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Has someone ever policed your body or commented on your healthcare when they are not a close, personal component of your life?
I ask because… well, this keeps happening to me.
I have posted online a few times about my delay in getting the COVID vaccine, and strangers privately message me to explain why this is wrong. Normally they say…[Read more]
I have been writing a lot about nerve and joint pain on the forum, and I’m sure it’s getting old. (Or maybe just I am getting old? Is that what’s happening?)
I know that arthritis and inflammation can be a big part of CF, but since we don’t talk about it that much or see it depicted often online… sometimes that feels like a myth?
Despite my…[Read more]
Yesterday was Valentine’s Day and I spent most of it with my daughters and husband.
I met my husband when my health was first starting to really decline, but I didn’t have a grip yet on what was going (I was a late diagnosis!) My diagnosis went through many wrong iterations until we finally figured out what was up, but even then, the most…[Read more]
I spent most of the week yammering on about COVID and vaccine worries, and I figured I’d round out the week with the same. I keep finding new hurdles and issues as we evolve through my first pandemic, and I’m not sure how to handle them.
My schedule has changed a LOT in the last couple of weeks. It went from most of my work being online -…[Read more]
How often do you lose your sense of taste and smell, as someone with CF?
(Or, if you love someone with CF, is this a part of their disease process or cold symptoms too?) Yesterday I chatted quickly about the vaccine, but today I woke up and… well, I couldn’t taste my coffee very well.
In the past I would have said, “Ugh, my sinuses must be…[Read more]
I talked a bit about COVID yesterday and how it’s impacted colleagues and friends, but I haven’t talked much about my frustrations with vaccine access. Okay, well I have (if you count this column) but I don’t want to be one of those people complaining because they didn’t get Wonka’s golden ticket yet, you know?
Yesterday I got an email through my…[Read more]
Yesterday I wrote about feeling dizzy and sick-to-my-stomach, and of course my first thought when feeling so yucky is now always… “Is it COVID?” even when I know it’s not.
Still, with all the talk of vaccines and proactive movement, sometimes it feels like the world is forgetting there is still an active pandemic going on. Some more of my…[Read more]
Today I want to talk symptoms and see if you’ve ever felt the same or if you have any advice/wisdom.
Has anyone ever felt so dizzy that it made you horrifically nauseous? Which seemed to come first, in your case: the sickness or the dizziness?
I spent much of yesterday curled up in a ball- avoiding screens and TV and all things that made me…[Read more]
Here’s a weird question to end the week…
What brand of cough do you have?
(Haha. Yes, you read that correctly) Do you subscribe to the more low and wheezy methodology? What about wet and barking? Or maybe a going-off-the-rails runaway connectacough?
I would say I’m normally a low and wheezy person. Yes, wet (ew, I definitely produce sputum…[Read more]
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