Judy Moreland

Didn’t mean to submit twice.  I didn’t think it went through the first time.  Sorry.

Judy Moreland

First of all, please let’s stop using “CF-er.”  We are much more than our disease, and I know we say “diabetic,” “quadriplegic,” “etc, but personally, I really dislike “‘CF-er,”  and I’m not sure “diabetic” is the first adjective used for someone with diabetes.  Would much rather be called a “a person with CF,’ or PWCF.

Secondly, I don’t un…[Read more]

I am not at all happy with the latest decision about mask wearing. We who have been fully vaccinated have no way of knowing if maskless people are also fully vaccinated or not. Some may have not been vaccinated at all (and don’t intend to get vaccinated) and other may not be fully vaccinated. Some may be unable to get the vaccine for reasons…[Read more]

Jenny, I have been trying to find your fairly recent column on your latest health challenges, and I’m coming up empty. Want to reply to you, and I am sorry that your challenges with this awful disease are intense right now.

Bailey, Good for you that you love hypertonic saline and TOBI for how much they work. I hated taking TOBI each time I had to take it because 25 minutes twice a day for 28 days was hard for me. Also hate cleaning the nebs, and when on TOBI, there are LOTS of extra nebs. I put them in the dishwasher, but as I use the Pari nebs, I always feel…[Read more]

I wish I had thought to add that the hospital personnel at the University of North Carolina in Chapel Hill and my present CF Care Team at University Hospital in Syracuse were (and are in the case of University Hospital) made up of very committed and compassionate people. That’s definitely what a CF Care Team should be.

Thank you, Jenny and Bailey.

This is a reply to “Do you get nervous talking to healthcare professionals or asserting yourself in an appointment?” My answer is no, not anymore.

I survived 3 years as a nursing student in the late 1960s. Back then, the doctors, usually men, were godlike and many of the nurses submissive. At least we nursing students were submissive. We felt…[Read more]

The part of my personality that makes health and healing the hardest for me is twofold: I am a great procrastinator and a great perfectionist. Of the 2, procrastination is the worse personality trait, especially now that I no longer work. When I worked full time (until age 51) and then part time (until age 58), I was much better at doing airway…[Read more]

There are different opinions on this subject of dehydration and alcohol and caffeine intake, especially caffeine intake. The different opinions above make me think I don’t have the complete knowledge to know what is right for every person with CF.

I didn’t understand all of Paul’s opinion, but I think I will leave it at this: In my personal…[Read more]

I forgot to check “Notify me of follow-up replies via email” in the previous comment.

Thank you.

Judy Moreland

Alcohol is dehydrating, the opposite of something a person with CF needs. Ever notice how thirsty you get after drinking more than one or two drinks?

My understanding of the problems in CF is that problems are caused because chloride doesn’t form salt in the cells correctly. The salt (sodium chloride) holds water and lubricates the lungs,…[Read more]

Superabundant stress (I know; it’s 2 words.)

I definitely miss my CF Care Team. There is a great one at State University of New York (SUNY) CF Clinic in Syracuse, NY. I have been going there for 22 years now. After I was first diagnosed in 1992, this clinic was only for pediatric patients. By 1998, I could get in and saw a pediatric CF doctor for the first year until and adult doctor…[Read more]

Bailey,

Fredonia is in Western New York State. Syracuse is in Central New York State. Fredonia is about a 3.5 hour drive from Syracuse. It’s funny, but as a young person I always thought that I had no accent. The people I worked with in Philadelphia laughed at the Syracuse flat “a” as in “I ha-a-ave to get my pa-a-ackage.” I worked on that…[Read more]

Baldwinsville, NY, a suburb of Syracuse, NY in Upstate NY. Some people who aren’t familiar with New York State think that its mostly New York City, but upstate is very different. Syracuse in the snowiest “big” city in the country. I’m sure there are small towns or hamlets that are snowier in the north, but we are the biggest city with the most…[Read more]