<?xml version="1.0" encoding="UTF-8"?>
<rss version="2.0"
	xmlns:content="http://purl.org/rss/1.0/modules/content/"
	xmlns:atom="http://www.w3.org/2005/Atom"
	xmlns:sy="http://purl.org/rss/1.0/modules/syndication/"
	xmlns:slash="http://purl.org/rss/1.0/modules/slash/"
		>

<channel>
	<title>Cystic Fibrosis News Today Forums | freya888 | Activity</title>
	<link>https://cysticfibrosisnewstoday.com/forums/members/freya888/activity/</link>
	<atom:link href="https://cysticfibrosisnewstoday.com/forums/members/freya888/activity/feed/" rel="self" type="application/rss+xml" />
	<description>Activity feed for freya888.</description>
	<lastBuildDate>Wed, 13 May 2026 13:41:48 -0500</lastBuildDate>
	<generator>https://buddypress.org/?v=2.21.1</generator>
	<language>en-US</language>
	<ttl>30</ttl>
	<sy:updatePeriod>hourly</sy:updatePeriod>
	<sy:updateFrequency>2</sy:updateFrequency>
		
								<item>
				<guid isPermaLink="false">2604df640096b445427235c613c61816</guid>
				<title>freya888 replied to the discussion Living With Pain (Not Taking Meds) in the forum Adults​ ​With​ ​CF</title>
				<link>https://cysticfibrosisnewstoday.com/forums/forums/topic/living-with-pain-not-taking-meds/#post-19873</link>
				<pubDate>Thu, 15 May 2025 16:37:12 -0500</pubDate>

									<content:encoded><![CDATA[<p class = "activity-discussion-title-wrap"><a href="https://cysticfibrosisnewstoday.com/forums/forums/topic/living-with-pain-not-taking-meds/#post-19873"><span class="bb-reply-lable">Reply to</span> Living With Pain (Not Taking Meds)</a></p> <div class="bb-content-inr-wrap"><p>Really appreciate you bringing this up. The connection between anxiety and chronic pain doesn’t get talked about enough, and it’s interesting how treating one can ease the other.</p>
</div>]]></content:encoded>
				
				
							</item>
					<item>
				<guid isPermaLink="false">033f298cd59b758e0f5b48cf55e12006</guid>
				<title>freya888 replied to the discussion Experiences with Alyftrek in the forum Adults​ ​With​ ​CF</title>
				<link>https://cysticfibrosisnewstoday.com/forums/forums/topic/experiences-with-alyftrek/#post-19872</link>
				<pubDate>Thu, 15 May 2025 16:36:09 -0500</pubDate>

									<content:encoded><![CDATA[<p class = "activity-discussion-title-wrap"><a href="https://cysticfibrosisnewstoday.com/forums/forums/topic/experiences-with-alyftrek/#post-19872"><span class="bb-reply-lable">Reply to</span> Experiences with Alyftrek</a></p> <div class="bb-content-inr-wrap"><p>I’ve been on Alyftrek for a few months now too. The first couple of weeks were rough, major purge and I felt achy all over. But after that settled down, I started noticing some real benefits. Breathing’s easier and I’ve had fewer exacerbations. It&#8217;s not perfect, but definitely feels like a step in the right direction. Curious to see long-term results.</p>
</div>]]></content:encoded>
				
				
							</item>
					<item>
				<guid isPermaLink="false">b50f653434909a15526f3b50b69e69ce</guid>
				<title>freya888 replied to the discussion Mental health and CF in the forum Mental Health</title>
				<link>https://cysticfibrosisnewstoday.com/forums/forums/topic/mental-health-and-cf/#post-19864</link>
				<pubDate>Tue, 13 May 2025 20:50:17 -0500</pubDate>

									<content:encoded><![CDATA[<p class = "activity-discussion-title-wrap"><a href="https://cysticfibrosisnewstoday.com/forums/forums/topic/mental-health-and-cf/#post-19864"><span class="bb-reply-lable">Reply to</span> Mental health and CF</a></p> <div class="bb-content-inr-wrap"><p>Managing mental health with CF is such a constant balancing act. Personally, I&#8217;ve found that keeping routines simple and consistent helps a lot: sleep, movement, and knowing when to unplug. I&#8217;ve also explored plant-based therapies alongside traditional options. If anyone&#8217;s curious about the medical cannabis route in the UK, checking out these &hellip;</p>
<p><span class="activity-read-more" id="activity-read-more-8191"><a href="https://cysticfibrosisnewstoday.com/forums/forums/topic/mental-health-and-cf/#post-19864" rel="nofollow"> Read more</a></span></p>
</div>]]></content:encoded>
				
