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Cystic Fibrosis News Moderator

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  • Profile picture of Cystic Fibrosis News Moderator

    Cystic Fibrosis News Moderator started the topic Microbe DNA Discovery May Lead to Noninvasive Test for CF Infections in the forum CF Science and Research 2 years, 2 months ago

    People with cystic fibrosis (CF) have higher levels of DNA from common microbes that cause CF-related infections circulating in their blood, a study found. Read more here.

    What do you think of this news?

  • Profile picture of Cystic Fibrosis News Moderator

    Cystic Fibrosis News Moderator started the topic CF Therapies Symdeko and Orkambi Seen to Also Ease Inflammation in the forum CF Science and Research 2 years, 2 months ago

    In addition to restoring CFTR function, Orkambi and Symdeko significantly eased the excessive inflammation that damages lungs of people with CF, study reports. Click here to learn more.

    What do you think of this news?

  • Profile picture of Cystic Fibrosis News Moderator

    Cystic Fibrosis News Moderator started the topic OneLegacy Video Series Promotes Organ, Tissue Donation in the forum CF Science and Research 2 years, 2 months ago

    Click here to learn more about a four-part video series called “Sound Good?”, written and produced by man with cystic fibrosis who had double-lung transplants.

    Have you watched these videos? What do you think of this man’s story?

  • Profile picture of Cystic Fibrosis News Moderator

    Cystic Fibrosis News Moderator started the topic The Story Behind Awareness in the forum Cystic Fibrosis Resources 2 years, 2 months ago

    Lara Govendo believes that CF Awareness Month must move beyond sharing factoids and into a dialogue in order for the world to deeply understand how CF changes people. Click here to find out what she means.

    Do you agree with Lara? Why or why not?

  • Profile picture of Cystic Fibrosis News Moderator

    Cystic Fibrosis News Moderator started the topic How Trefoil Proteins Act to Thicken Mucus, Common to CF, Seen in Study in the forum CF Science and Research 2 years, 2 months ago

    Researchers have identified how trefoil proteins bind to sugars in mucin glycoproteins, thickening mucus in lungs of people with cystic fibrosis and other ills. Learn more about this research here.

    Do you have any questions about these findings?

  • Profile picture of Cystic Fibrosis News Moderator

    Cystic Fibrosis News Moderator started the topic CF Awareness Month Activities Varied, But Virtual, This Year in the forum Adults​ ​With​ ​Cystic Fibrosis 2 years, 2 months ago

    The COVID-19 pandemic has turned Cystic Fibrosis Foundation activities into virtual events this May, with an emphasis on patient stories and education. Click here to learn more about this year’s campaign.

    How have you been advocating for CF this month? How did the global pandemic impact your plans?

  • Profile picture of Cystic Fibrosis News Moderator

    Cystic Fibrosis News Moderator started the topic CF Foundation, Beam Partner to Offer Free Online Exercise Classes in the forum CF Science and Research 2 years, 3 months ago

    CFF is sponsoring free access to Beam, an online exercise platform with live and on-demand classes tailored for cystic fibrosis patients, through Labor Day. Learn more about Beam and how you can access it for free here.

    Will you take advantage of this offer?

  • Profile picture of Cystic Fibrosis News Moderator

    Cystic Fibrosis News Moderator started the topic Trikafta Very Effective CF Therapy, But Still Too Costly, ICER Reports in the forum CF Science and Research 2 years, 3 months ago

    Click here to read a report from ICER suggesting that Trikafta provides substantial benefit over current CF therapies, but that its cost is still too high.

    What do you think of this news?

  • Profile picture of Cystic Fibrosis News Moderator

    Cystic Fibrosis News Moderator started the topic Phase 2b Trial of MS1819 Will Be Conducted at TDN Clinical Sites in the forum CF Science and Research 2 years, 3 months ago

    AzurRx BioPharma has been cleared to conduct its Phase 2b OPTION 2 trial evaluating MS1819 at Therapeutics Development Network (TDN) clinical sites. Read the rest of the story here.

    What do you think of this news?

  • Profile picture of Cystic Fibrosis News Moderator

    Cystic Fibrosis News Moderator started the topic Publisher's Note: Industry Leaders Seek to Advance Innovative Resources for Rare, Orphan Disease Communities Amid COVID-19 Outbreak in the forum CF Science and Research 2 years, 3 months ago

    Click here to read an announcement from FFF Enterprises and BioNews Services about their plan to bring next-generation solutions to the rare and chronic disease clinical trial process.

    What do you think of this news?

