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	<title>Cystic Fibrosis News Today Forums | jono | Activity</title>
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				<title>jono replied to the discussion What words or phrases bother you? in the forum Adults​ ​With​ ​CF</title>
				<link>https://cysticfibrosisnewstoday.com/forums/forums/topic/what-words-or-phrases-bother-you/#post-19845</link>
				<pubDate>Mon, 12 May 2025 01:03:32 -0500</pubDate>

									<content:encoded><![CDATA[<p class = "activity-discussion-title-wrap"><a href="https://cysticfibrosisnewstoday.com/forums/forums/topic/what-words-or-phrases-bother-you/#post-19845"><span class="bb-reply-lable">Reply to</span> What words or phrases bother you?</a></p> <div class="bb-content-inr-wrap"><p>A couple of things people say really annoy me: After someone hears me coughing &#8211; &#8220;Gotta stop smoking mate&#8230;.&#8221; or &#8220;You need to cut down on the cigarettes&#8221; and back before self check out at the grocery store, the check out attendant looking at all my high calorie food &#8211; &#8220;Who&#8217;s having the party?&#8221; or something similar. Argh&#8230; no this is just what&hellip;</p>
<p><span class="activity-read-more" id="activity-read-more-8172"><a href="https://cysticfibrosisnewstoday.com/forums/forums/topic/what-words-or-phrases-bother-you/#post-19845" rel="nofollow"> Read more</a></span></p>
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				<title>jono replied to the discussion Trikafta causing Disaccharidase Deficiency? in the forum Adults​ ​With​ ​CF</title>
				<link>https://cysticfibrosisnewstoday.com/forums/forums/topic/trikafta-causing-disaccharidase-deficiency/#post-19787</link>
				<pubDate>Thu, 20 Mar 2025 00:27:20 -0500</pubDate>

									<content:encoded><![CDATA[<p class = "activity-discussion-title-wrap"><a href="https://cysticfibrosisnewstoday.com/forums/forums/topic/trikafta-causing-disaccharidase-deficiency/#post-19787"><span class="bb-reply-lable">Reply to</span> Trikafta causing Disaccharidase Deficiency?</a></p> <div class="bb-content-inr-wrap"><p>Cheers. Thanks again for replying William. Appreciate it!</p>
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				<title>jono replied to the discussion Trikafta causing Disaccharidase Deficiency? in the forum Adults​ ​With​ ​CF</title>
				<link>https://cysticfibrosisnewstoday.com/forums/forums/topic/trikafta-causing-disaccharidase-deficiency/#post-19783</link>
				<pubDate>Sun, 16 Mar 2025 03:49:49 -0500</pubDate>

									<content:encoded><![CDATA[<p class = "activity-discussion-title-wrap"><a href="https://cysticfibrosisnewstoday.com/forums/forums/topic/trikafta-causing-disaccharidase-deficiency/#post-19783"><span class="bb-reply-lable">Reply to</span> Trikafta causing Disaccharidase Deficiency?</a></p> <div class="bb-content-inr-wrap"><p>Thanks for the feedback. I&#8217;ve actually had a few people online suggest to me to change from Creon to another brand of enzymes. Unfortunately I&#8217;m from Australia, and I&#8217;m not sure if any other brands are available here. But I&#8217;ll bring it up with my CF team and see what they can suggest. </p>
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				<title>jono started the discussion Trikafta causing Disaccharidase Deficiency? in the forum Adults​ ​With​ ​CF</title>
				<link>https://cysticfibrosisnewstoday.com/forums/forums/topic/trikafta-causing-disaccharidase-deficiency/</link>
				<pubDate>Thu, 13 Mar 2025 01:22:12 -0500</pubDate>

									<content:encoded><![CDATA[<p class = "activity-discussion-title-wrap"><a href="https://cysticfibrosisnewstoday.com/forums/forums/topic/trikafta-causing-disaccharidase-deficiency/">Trikafta causing Disaccharidase Deficiency?</a></p> <div class="bb-content-inr-wrap"><p>Hi All, since starting Trikafta I&#8217;ve had non stop gut issues (frequent loose stools, pain, bloating) for over 3 years. I’ve worked with my CF specialist, Gastro drs, dieticians, played with Creon dosages (up and down), colonoscopy, endoscopy, blood tests, different diets, fibre, water intake, keeping a food and symptoms diary, antibiotics for&hellip;<span class="activity-read-more" id="activity-read-more-8072"><a href="https://cysticfibrosisnewstoday.com/forums/forums/topic/trikafta-causing-disaccharidase-deficiency/" rel="nofollow"> Read more</a></span></p>
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				<title>jono wrote a new item</title>
				<link></link>
				<pubDate>Thu, 13 Mar 2025 01:22:12 -0500</pubDate>

									<content:encoded><![CDATA[<p>Hi All, since starting Trikafta I&#8217;ve had non stop gut issues (frequent loose stools, pain, bloating) for over 3 years. I’ve worked with my CF specialist, Gastro drs, dieticians, played with Creon dosages (up and [&hellip;]</p>
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				<title>jono became a registered member</title>
				<link>https://cysticfibrosisnewstoday.com/forums/activity/p/8066/</link>
				<pubDate>Wed, 12 Mar 2025 13:52:15 -0500</pubDate>

				
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