Cystic Fibrosis News Today Forums | Deanna York | Activity https://cysticfibrosisnewstoday.com/forums/members/dpyork1/activity/ Activity feed for Deanna York. Wed, 22 Apr 2026 13:36:41 -0500 https://buddypress.org/?v=2.20.0 en-US 30 hourly 2 73bae77012003e6aa793b5507a4ab2b3 Deanna posted a new activity comment https://cysticfibrosisnewstoday.com/forums/activity/p/6651/#acomment-6902 Thu, 19 Jan 2023 22:21:52 -0600 Trikafta for 3 months. Going well although my cf doc wanted me to take only 2 a day. Interestingly enough the Bordetella I contracted from a sick puppy. And so unusual my Dr gave a talk about it at a CF conference some years ago! I’ve had just about every NTM, gram negative, gram positive out there. Years of PICC lines and oral meds. I was… Read more

In reply to - Deanna posted an update My CF physician and I are going to consider Trikafta at my next appointment in October. I’m hoping to try it to help thin mucus in my sinuses, lungs, and digestive system. Deanna ]]> c2d9274ead0eb51f43683a62180bd451 Deanna replied to the discussion Let's talk about bugs (sputum cultures) in the forum Adults​ ​With​ ​CF https://cysticfibrosisnewstoday.com/forums/forums/topic/lets-talk-about-bugs-sputum-cultures/#post-18956 Thu, 19 Jan 2023 20:48:44 -0600 Reply to Let's talk about bugs (sputum cultures)

Hello. I‘m Deanna. Has anyone ever cultivated Maxorella? Gram negative bug. I also cultured several years ago Bordatella Bronchoseptica. Both were nasty. The Bordetella I got from a sick puppy. Had to be hospitalized twice. It took iv fluids PICC line at home for several weeks. Unusual but I cultured these weird things. The Moraxella was… Read more

]]> 304c52c78ed867e43bef043c27bf1861 Deanna replied to the discussion What is the biggest shock since your diagnosis? in the forum Adults​ ​With​ ​CF https://cysticfibrosisnewstoday.com/forums/forums/topic/what-is-the-biggest-shock-since-your-diagnosis/#post-18839 Thu, 17 Nov 2022 20:43:55 -0600 Reply to What is the biggest shock since your diagnosis?

My biggest shock was to have the diagnosis at all. I was dx in 2007. 2 mutations, one deltaf508. I turned 76 yesterday. And…I will start on Trikafta November 22, 2022!!  I will be shocked if I am without thick mucus, continuous sinus drainage, belly aches, etc. All due to CF. I WILL BE GRATEFUL to be rid of all that mucus. My quality of life… Read more

]]> 70f8bb877fc1571d1234a4e4fc06c507 Deanna replied to the discussion Late CF Diagnosis in the forum Adults​ ​With​ ​CF https://cysticfibrosisnewstoday.com/forums/forums/topic/late-cf-diagnosis/#post-18817 Tue, 08 Nov 2022 20:19:35 -0600 Reply to Late CF Diagnosis

I was diagnosed in 2007. I’ll be 76 this month.  What prompted me to get the Ambry blood test was that I developed NTM. Also grew fungus in my lungs. Had lots of sinus and chest infections. And trouble with digestive issues, especially constipations. 2 fecal impactions. I can remember my grandmother giving me laxatives and ear infections and… Read more

]]> 78c63f1c5aedaed72c8bfc3e1471e426 Deanna posted an update: Here’s a thing that I experience. When I shed even one […] https://cysticfibrosisnewstoday.com/forums/activity/p/6665/ Fri, 07 Oct 2022 00:27:59 -0500 Here’s a thing that I experience. When I shed even one tear or outright cry I start having thick and copious discharge from my nasal passages. Not something I can get rid of unless I leave and go to a bathroom. This is very embarrassing for me. I feel like I can’t express my emotions without having the nasty discharge. I’m hoping Trikafta… Read more

]]> 1 5115c177344542745011f1d9767570f1 Deanna posted an update: My CF physician and I are going to consider Trikafta at […] https://cysticfibrosisnewstoday.com/forums/activity/p/6651/ Thu, 06 Oct 2022 15:26:15 -0500 My CF physician and I are going to consider Trikafta at my next appointment in October. I’m hoping to try it to help thin mucus in my sinuses, lungs, and digestive system. Deanna

]]> 3 25ae61b6c6550dd2374a240733cc7974 Deanna became a registered member https://cysticfibrosisnewstoday.com/forums/activity/p/6611/ Fri, 30 Sep 2022 13:52:22 -0500 2