Bailey Vincent

I love that musical, but I secretly love Funny Face more

To be brutally honest, I create things all day long for my profession. I know you’re speaking more to the general whole and not just me, of course, but for myself, I am active and do create. And I agree, it is truly cathartic. Still, I know that there are people who cannot do these things as easily – on this forum and in the world- and I have to…[Read more]

Okay I have to watch Schitt’s Creek. I definitely have been told to watch it a bunch of times and have only ventured a few episodes. You have given me a new mission! haha. Thank you Rusty

Thank you so Judy! Funny, I JUST mentioned you elsewhere on the forum and how I interviewed you and still need to formulate that column. I can’t wait, despite my delays! You are really such a motivating person to know, and we are lucky to have your insight here on the forum

Hey Nelson! Welcome to the forum! I see that my co-moderator Jenny already said hello, but I wanted to jump in and introduce myself too. My name is Bailey and we both moderate here to try to cultivate a safe, inclusive space to discuss medical worries or thoughts without judgement or shame. If you ever need anything, please just say the word!

Thank you for this W! I really appreciate your insight. To be honest, I have some strong OCD inclinations with very specific things (rituals and paranoia and control about the cleanliness of the utensils/food I eat), soooo…. you’re probably right on the money. Though I’ve never sought treatment for it, nor had anyone point it out back to me for…[Read more]

Ah I love Aimee! And I feel like you introduced me to her, Jenny? I’m pretty sure? I think you shared something of hers on Instagram and I clicked it… and I was hooked. She has such informative content about mindfulness, breathing and self care (all the things I’m terrible with). She is such a wealth of knowledge and uses her platform for truly…[Read more]

Rusty, I think it’s just so amazing you are living and thriving at 64 with CF. I interviewed one of our forum friends, Judy Moreland, a couple of months ago about her life with CF in her 70’s, and aimed to put it in a column, but am yet to do so (mostly busy weeks and distractive topics. But I do plan to soon!) So this is just amazing, refreshing,…[Read more]

This is such a cool concept to consider! Honestly, because I was diagnosed later in life and didn’t know I had atypical CF (rare genes) for a long time… I think that meant the closet concept was less of a concern? That being said, when I met my now-husband, I only told him, “I have some breathing and stomach things going on,” and didn’t expand…[Read more]

My brain read this and went “ooooh…. Maybe me?” when you said, “This is a therapy that has the potential to help many people”.

A friend of mine has rare mutations and was just allowed to try Tri (kafta) by her clinic, as they continue to expand the genes they allow to pay-to-play. She messaged me saying, “I think one day soon, you’ll be able…[Read more]

Couldn’t love this more. I also want to read this book!!!!

I have not been able to get my vaccine yet, but my partner had the Pfizer one and felt amazingly fine after… I admired him so much! I am really hopeful he will feel decent after the second dose (I’d always rather I feel yucky than he feel yucky, since I’m used to it and he’s not), but who knows? Im a little anxious, to be honest. More so for him…[Read more]