				
							</item>
					<item>
				<guid isPermaLink="false">d9f106be4519efb01b4022df4b83594e</guid>
				<title>freya888 replied to the discussion How do you manage mental health? in the forum Adults​ ​With​ ​CF</title>
				<link>https://cysticfibrosisnewstoday.com/forums/forums/topic/how-do-you-manage-mental-health/#post-19860</link>
				<pubDate>Tue, 13 May 2025 19:43:06 -0500</pubDate>

									<content:encoded><![CDATA[<p class = "activity-discussion-title-wrap"><a href="https://cysticfibrosisnewstoday.com/forums/forums/topic/how-do-you-manage-mental-health/#post-19860"><span class="bb-reply-lable">Reply to</span> How do you manage mental health?</a></p> <div class="bb-content-inr-wrap"><p>I usually smoke it, just feels quicker and easier when I need something in the moment. Gummies are nice too, but I stick to smoking when the anxiety spikes and I need relief fast without waiting around.</p>
</div>]]></content:encoded>
				
				
							</item>
					<item>
				<guid isPermaLink="false">42c137b2fd3da6bc56641415782d6d17</guid>
				<title>freya888 replied to the discussion What are you looking to do this summer? in the forum Adults​ ​With​ ​CF</title>
				<link>https://cysticfibrosisnewstoday.com/forums/forums/topic/what-are-you-looking-to-do-this-summer/#post-19859</link>
				<pubDate>Tue, 13 May 2025 19:41:33 -0500</pubDate>

									<content:encoded><![CDATA[<p class = "activity-discussion-title-wrap"><a href="https://cysticfibrosisnewstoday.com/forums/forums/topic/what-are-you-looking-to-do-this-summer/#post-19859"><span class="bb-reply-lable">Reply to</span> What are you looking to do this summer?</a></p> <div class="bb-content-inr-wrap"><p>I’m actually not too far, maybe a 15-minute drive to a decent trail. It’s just a matter of dragging myself out the door sometimes ,  but once I’m out there, I always feel better. Trying to make it a weekly thing this summer.</p>
</div>]]></content:encoded>
				
				
							</item>
					<item>
				<guid isPermaLink="false">77bb159b74dda0d08597bd6d8d92c0c9</guid>
				<title>freya888 replied to the discussion Start of 2025 in the forum Support Groups</title>
				<link>https://cysticfibrosisnewstoday.com/forums/forums/topic/start-of-2025/#post-19858</link>
				<pubDate>Tue, 13 May 2025 19:40:38 -0500</pubDate>

									<content:encoded><![CDATA[<p class = "activity-discussion-title-wrap"><a href="https://cysticfibrosisnewstoday.com/forums/forums/topic/start-of-2025/#post-19858"><span class="bb-reply-lable">Reply to</span> Start of 2025</a></p> <div class="bb-content-inr-wrap"><p>A little bit, yeah. Some days are better than others, but I’m managing. Getting back into routines has helped a lot, even if it’s just small stuff like walking or staying in touch with people. Just trying to ride the waves, y’know?</p>
</div>]]></content:encoded>
				
				
							</item>
					<item>
				<guid isPermaLink="false">de3a69029d49ad2aeb5103c1300171ce</guid>
				<title>freya888 replied to the discussion How do you manage mental health? in the forum Adults​ ​With​ ​CF</title>
				<link>https://cysticfibrosisnewstoday.com/forums/forums/topic/how-do-you-manage-mental-health/#post-19849</link>
				<pubDate>Mon, 12 May 2025 19:46:59 -0500</pubDate>

									<content:encoded><![CDATA[<p class = "activity-discussion-title-wrap"><a href="https://cysticfibrosisnewstoday.com/forums/forums/topic/how-do-you-manage-mental-health/#post-19849"><span class="bb-reply-lable">Reply to</span> How do you manage mental health?</a></p> <div class="bb-content-inr-wrap"><p>Therapy’s been a game changer for me too, and honestly, I think it’s underrated how much just talking openly can help clear some of the mental clutter. I also use a bit of cannabis, specifically the <a target='_blank' href="https://strains.uk/weed-strains/knightsbridge-og-strain" rel="nofollow">knightsbridge og strain</a>, on the really heavy days. It’s super calming without shutting me down completely, just enough to take the edge off&hellip;</p>
<p><span class="activity-read-more" id="activity-read-more-8177"><a href="https://cysticfibrosisnewstoday.com/forums/forums/topic/how-do-you-manage-mental-health/#post-19849" rel="nofollow"> Read more</a></span></p>
</div>]]></content:encoded>
				
