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Nickname

emily-kramer-golinkoff
Year of Birth

1985
What best describes you?

Patient
Short Bio

Emily Kramer-Golinkoff is Co-Founder of Emily’s Entourage, an innovative 501(c)3 foundation that accelerates research for new treatments and a cure for nonsense mutations of Cystic Fibrosis. She is also an internationally recognized patient advocate and speaker. Learn more about Emily’s Entourage

How did you hear about us?

Other
How long have you or the person that you are caring for had CF?

Since I was diagnosed at 6 wks
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