@kadeemm
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Kadeem M replied to the topic "Does Educating Others About Your Disease Feel Like a Blessing or a Curse?" in the forum Adults With Cystic Fibrosis 7 months ago
Personally I feel that if I have to educate someone about Cystic Fibrosis, I have to give them a crash course. And where there are grey areas, they would ask questions in which results in me going deeper into a lecture syle of teaching. Personally, I find it a blessing in a sense where I am able to educate someone about a topic I know so well…[Read more]
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Kadeem M replied to the topic Building trust in a healthcare setting in the forum Adults With Cystic Fibrosis 7 months, 1 week ago
This is very well thought out and written.
I found throughout my paediatric care (age 0-18), it was a lot easier to develop a sense of trust with my healthcare team regarding my overall health. Main factor being that since i was a minor, for majority of the years my parents would be making my medical decisions, and they never ever disagreed with…[Read more]
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Kadeem M started the topic Post-Transplant. in the forum Adults With Cystic Fibrosis 7 months, 2 weeks ago
My name is Kadeem, 23 years old and about to hit my 3 year post-transplant anniversary. It was just three years ago I had fallen ill do another contracted infection in which caused me serious chest pain, chest tightness, long strung-out coughing fits that would leave my heart racing and me gasping for air afterwards. I couldn’t speak a sentence w…[Read more]
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@kadeemm thank you for your vulnerability and willingness to share this post. Although our stories are very different, I can relate to some of the things you describe here. I, too, have lost so many friends to CF while I continue to do well. I’ve had the opportunity to try and benefit from new drugs, while so many people I know are unable to. It…[Read more]
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Kadeem M became a registered member 7 months, 2 weeks ago
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Kadeem M changed their profile picture 7 months, 2 weeks ago
I have heard a lot of people say this about adult health care versus pediatric. I think, sometimes, we feel less important as adults. Like physicians are less invested in our lives and the quality of them?