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Bailey Vincent started the topic Sharing Some BIG News (Eek) in the forum Adults With Cystic Fibrosis 1 year, 4 months ago
Hello forum friends.
Well, I have some pretty major news. I am going to be taking a brief winter hiatus from the forum… and I’m going to miss you all so much.
The good news is that it’s a positive hiatus (is there such a thing?) as my girls and I will be traveling for a professional dance gig for a temporary contract (you can see more about…[Read more]
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Bailey Vincent started the topic Getting My Booster and Want Advice/Information Please! in the forum Coronavirus (COVID-19) and CF 1 year, 5 months ago
I am getting my booster/third shot tomorrow, as well as my flu shot, right before I head off to dance for a few hours, and then have dance again the next day.
I work everyday this week and it only gets worse from there (stage week is less than two weeks away), so I don’t really have a “down day”, unfortunately, to make room for resting if I have…[Read more]
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Bailey Vincent wrote a new item 1 year, 5 months ago
I am on a nostalgia kick.
I know I’m not alone. Lately it seems like, everywhere I look is another 90’s reboot, or a media wink-and-a-smile to a previous decade (that reference was a Harry Connick nod,
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Bailey Vincent started the topic Throw It Back With Me (Help. I'm Stuck in the 90s) in the forum Adults With Cystic Fibrosis 1 year, 5 months ago
I am on a nostalgia kick.
I know I’m not alone. Lately it seems like, everywhere I look is another 90’s reboot, or a media wink-and-a-smile to a previous decade (that reference was a Harry Connick nod, just FYI), and on and on. And as cliche as it makes me: I LOVE it.
Leaning in to things that once felt new and now feel reassuring…[Read more]
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Bailey Vincent posted a new activity comment 1 year, 5 months ago
I just avidly read it and… I am in love with your love and that entire post!!!
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Bailey Vincent started the topic A Scary Mask Experience Yesterday : ( in the forum Coronavirus (COVID-19) and CF 1 year, 5 months ago
I have spent most of the pandemic rolling my eyes at anyone who complained too heavily about masks because ‘we with CF’ have had to wear in hospital more times than we could ever count. Surgeons wear them. I wear them at dance and move at really high-speed levels. And so on.
But last night, while running an entire show with my company (where some…[Read more]
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Bailey Vincent posted a new activity comment 1 year, 5 months ago
Phew, this one is tough. I have had to make a switch before because I didn’t like the head doctor, even though I liked the team (to me, if the doctor and I don’t gel, it’s really hard to overcome, you know?) But I’d say that if your feelings about appointments and the team is making you dread or even want to cancel appointments… it’s time to…[Read more]
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Bailey Vincent posted a new activity comment 1 year, 5 months ago
Hey Rach! It’s so nice to meet you. My name is Bailey and I moderate the forum along with my colleague Jenny, and we are both here should you need anything, or have any questions. What, if you don’t mind my asking, brought here? Look forward to getting to know you more!
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Bailey Vincent started the topic The Quickest Hello in the forum Adults With Cystic Fibrosis 1 year, 5 months ago
Hello forum friends! I have been off the forum for a few days, but I am still alive (hello, hi), and wanted to see how everyone has been feeling and doing.
I have had a rough medical week to say the least, so let’s talk happy and silly instead.
What are three interesting or fun things that have happened to you this week?
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Bailey Vincent started the topic Real Talk: Are You Happy With Your Body? in the forum Adults With Cystic Fibrosis 1 year, 5 months ago
Recently, our forum friend Jenny said the following: “I’ve experienced some pretty significant changes to my body in the last few years, but I held onto old clothes thinking “someday, they’ll fit again.” Finally coming to peace with the idea that realistically, they’ll probably never fit again and it’s okay to let them go was very liberating.…[Read more]
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Bailey Vincent started the topic Can I Never Answer an Email Again? in the forum Adults With Cystic Fibrosis 1 year, 5 months ago
My “day off” yesterday ended up being the day where everything I couldn’t get done on the days “on” got piled on. It hurts a lot currently to write for long periods of time (it’s sort of silly how I can dance here and there post surgery, yet typing on a laptop is what makes me miserable?), but I had no other choice because it had to get done. It…[Read more]
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Bailey Vincent posted a new activity comment 1 year, 5 months ago
I fully support Dad bods. I felt I had to give my official endorsement of Dad bods and little else, as contribution here. You’re welcome.
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Bailey Vincent posted a new activity comment 1 year, 5 months ago
I also should use one (my bedside stand is covered in bottles I leave out to remember to take) but I also don’t because I also find the organizing portion another “to do” on my way too “not-done” list. I am actually an otherwise very organized person – my closet, my car, my To Do list- so it’s funny how this is the straw to break my camel’s back…[Read more]
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Bailey Vincent started the topic Wow, I'm Sorta Proud of Myself (Group Bragging Time?) in the forum Adults With Cystic Fibrosis 1 year, 5 months ago
I am one day away from finishing a 7 day marathon of dance. I have had to teach, choreograph or direct dance every single day for a week… and tomorrow is my first “day off”. I honestly can’t believe I pulled it off less than a month after the last major surgery, and couldn’t help but post about it because… Wow, I did it!
So, today’s question…[Read more]
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Bailey Vincent started the topic Talking About Grief (and Dance and Music) in the forum Adults With Cystic Fibrosis 1 year, 5 months ago
What a week. Pain. Work. Work. Pain. So busy… but also always a little bit happy to be busy, I think. Despite this, we are working through some heavy topics in dance rehearsal last night.
One of the lead characters thinks that the love of her life has been killed, and so she has a slow slow slow denial-level reckoning ‘on stage’, much…[Read more]
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Bailey Vincent started the topic Honesty Time: Last Good Day and Last Bad Day? in the forum Adults With Cystic Fibrosis 1 year, 5 months ago
Yesterday was a stressful parenting day. Like…. really awful. It ended up consuming my whole morning when I had a lot of work to get done, and even worse: it just made me really tired and sad. Everything that’s going on is “normal” (teenage stuff), but man… it’s exhausting to balance all of it sometimes. The nearly full time work with…[Read more]
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Bailey Vincent posted a new activity comment 1 year, 5 months ago
Oh man I am definitely fighting hair loss right now and it makes me super upset! I know that’s silly and vain, but I really would rather commit to losing it all (shaving my head) or having it all… but living somewhere in the middle is hard. Know what I mean?
I will be very honest: I started using women’s off-brand Rogaine for awhile last…[Read more]
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Bailey Vincent posted a new activity comment 1 year, 5 months ago
This means the world. I can’t thank you enough for writing this… I truly felt like I “hugged” every word into my chest as I read them. Thank you friend!
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Bailey Vincent posted a new activity comment 1 year, 5 months ago
Um, that is fascinating about sickle cell and malaria! I actually take a medication called Quinidine for my heart, and it was originally used to treat malaria. I’m on it full time but always think… How the heck did they figure out that this also helps rare heart patterns? It’s fascinating to me! (How many times can I say fascinating? haha)
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Bailey Vincent posted a new activity comment 1 year, 5 months ago
Hey Andy. My name is Bailey and I’m one of the forum moderators here, along with my friend Jenny (who you’ll meet soon enough!) We are here to support you, answer questions should you have them, and post topics if you want to dive in and chat. Or, if you have any of your own questions or curiosities, please post your own or ask them here- whatever…[Read more]
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