				
							</item>
					<item>
				<guid isPermaLink="false">f499b09f3cb85784f9fb7c8975facfcc</guid>
				<title>freya888 replied to the discussion Have you helped comfort others during their time of need? in the forum Adults​ ​With​ ​CF</title>
				<link>https://cysticfibrosisnewstoday.com/forums/forums/topic/have-you-helped-comfort-others-during-their-time-of-need/#post-19848</link>
				<pubDate>Mon, 12 May 2025 13:14:57 -0500</pubDate>

									<content:encoded><![CDATA[<p class = "activity-discussion-title-wrap"><a href="https://cysticfibrosisnewstoday.com/forums/forums/topic/have-you-helped-comfort-others-during-their-time-of-need/#post-19848"><span class="bb-reply-lable">Reply to</span> Have you helped comfort others during their time of need?</a></p> <div class="bb-content-inr-wrap"><p>So wild being the one <span>without</span> the wristband for once, right? Like, “Wait&#8230; I’m the stable one today?”</p>
</div>]]></content:encoded>
				
				
							</item>
					<item>
				<guid isPermaLink="false">b52be206828fd0461e50b277d917e1a6</guid>
				<title>freya888 replied to the discussion Arm sleeve in the forum CF Resources</title>
				<link>https://cysticfibrosisnewstoday.com/forums/forums/topic/arm-sleeve/#post-19847</link>
				<pubDate>Mon, 12 May 2025 13:14:16 -0500</pubDate>

									<content:encoded><![CDATA[<p class = "activity-discussion-title-wrap"><a href="https://cysticfibrosisnewstoday.com/forums/forums/topic/arm-sleeve/#post-19847"><span class="bb-reply-lable">Reply to</span> Arm sleeve</a></p> <div class="bb-content-inr-wrap"><p>Meanwhile, I was over here using duct tape and plastic wrap like a DIY disaster. This is way better.</p>
</div>]]></content:encoded>
				
				
							</item>
					<item>
				<guid isPermaLink="false">924387ce11e670b0f90d44c8d4d264e4</guid>
				<title>freya888 replied to the discussion What words or phrases bother you? in the forum Adults​ ​With​ ​CF</title>
				<link>https://cysticfibrosisnewstoday.com/forums/forums/topic/what-words-or-phrases-bother-you/#post-19846</link>
				<pubDate>Mon, 12 May 2025 13:13:03 -0500</pubDate>

									<content:encoded><![CDATA[<p class = "activity-discussion-title-wrap"><a href="https://cysticfibrosisnewstoday.com/forums/forums/topic/what-words-or-phrases-bother-you/#post-19846"><span class="bb-reply-lable">Reply to</span> What words or phrases bother you?</a></p> <div class="bb-content-inr-wrap"><p>People love unsolicited commentary, like it’s their cardio.</p>
</div>]]></content:encoded>
				
				
							</item>
					<item>
				<guid isPermaLink="false">d8d914945a8b28c7932f9f2c79526524</guid>
				<title>freya888 replied to the discussion What Do You Think of CBD? in the forum Adults​ ​With​ ​CF</title>
				<link>https://cysticfibrosisnewstoday.com/forums/forums/topic/what-do-you-think-of-cbd/#post-19844</link>
				<pubDate>Sun, 11 May 2025 20:41:12 -0500</pubDate>

									<content:encoded><![CDATA[<p class = "activity-discussion-title-wrap"><a href="https://cysticfibrosisnewstoday.com/forums/forums/topic/what-do-you-think-of-cbd/#post-19844"><span class="bb-reply-lable">Reply to</span> What Do You Think of CBD?</a></p> <div class="bb-content-inr-wrap"><p>Totally get the hesitation, I used to think CBD was just overpriced hype too. Tried a few brands and barely noticed anything… until I upped the dose. Then, like you, I started sleeping better and felt a bit more grounded. Still wouldn’t call it life-changing, but enough to make me curious again.</p>
<p>I’ve been looking into brands with more&hellip;</p>
<p><span class="activity-read-more" id="activity-read-more-8171"><a href="https://cysticfibrosisnewstoday.com/forums/forums/topic/what-do-you-think-of-cbd/#post-19844" rel="nofollow"> Read more</a></span></p>
</div>]]></content:encoded>
				
