Cystic Fibrosis News Today Forums | Deb | Activity https://cysticfibrosisnewstoday.com/forums/members/dkorun/activity/ Activity feed for Deb. Mon, 04 May 2026 14:50:31 -0500 https://buddypress.org/?v=2.21.1 en-US 30 hourly 2 0e77823370e3408ebcb4b729c2332b7c Deb replied to the discussion Financial hardships and CF in the forum Adults​ ​With​ ​CF https://cysticfibrosisnewstoday.com/forums/forums/topic/financial-hardships-and-cf/#post-19705 Thu, 31 Oct 2024 19:18:50 -0500 Reply to Financial hardships and CF

Yes paying for CF medications can be very expensive and stressful. I am using the co-pay assistance for years but this year, I am sure from cost of meds to Insurance co not covering as much , my co pay ran out and I am struggling to pay for the meds. Have request out for more assitance with Healthwell and others but the process is long and…

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]]> 6996672ec3b89b17127770037e128522 Deb replied to the discussion What do you want your elected officials to do? in the forum Adults​ ​With​ ​CF https://cysticfibrosisnewstoday.com/forums/forums/topic/what-do-you-want-your-elected-officials-to-do/#post-19704 Thu, 31 Oct 2024 19:10:37 -0500 Reply to What do you want your elected officials to do?

As far as CF drugs go, wish they could regulate the cost of the drugs all of us need. These drugs are so expenive and cause great stress on anyone that needs them.

]]> 1b43321072003743ee67be1d7448c4b4 Deb replied to the discussion Late diagnosis or misdiagnosis? in the forum Diagnosis​ ​Info​ ​and​ ​General​ ​Questions https://cysticfibrosisnewstoday.com/forums/forums/topic/late-diagnosis-or-misdiagnosis/#post-19616 Thu, 25 Jul 2024 19:22:57 -0500 Reply to Late diagnosis or misdiagnosis?

Hello,

I was not diagnosed till I was 52. I was raised in Dallas and lived in Houston after that for 24 years. I went to numerous Dr. From a ton of ENT, allergist, Pulmonary Dr. and no one took the time to sit with me and figure out why I was always so sick. In 2010 I was hospitalized with my first Pancreatis and had pneumonia at the same…

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]]> aa65d95baeaf9452885df1f2e5d113fa Deb became a registered member https://cysticfibrosisnewstoday.com/forums/activity/p/7062/ Wed, 19 Apr 2023 13:25:51 -0500 0