Read more]

Since hospital stays and recovering at home was on my mind all week, I want to know:

What is your personal health anthem?

Do you have a “hype song” that you listen to before going in for surgery?
Do you have one for when you need to stay calm?
What song or music do you connect back to major medical moments?

Even though I’m Deaf (just incase…[Read more]

I’ve been talking a lot about hospital stays and home scheduling this week, but here’s another question:

Do you prefer Home-Health or outpatient physical therapy?

I was supposed to be getting PT at home three days a week because I’m so weak right now (something I don’t even like to type out), but I am requesting to be “discharged” until I can…[Read more]

I’m going to pivot from talking about hospitals and food, and ask something more pertinent to our everyday lives: Schedules.

How do you build your weekly schedule to fit your physical needs?

I have found (over the years) that I do best with a 1-Day-On, 1-Day-Off sort of system, whenever possible. I prefer to work insanely hard for one day (I…[Read more]

True or False: Do you like extra salt on your food?

I’m sure we’ve all heard this joke in the CF community: We all love salt. We add it to our chips… to our meals. It’s a constant salt-side hustle. But… is it?

I wonder how many of these traits are actually true to form. Since this one can be explained by science technically, but might be a…[Read more]

My husband has never seen the movie Five Feet Apart before, so I decided to finally show it to him last night since it’s free on Hulu right now.

During the film, we kept gently joking about the fictional liberties of the movie (which make total sense: It’s Hollywood, after all), and the parts that rang profoundly true. I remember being so…[Read more]

To close out our week of childhood themed questions, here’s a big one:

If you could go back to school for anything, what would it be?

This of course assumes you were able to go to college for something to begin with, or that you’d want to go again. Another way of looking at this question could be: “What did you want to be growing up?” but I know…[Read more]