@darvicbody75
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Daryn Body replied to the topic Navigating a post-Trikafta world in the forum Trikafta: Triple Combination CFTR Modulator 9 months, 2 weeks ago
Great topic Jenny! So true!
It’s hard to know what to expect from my body in the Trikafta realm; greater stamina; increased workout tolerance; seeing faster results from workouts; harder to lose weight (putting weight on… what??), simpler therapy (even postponing/skipping sometimes ); etc.Sometime ago I had set a 10 year (non-verbal) plan to get…[Read more]
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Daryn Body replied to the topic Comforting Home Remedies in the forum Adults With Cystic Fibrosis 1 year, 5 months ago
Hot/cold showers are a great remedy for me! Helps the body aches, congestion (cause of rapid breathing during the cold cycle) and generally resets the body. I have several herbal remedies I use as well. Of course, more rest! Thanks for sharing your experiences. Trikafta has changed the face of CF forever…
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Daryn Body replied to the topic Massages and Muscle Guns: Yay or Nay? in the forum Adults With Cystic Fibrosis 2 years, 6 months ago
Absolutely Yay! I have been getting massage for years.
I have found that easing the tension and muscle tightness around the chest cavity makes therapy easier and loosens secretions. I am especially partial to traditional Thai massage; after experiencing my first one in Thailand in 2015. We had a very nice, traditionally run, local place that we…[Read more] -
Daryn Body posted a new activity comment 2 years, 6 months ago
Bailey, I have been reading the posts for awhile. I signed up to comment on your recent post about massage and massage guns. I especially enjoy the posts about real life living while coping with CF. Keep up the good work!
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Daryn Body posted a new activity comment 2 years, 6 months ago
Jenny, thank you for your work on the forum. I have been reading for awhile now and thought I would offer comments once in awhile. Keep up the good work! Sorry to hear about your sibling; how old were they?
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I’m so glad you decided to join and comment! Thank you for being here. My sister, Shannan, was 14 when she passed away, back in 1993. What about your brother? I’d love to learn more about him and your diagnosis story, if you’re comfortable sharing.
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Daryn Body became a registered member 2 years, 6 months ago
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Daryn, hello and welcome to the forum! I’m Jenny, one of the moderators here. You’ll be meeting my friend and co-moderator, Bailey, soon. I immediately see that we have a couple things in common — I also lost a sibling to CF and I’m approaching my one year Trikafta anniversary. I’d love to chat more about these things and look forward to getting…[Read more]
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Jenny, thank you for your work on the forum. I have been reading for awhile now and thought I would offer comments once in awhile. Keep up the good work! Sorry to hear about your sibling; how old were they?
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I’m so glad you decided to join and comment! Thank you for being here. My sister, Shannan, was 14 when she passed away, back in 1993. What about your brother? I’d love to learn more about him and your diagnosis story, if you’re comfortable sharing.
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Hey Daryn! It is so nice to meet you. As Jenny said, welcome to the forum, and please let us know if you need anything or have any requests. What brought you here and what topics are you hoping to chat about? We are open books!
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Bailey, I have been reading the posts for awhile. I signed up to comment on your recent post about massage and massage guns. I especially enjoy the posts about real life living while coping with CF. Keep up the good work!
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