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The part of my personality that makes health and healing the hardest for me is twofold: I am a great procrastinator and a great perfectionist. Of the 2, procrastination is the worse personality trait, especially now that I no longer work. When I worked full time (until age 51) and then part time (until age 58), I was much better at doing airway…[Read more]
There are different opinions on this subject of dehydration and alcohol and caffeine intake, especially caffeine intake. The different opinions above make me think I don’t have the complete knowledge to know what is right for every person with CF.
I didn’t understand all of Paul’s opinion, but I think I will leave it at this: In my personal…[Read more]
I forgot to check “Notify me of follow-up replies via email” in the previous comment.
Alcohol is dehydrating, the opposite of something a person with CF needs. Ever notice how thirsty you get after drinking more than one or two drinks?
My understanding of the problems in CF is that problems are caused because chloride doesn’t form salt in the cells correctly. The salt (sodium chloride) holds water and lubricates the lungs,…[Read more]
Superabundant stress (I know; it’s 2 words.)
I definitely miss my CF Care Team. There is a great one at State University of New York (SUNY) CF Clinic in Syracuse, NY. I have been going there for 22 years now. After I was first diagnosed in 1992, this clinic was only for pediatric patients. By 1998, I could get in and saw a pediatric CF doctor for the first year until and adult doctor…[Read more]
Fredonia is in Western New York State. Syracuse is in Central New York State. Fredonia is about a 3.5 hour drive from Syracuse. It’s funny, but as a young person I always thought that I had no accent. The people I worked with in Philadelphia laughed at the Syracuse flat “a” as in “I ha-a-ave to get my pa-a-ackage.” I worked on that…[Read more]
Baldwinsville, NY, a suburb of Syracuse, NY in Upstate NY. Some people who aren’t familiar with New York State think that its mostly New York City, but upstate is very different. Syracuse in the snowiest “big” city in the country. I’m sure there are small towns or hamlets that are snowier in the north, but we are the biggest city with the most…[Read more]
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