Janee replied to the topic Does getting older scare or delight you? in the forum Adults With Cystic Fibrosis 4 months, 3 weeks ago
Thanks Jenny. I do try to be positive as much as possible, like everyI have off days but so far have managed to find the positives in life. I’ll be happy to update you with my 60 experiences. Thank you for reading
Janee replied to the topic Does getting older scare or delight you? in the forum Adults With Cystic Fibrosis 5 months ago
It’s certainly better than the only other option! I will hit 60 in October this year and have decided I will be doing 60 new things throughout the year to celebrate! They may only be small events; new food, new restaurants (food figures high on my radar) or venturing to new places.
I thought 50 would be my last decade but am so happy to say I w…[Read more]
Janee replied to the topic Has Trikafta improved GI symptoms for you? in the forum Adults With Cystic Fibrosis 1 year, 6 months ago
I haven’t noticed much difference with my stomach other than it’s now incredibly noisy! I don’t mean in the wind department, it just seems to gurgle so much more. My bowels are incredibly sluggish and I take movicol, prucalopride and docusate with the occasional cocktail of gastrograffin
Janee posted a new activity comment 1 year, 8 months ago
Hi Jenny, thank you for admitting me to the site. I was very interested in one of the posts Bailey made regarding her neurosurgery as I too have had similar and wondered if it was yet another rare side effect of something else in CF?
Janee became a registered member 1 year, 8 months ago
Janee, hello and welcome to the forum! I’m Jenny, one of the moderators here. I am so happy to read of your success with CFTR modulators. We talk about our experiences on them quite frequently here. Please feel free to ask any questions you may have. If you’re looking for something specific, you can browse the forum or reach out to myself or…[Read more]