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Cystic Fibrosis News Moderator started the topic Microbe DNA Discovery May Lead to Noninvasive Test for CF Infections in the forum CF Science and Research 2 years, 2 months ago
People with cystic fibrosis (CF) have higher levels of DNA from common microbes that cause CF-related infections circulating in their blood, a study found. Read more here.
What do you think of this news?
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Cystic Fibrosis News Moderator started the topic CF Therapies Symdeko and Orkambi Seen to Also Ease Inflammation in the forum CF Science and Research 2 years, 2 months ago
In addition to restoring CFTR function, Orkambi and Symdeko significantly eased the excessive inflammation that damages lungs of people with CF, study reports. Click here to learn more.
What do you think of this news?
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Cystic Fibrosis News Moderator started the topic OneLegacy Video Series Promotes Organ, Tissue Donation in the forum CF Science and Research 2 years, 2 months ago
Have you watched these videos? What do you think of this man’s story?
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Cystic Fibrosis News Moderator started the topic The Story Behind Awareness in the forum Cystic Fibrosis Resources 2 years, 2 months ago
Lara Govendo believes that CF Awareness Month must move beyond sharing factoids and into a dialogue in order for the world to deeply understand how CF changes people. Click here to find out what she means.
Do you agree with Lara? Why or why not?
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Cystic Fibrosis News Moderator started the topic How Trefoil Proteins Act to Thicken Mucus, Common to CF, Seen in Study in the forum CF Science and Research 2 years, 2 months ago
Researchers have identified how trefoil proteins bind to sugars in mucin glycoproteins, thickening mucus in lungs of people with cystic fibrosis and other ills. Learn more about this research here.
Do you have any questions about these findings?
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Cystic Fibrosis News Moderator started the topic CF Awareness Month Activities Varied, But Virtual, This Year in the forum Adults With Cystic Fibrosis 2 years, 2 months ago
The COVID-19 pandemic has turned Cystic Fibrosis Foundation activities into virtual events this May, with an emphasis on patient stories and education. Click here to learn more about this year’s campaign.
How have you been advocating for CF this month? How did the global pandemic impact your plans?
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Cystic Fibrosis News Moderator started the topic CF Foundation, Beam Partner to Offer Free Online Exercise Classes in the forum CF Science and Research 2 years, 3 months ago
CFF is sponsoring free access to Beam, an online exercise platform with live and on-demand classes tailored for cystic fibrosis patients, through Labor Day. Learn more about Beam and how you can access it for free here.
Will you take advantage of this offer?
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Cystic Fibrosis News Moderator started the topic Phase 2b Trial of MS1819 Will Be Conducted at TDN Clinical Sites in the forum CF Science and Research 2 years, 3 months ago
AzurRx BioPharma has been cleared to conduct its Phase 2b OPTION 2 trial evaluating MS1819 at Therapeutics Development Network (TDN) clinical sites. Read the rest of the story here.
What do you think of this news?
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Cystic Fibrosis News Moderator started the topic Telemedicine One 'Good' Thing to Come Out of COVID Crisis, Doctors Say in the forum Coronavirus (COVID-19) and CF 2 years, 3 months ago
With stay-at-home orders in place due to the COVID-19 pandemic, the use of telemedicine to conduct doctor’s appointments and checkups is on the rise. Learn more here.
Have you ever tried telemedicine? Do you think it is a good alternative to face-to-face appointments?
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Cystic Fibrosis News Moderator started the topic S. aureus in CF Airways Change With Antibiotic Use, Age, Study Finds in the forum CF Science and Research 2 years, 3 months ago
Staphylococcus aureus persists long term in the airways of patients with cystic fibrosis, but its population is influenced by age and antibiotics, a study says. Learn more here.
What do you think about this study and its findings?
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Cystic Fibrosis News Moderator started the topic New Capsules Being Readied for Trial of Digestive Enzyme for CF with EPI in the forum CF Science and Research 2 years, 3 months ago
Delpharm will manufacture MS1819 using enteric (slower dissolving) capsules for a Phase 2b trial in CF patients with exocrine pancreatic insufficiency. Read more here.
What do you think of this news?
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Cystic Fibrosis News Moderator started the topic Report Cites IDPN as Nutritional Tool in CF Patients with Kidney Disease in the forum CF Science and Research 2 years, 3 months ago
Delivering nutrients through dialysis could help people with co-occurring cystic fibrosis and kidney disease meet nutritional requirements, a report shows. Read more here.
What do you think about this study and its findings?
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Cystic Fibrosis News Moderator started the topic CF Families Advised on Preventive Measures to Avoid Coronavirus in the forum CF Science and Research 2 years, 3 months ago
As patients with pre-existing lung diseases are particularly vulnerable to coronavirus (COVID-19) infection, one medical expert has put together a list of preventative measures that can help keep people with CF safe. Check it out here.
Did you find these guidelines helpful?
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Cystic Fibrosis News Moderator started the topic CF Teens' Nutrition Status Studied by West Virginia Grad Student in the forum CF Science and Research 2 years, 4 months ago
A West Virginia University graduate student is carrying out a study to assess whether teenagers with CF are meeting their nutrition requirements. Read more about the project here.
Do you track your nutrition? Do you think you are meeting your daily nutritional requirements?
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Cystic Fibrosis News Moderator started the topic CF Charity Bonnell Foundation Aims to Raise $1 Million in the forum CF Science and Research 2 years, 4 months ago
Laura Bonnell, a mother of two daughters with CF, founded a charity that provides financial assistance and scholarships to cystic fibrosis patients in need. Learn more about the charity and its work here.
What other charities are doing great work on behalf of the CF community?
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Cystic Fibrosis News Moderator started the topic CF Stem Cell Mutations Fixed via CRISPR Gene Editing Tool, Study Says in the forum CF Science and Research 2 years, 4 months ago
A new variation of the gene editing technology CRISPR-Cas9 corrected mutations in the CFTR gene in stem cells from CF patients, a study found. Read more here.
What do you think about this study and its findings?
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Cystic Fibrosis News Moderator started the topic Vertex CF Medicines Can Be Delivered Despite COVID-19, Company Says in the forum CF Science and Research 2 years, 4 months ago
Vertex Pharmaceuticals said the worldwide COVID-19 outbreak has not affected its supply chain or its 2020 business outlook. Read more here.
Are you worried about being able to access healthcare or treatments because of COVID-19?
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Cystic Fibrosis News Moderator started the topic I Don't Fit the Description of What CF Is 'Supposed to Be' in the forum Adults With Cystic Fibrosis 2 years, 4 months ago
Can you relate? Do you think your CF presents “typically” or not?
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