As in most things, the media does not get it quite right. For most media, it is a black and white issue, not a gray one. In today’s world, the distance of five feet is vague.  Most ‘bugs’ such as pseudomonas. are not transmitted by aerosol, unless the person coughs directly upon you.  Two CF patients kissing would be a high-risk adventure.  The… Read more

My 32 year old son started the drug and his PFT went from 70% to over 90% in less than one week. He stopped coughing and also improved his activity level considerably. He is also a CF diabetes patient and was started on insulin. He gained 20 pounds over two months. He had some debilitating side effects, insomnia, involuntary leg jerking. … Read more

It is common for patients to be in denial. And the symptoms you have may change as different organs are affected by CF at different times. CF affects all the mucus glands, pancreas, sweat, intestines and even the colon. Ulcers develop from stress and cortisone levels go up during stress. Steroids commonly cause ulcers….Always listen to… Read more

My 30 year old son noticed an immediate improvement within 24 hours, his sputum was liquified and he spit out a lot of fluid. He felt so much better, and realized he had never breathed so easily, he stopped coughing almost immediately, and walks easily without shortness of breath. He did have some serious side effects, jerking,… Read more

Ok Ashley. You and your husband are carriers, which means you each carry at least one 508 mutation. Each gene has two loci, one may be normal. The highest probability if you are both carriers is that your child wouldl have a probability of having CF is 50/50, the same as flipping a coin. So you have a good chance at having a perfectly… Read more

Phage therapy is being used to treat drug-resistant mycobacterium in CF patients. A phage is a bacterial virus that injects it’s DNA into bacteria, which may modify its sensitivity to antibiotics.

https://www.sciencemag.org/news/2019/05/viruses-genetically-engineered-kill-bacteria-rescue-girl-antibiotic-resistant-infection

In vitro studies of bacterial growth often reveal antibacterial activity of fungi. That is how Penicillin was discovered. This phenomenon dates back to Fleming in 1940 when he was growing staphylococcus and discovered a fungal contaminant on the plate. The areas surrounding fungal colonies had no staphylococcal growth. There may be other… Read more