Cystic Fibrosis News Today Forums | jordan | Activity https://cysticfibrosisnewstoday.com/forums/members/jordan/activity/ Activity feed for jordan. Tue, 14 Apr 2026 13:16:00 -0500 https://buddypress.org/?v=2.20.0 en-US 30 hourly 2 4c3a188686ed329d1c51226f926cb3b3 jordan replied to the discussion Impact of CFTR Modulator Eligibility on Family-Planning Decisions in the forum Treating CF https://cysticfibrosisnewstoday.com/forums/forums/topic/impact-of-cftr-modulator-eligibility-on-family-planning-decisions-2/#post-19747 Wed, 08 Jan 2025 19:48:30 -0600 Reply to Impact of CFTR Modulator Eligibility on Family-Planning Decisions

Hi all, here is an updated link to the Informed Consent (with new link to the survey at the bottom). Unfortunately the old link got flooded by bots after posting in a public group.

Informed Consent doc here.

drive.google.com

CF_Study_Consent_With_WEBLINK3_CFNewsToday.pdf

CF_Study_Consent_With_WEBLINK3_CFNewsToday.pdf

]]> 3cd93984de1d61cc4e46da5a1ebc301b jordan replied to the discussion Impact of CFTR Modulator Eligibility on Family-Planning Decisions in the forum Science and Research https://cysticfibrosisnewstoday.com/forums/forums/topic/impact-of-cftr-modulator-eligibility-on-family-planning-decisions/#post-19746 Wed, 08 Jan 2025 19:48:08 -0600 Reply to Impact of CFTR Modulator Eligibility on Family-Planning Decisions

Hi all, here is an updated link to the Informed Consent (with new link to the survey at the bottom). Unfortunately the old link got flooded by bots after posting in a public group.

Informed Consent doc here

drive.google.com

CF_Study_Consent_With_WEBLINK3_CFNewsToday.pdf

CF_Study_Consent_With_WEBLINK3_CFNewsToday.pdf

]]> 4b67ff2263f1d89b421d4d7d1cc81bd4 jordan wrote a new item Mon, 06 Jan 2025 21:29:26 -0600 Hi all! I’m Jordan, a genetic counseling student at Bay Path University. My classmate Kristin and I are conducting our thesis project on cystic fibrosis, and we are looking for volunteers to complete our survey. […]

]]> 0 8b58065ebe0ddda276a9a60f96fae259 jordan wrote a new item Mon, 06 Jan 2025 21:26:51 -0600 Hi all! I’m Jordan, a genetic counseling student at Bay Path University. My classmate Kristin and I are conducting our thesis project on cystic fibrosis, and we are looking for volunteers to complete our survey. […]

]]> 0 4d92c26946ac371b38aec525b3bd042d jordan became a registered member https://cysticfibrosisnewstoday.com/forums/activity/p/7949/ Tue, 12 Nov 2024 14:01:48 -0600 0