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Judy Moreland replied to the topic My Personality Is My Worst Symptom in the forum Adults With Cystic Fibrosis 1 month ago
The part of my personality that makes health and healing the hardest for me is twofold: I am a great procrastinator and a great perfectionist. Of the 2, procrastination is the worse personality trait, especially now that I no longer work. When I worked full time (until age 51) and then part time (until age 58), I was much better at doing airway…[Read more]
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Judy Moreland replied to the topic CF and alcohol consumption in the forum Adults With Cystic Fibrosis 1 month, 2 weeks ago
There are different opinions on this subject of dehydration and alcohol and caffeine intake, especially caffeine intake. The different opinions above make me think I don’t have the complete knowledge to know what is right for every person with CF.
I didn’t understand all of Paul’s opinion, but I think I will leave it at this: In my personal…[Read more]
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Judy Moreland replied to the topic CF and alcohol consumption in the forum Adults With Cystic Fibrosis 1 month, 3 weeks ago
I forgot to check “Notify me of follow-up replies via email” in the previous comment.
Thank you.
Judy Moreland
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Judy Moreland replied to the topic CF and alcohol consumption in the forum Adults With Cystic Fibrosis 1 month, 3 weeks ago
Alcohol is dehydrating, the opposite of something a person with CF needs. Ever notice how thirsty you get after drinking more than one or two drinks?
My understanding of the problems in CF is that problems are caused because chloride doesn’t form salt in the cells correctly. The salt (sodium chloride) holds water and lubricates the lungs,…[Read more]
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Judy Moreland replied to the topic 2020 Word Challenge in the forum Adults With Cystic Fibrosis 2 months, 1 week ago
Superabundant stress (I know; it’s 2 words.)
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Judy Moreland posted a new activity comment 2 months, 3 weeks ago
Jenny, I have to admit that when I first saw the short pulmonology Fellow smiling at us in the purple shirt, green pants, and suspenders, I quickly looked down to his feel to see if he was wearing elf footwear! -
Judy Moreland posted a new activity comment 2 months, 3 weeks ago
Hi Jenny, I was diagnosed at age 42 in 1992. It was a scary time for me and my husband, worrying about the unknown and the shock of this diagnosis. I could look out my window at work and see SUNY University Hospital in Syracuse but was refused as a patient because only pediatric patients were accepted,My husband and I were able to…
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Wow, this is fascinating! I’ve always been intrigued by stories of diagnosis later in life, as it’s a completely different experience from my own. Thank you for sharing all this!
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Jenny, I have to admit that when I first saw the short pulmonology Fellow smiling at us in the purple shirt, green pants, and suspenders, I quickly looked down to his feel to see if he was wearing elf footwear!
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Judy Moreland replied to the topic Finding comfort in a (perhaps) strange place in the forum Adults With Cystic Fibrosis 2 months, 3 weeks ago
I definitely miss my CF Care Team. There is a great one at State University of New York (SUNY) CF Clinic in Syracuse, NY. I have been going there for 22 years now. After I was first diagnosed in 1992, this clinic was only for pediatric patients. By 1998, I could get in and saw a pediatric CF doctor for the first year until and adult doctor…[Read more]
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Judy: I wish I could interview you one day for my column, if ever you’d feel comfortable! (My email is [email protected], if you’re ever open to it)
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Judy Moreland replied to the topic Where are you joining us from? in the forum Adults With Cystic Fibrosis 2 months, 3 weeks ago
Bailey,
Fredonia is in Western New York State. Syracuse is in Central New York State. Fredonia is about a 3.5 hour drive from Syracuse. It’s funny, but as a young person I always thought that I had no accent. The people I worked with in Philadelphia laughed at the Syracuse flat “a” as in “I ha-a-ave to get my pa-a-ackage.” I worked on that…[Read more]
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Judy Moreland replied to the topic Where are you joining us from? in the forum Adults With Cystic Fibrosis 3 months ago
Baldwinsville, NY, a suburb of Syracuse, NY in Upstate NY. Some people who aren’t familiar with New York State think that its mostly New York City, but upstate is very different. Syracuse in the snowiest “big” city in the country. I’m sure there are small towns or hamlets that are snowier in the north, but we are the biggest city with the most…[Read more]
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Judy Moreland became a registered member 3 months, 1 week ago
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Hi, Judy! Welcome to the forum! I’m Jenny, one of the moderators here. My lovely friend and coworker, Bailey, is another moderator. If you have any questions or need help navigating the forums, please feel free to reach out. I’d love to hear more about your diagnosis story sometime! We are so glad you’ve joined us here and look forward to getting…[Read more]
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Hi Jenny, I was diagnosed at age 42 in 1992. It was a scary time for me and my husband, worrying about the unknown and the shock of this diagnosis. I could look out my window at work and see SUNY University Hospital in Syracuse but was refused as a patient because only pediatric patients were accepted,
My husband and I were able to…
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Wow, this is fascinating! I’ve always been intrigued by stories of diagnosis later in life, as it’s a completely different experience from my own. Thank you for sharing all this!
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Jenny, I have to admit that when I first saw the short pulmonology Fellow smiling at us in the purple shirt, green pants, and suspenders, I quickly looked down to his feel to see if he was wearing elf footwear!
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haha. Oh man. I love this reply though Judy!