				
							</item>
					<item>
				<guid isPermaLink="false">d484ef72fdec8ce58708a4ef453ddb68</guid>
				<title>freya888 replied to the discussion What words or phrases bother you? in the forum Adults​ ​With​ ​CF</title>
				<link>https://cysticfibrosisnewstoday.com/forums/forums/topic/what-words-or-phrases-bother-you/#post-19843</link>
				<pubDate>Thu, 08 May 2025 16:14:54 -0500</pubDate>

									<content:encoded><![CDATA[<p class = "activity-discussion-title-wrap"><a href="https://cysticfibrosisnewstoday.com/forums/forums/topic/what-words-or-phrases-bother-you/#post-19843"><span class="bb-reply-lable">Reply to</span> What words or phrases bother you?</a></p> <div class="bb-content-inr-wrap"><p>One that really gets to me is, “At least it’s not [insert something else].” I get that people are trying to be positive or lighten the mood, but it ends up minimizing what I’m dealing with. I try to respond gently when I have the energy—sometimes by saying, “I know you mean well, but that actually makes it harder to talk about how I really&hellip;</p>
<p><span class="activity-read-more" id="activity-read-more-8170"><a href="https://cysticfibrosisnewstoday.com/forums/forums/topic/what-words-or-phrases-bother-you/#post-19843" rel="nofollow"> Read more</a></span></p>
</div>]]></content:encoded>
				
				
							</item>
					<item>
				<guid isPermaLink="false">4f045b285ccfd309161e366431640de4</guid>
				<title>freya888 replied to the discussion What are you looking to do this summer? in the forum Adults​ ​With​ ​CF</title>
				<link>https://cysticfibrosisnewstoday.com/forums/forums/topic/what-are-you-looking-to-do-this-summer/#post-19842</link>
				<pubDate>Thu, 08 May 2025 16:13:56 -0500</pubDate>

									<content:encoded><![CDATA[<p class = "activity-discussion-title-wrap"><a href="https://cysticfibrosisnewstoday.com/forums/forums/topic/what-are-you-looking-to-do-this-summer/#post-19842"><span class="bb-reply-lable">Reply to</span> What are you looking to do this summer?</a></p> <div class="bb-content-inr-wrap"><p>This summer I’m hoping to spend more time outdoors—maybe some light hikes or just relaxing in a park with a book. I’ve also got a small garden project I want to start. Nothing big, but just enough to feel like I’m enjoying the season and giving myself something peaceful to focus on.</p>
</div>]]></content:encoded>
				
				
							</item>
					<item>
				<guid isPermaLink="false">9368c5d64137610a8c2d52fc1b0da066</guid>
				<title>freya888 replied to the discussion Start of 2025 in the forum Support Groups</title>
				<link>https://cysticfibrosisnewstoday.com/forums/forums/topic/start-of-2025/#post-19841</link>
				<pubDate>Thu, 08 May 2025 16:13:05 -0500</pubDate>

									<content:encoded><![CDATA[<p class = "activity-discussion-title-wrap"><a href="https://cysticfibrosisnewstoday.com/forums/forums/topic/start-of-2025/#post-19841"><span class="bb-reply-lable">Reply to</span> Start of 2025</a></p> <div class="bb-content-inr-wrap"><p>Thanks for checking in—it’s been a mixed bag so far. Some health flare-ups but also small wins like getting back into a daily walk routine and reconnecting with a few friends I hadn’t talked to in a while. It helps to focus on the little things that keep you grounded, even when the world feels a bit overwhelming. Hope everyone else is&hellip;</p>
<p><span class="activity-read-more" id="activity-read-more-8168"><a href="https://cysticfibrosisnewstoday.com/forums/forums/topic/start-of-2025/#post-19841" rel="nofollow"> Read more</a></span></p>
</div>]]></content:encoded>
				
				
							</item>
					<item>
				<guid isPermaLink="false">3b4bb854c62ef3980d37d86d3ab24ac9</guid>
				<title>freya888 became a registered member</title>
				<link>https://cysticfibrosisnewstoday.com/forums/activity/p/7986/</link>
				<pubDate>Thu, 19 Dec 2024 14:20:00 -0600</pubDate>

				
									<slash:comments>0</slash:comments>
				
							</item>
		
	</channel>
</rss>
		