  • Profile picture of Cystic Fibrosis News Moderator

    Cystic Fibrosis News Moderator started the topic Telemedicine One 'Good' Thing to Come Out of COVID Crisis, Doctors Say in the forum Coronavirus (COVID-19) and CF 2 years, 3 months ago

    With stay-at-home orders in place due to the COVID-19 pandemic, the use of telemedicine to conduct doctor’s appointments and checkups is on the rise. Learn more here.

    Have you ever tried telemedicine? Do you think it is a good alternative to face-to-face appointments?

  • Profile picture of Cystic Fibrosis News Moderator

    Cystic Fibrosis News Moderator started the topic S. aureus in CF Airways Change With Antibiotic Use, Age, Study Finds in the forum CF Science and Research 2 years, 3 months ago

    Staphylococcus aureus persists long term in the airways of patients with cystic fibrosis, but its population is influenced by age and antibiotics, a study says. Learn more here.

    What do you think about this study and its findings?

  • Profile picture of Cystic Fibrosis News Moderator

    Cystic Fibrosis News Moderator started the topic New Capsules Being Readied for Trial of Digestive Enzyme for CF with EPI in the forum CF Science and Research 2 years, 3 months ago

    Delpharm will manufacture MS1819 using enteric (slower dissolving) capsules for a Phase 2b trial in CF patients with exocrine pancreatic insufficiency. Read more here.

    What do you think of this news?

  • Profile picture of Cystic Fibrosis News Moderator

    Cystic Fibrosis News Moderator started the topic Report Cites IDPN as Nutritional Tool in CF Patients with Kidney Disease in the forum CF Science and Research 2 years, 3 months ago

    Delivering nutrients through dialysis could help people with co-occurring cystic fibrosis and kidney disease meet nutritional requirements, a report shows. Read more here.

    What do you think about this study and its findings?

  • Profile picture of Cystic Fibrosis News Moderator

    Cystic Fibrosis News Moderator started the topic CF Families Advised on Preventive Measures to Avoid Coronavirus in the forum CF Science and Research 2 years, 3 months ago

    As patients with pre-existing lung diseases are particularly vulnerable to coronavirus (COVID-19) infection, one medical expert has put together a list of preventative measures that can help keep people with CF safe. Check it out here.

    Did you find these guidelines helpful?

  • Profile picture of Cystic Fibrosis News Moderator

    Cystic Fibrosis News Moderator started the topic CF Teens' Nutrition Status Studied by West Virginia Grad Student in the forum CF Science and Research 2 years, 4 months ago

    A West Virginia University graduate student is carrying out a study to assess whether teenagers with CF are meeting their nutrition requirements. Read more about the project here.

    Do you track your nutrition? Do you think you are meeting your daily nutritional requirements?

  • Profile picture of Cystic Fibrosis News Moderator

    Cystic Fibrosis News Moderator started the topic CF Charity Bonnell Foundation Aims to Raise $1 Million in the forum CF Science and Research 2 years, 4 months ago

    Laura Bonnell, a mother of two daughters with CF, founded a charity that provides financial assistance and scholarships to cystic fibrosis patients in need. Learn more about the charity and its work here.

    What other charities are doing great work on behalf of the CF community?

  • Profile picture of Cystic Fibrosis News Moderator

    Cystic Fibrosis News Moderator started the topic CF Stem Cell Mutations Fixed via CRISPR Gene Editing Tool, Study Says in the forum CF Science and Research 2 years, 4 months ago

    A new variation of the gene editing technology CRISPR-Cas9 corrected mutations in the CFTR gene in stem cells from CF patients, a study found. Read more here.

    What do you think about this study and its findings?

  • Profile picture of Cystic Fibrosis News Moderator

    Cystic Fibrosis News Moderator started the topic Vertex CF Medicines Can Be Delivered Despite COVID-19, Company Says in the forum CF Science and Research 2 years, 4 months ago

    Vertex Pharmaceuticals said the worldwide COVID-19 outbreak has not affected its supply chain or its 2020 business outlook. Read more here.

    Are you worried about being able to access healthcare or treatments because of COVID-19?

  • Profile picture of Cystic Fibrosis News Moderator

    Cystic Fibrosis News Moderator started the topic I Don't Fit the Description of What CF Is 'Supposed to Be' in the forum Adults​ ​With​ ​Cystic Fibrosis 2 years, 4 months ago

    Click here to read Bailey Vincent’s column about how her CF presents differently than in other patients, and how that impacts how people understand her disease.

    Can you relate? Do you think your CF presents “typically” or not?

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Cystic Fibrosis News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

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Disclaimer

This site is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

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